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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @lydialoo, Tell me about your high dose Thiamine routine. What kind of Thiamine are you taking? How much (mg) are you taking? When do you take it? Are you taking a B Complex? Are you taking Magnesium?
  2. knitty kitty
    Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
  3. knitty kitty
    @Nacina, I would add a B Complex to all that and extra thiamine B 1 and magnesium glycinate, and high dose Vitamin D to get his level up faster. We need the B vitamins to repair our body and for energy to function. Thiamine B 1 is especially important for athletes. Thiamine works with magnesium. Thiamine and magnesium deficiencies can cause...
  4. knitty kitty
    Welcome to the forum, @Nacina, What supplements is your son taking?
  5. knitty kitty
    @BluegrassCeliac, I'm agreeing. It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together. If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well. If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide...
  6. knitty kitty
    @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm...
  7. knitty kitty
    @Shireen32, Take some deep breaths. Your labs are fine! Your tTg IgA is so low! Well done! Your endomysial IgA is fine. There's not a level on the endomysial test. It's just "yes or no" for if you have celiac disease. No, it's too early to call it refractory. What are you eating? Please tell us more than meat and veg. Do you...
  8. knitty kitty
    Vitamin D deficiency. Not enough Omega Threes. Another autoimmune disease like arthritis, maybe.
  9. knitty kitty
    @Ginger38, Have you had a DNA test for Celiac genes? You don't have to eat gluten with a DNA test.
  10. knitty kitty
    @BluegrassCeliac, welcome to the forum, Hydrochlorothiazide HCTZ and other diuretics are known to cause Thiamine deficiency. Anti-anxiety meds, SSRIs, PPIs and sulfa drugs are known to cause Thiamine deficiency. Thiamine and Magnesium work together. A deficiency in magnesium can hinder how thiamine is utilized. Cytokine Storms are ameliorated...
  11. knitty kitty
    @Celiac16, Have you tried taking Niacinamide, the non-flushing form of Niacin Vitamin B 3? Have you tried non-methylated forms of Cobalamine B12 and Folate B 9? Nausea and vertigo can be helped by Thiamine. Vitamin D helps with vertigo, too.
  12. knitty kitty
    @Vicrob, Have your swallowing issues, speech slurring and chronic cramps/nerve pain/muscle fluctuations improved since starting to take Benfotiamine? Those are all symptoms of Thiamine deficiency disorders. How much Benfotiamine do you take a day?
  13. knitty kitty
    @susiegoldcoast, try starting a reply without quoting previous messages.
  14. knitty kitty
    @Celiac16, Thiamine (any form including Benfotiamine) needs magnesium to make life sustaining enzymes. Taking Thiamine without sufficient magnesium means the body cannot use Thiamine properly. I understand how magnesium can make you feel "knocked out" but that goes away with continued supplementation. When I first started supplementing magnesium...
  15. knitty kitty
    @Moodiefoodie, Sorry you are having such problems. Gluten exposure, illness and vaccinations are situations in which there is a higher demand for Thiamine Vitamin B1. We need more Thiamine when we have an immune response, whether it is caused by a cold or an inoculation to promote an immune response as with vaccines, or upon exposure to...
  16. knitty kitty
    How are you doing, @susiegoldcoast?
  17. knitty kitty
    @Vicrob, There's a connection between increased liver enzymes and Thiamine deficiency. Thiamine deficiency is a result of malabsorption due to Celiac Disease and increased demand during illness. Thiamine deficiency can cause Ataxia. Thiamine deficiency can cause lesions on the brain. Thiamine deficiency can cause neuropathy. Thiamine deficiency...
  18. knitty kitty
    @Celiac16, When the effects wear off, have you tried taking MORE thiamine? Have you tried Allithiamine (Tetrahydrofurfuryl Disulfide TTFD) or Thiamax? Are you taking a magnesium supplement, too?
  19. knitty kitty
    @Celiac16, Fat soluble vitamins are Vitamins A, D, E, and K. There's little risk of toxicity unless one takes supplementing to excessive levels for a long period of time. https://ods.od.nih.gov/factsheets/VitaminA-HealthProfessional/#h17 https://ods.od.nih.gov/factsheets/VitaminD-HealthProfessional/#h36 https://ods.od.nih.gov/factsheets...
  20. knitty kitty
    @lasthope2024, I'm thankful I can help. An Erythrocyte Transketolase test is a better test for Thiamine deficiency than a blood test. The Erythrocyte Transketolase test needs to be taken before starting vitamin supplementation. Otherwise, the vitamins you take will invalidate the results. I take Ecological Formulas Allithiamine (Tetrahydrofurfuryl...
  21. knitty kitty
    Yes, the antibodies cause damage to the intestines, and the brain, and every other organ and tissues in the body. Anti-transglutaminase antibodies (anti tTg IgA on blood tests) are antibodies that attack transglutaminase, a building component in the cell membranes of every cell in the body. The gluten may pass, but the antibodies are what can...
  22. knitty kitty
    Welcome to the forum, @lasthope2024, Blood tests are not reliable measures of vitamin deficiencies. Antibiotics are known to cause Thiamine Vitamin B1 deficiency. Gastrointestinal Beriberi is caused by Thiamine deficiency. "At age 14 I started having constant, chronic abdominal pain and acid reflux (also constipation and reduced...
  23. knitty kitty
    No, you can't add it up that way. Gluten stimulates anti gluten antibodies to be made. Those antibodies are what become cumulative. Ten grams a day for several weeks, gets those antibodies produced in the small intestine to a level where those antibodies get into the bloodstream in a high enough level that they are measurable in the bloodstream....
  24. knitty kitty
    @selectivefocus, Some people with Celiac can develop sensitivity to dairy, not just lactose intolerance, but a reaction to Casein, a protein in dairy that resembles gluten. Cradle cap is frequently a manifestation of eczema brought on by this reaction to Casein. In a reaction, repeated exposure to Casein may be tolerated to a point, but then the body...
  25. knitty kitty
    Yes, gluten free processed foods are not required by law to be enriched or fortified with essential vitamins lots during processing like gluten based processed foods are. Plus gluten free processed foods are made with lots of added sugars, and saturated unhealthy fats which require higher doses of Thiamine to turn into energy for our bodies. Hiding...
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