Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waves of nausea after quitting gluten


susiegoldcoast

Recommended Posts

susiegoldcoast Newbie

Hi Guys,

I quit Gluten a few months ago after being diagnosed Celiac. I feel generally unwell and am experiencing waves of extreme fatigue and nausea, with a feeling of being all revved up inside, like I'm pumping adrenaline; needing to walk and pace around but feel exhausted at the same time...its making me so stressed, I am stuck in my head and don't know what the hell to do with myself. These waves are horrendous, very extreme feeling, like internal panic... not there all the time but are daily. I am also extremely hungry and having to eat every 1.5 hours, if I don't I feel incredibly shaky internally and very nauseous. On waking my body is on high alert, I am using aspirin as I read is an anti inflammatory and seems to settle me a tiny little bit.

I have seen a Chinese doctor as well as a western GP. The Chinese one stated , my liver, gallbladder and kidneys not functioning properly, and to keep eating as I  am, (extremely clean; no processed food at all except gluten-free bread, the rest fruit, veg, meat in soups and broths and lots of chick peas. Chick peas are incredibly stop the nausea ...so eating lots of these. I am wondering if these symptoms could be my body detoxing...or am I missing something else.

Is there anyone out there experiencing similar?? I have been gluten-free for 3 months. Im using Food Grade Hydrogen Peroxide; a form of oxygen therapy, which helps so much with the fatigue.

Thank you 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Welcome to the forum, @susiegoldcoast.

I must suggest quite emphatically that you cease the Hydrogen Peroxide "therapy".  

Taking Hydrogen Peroxide internally is very damaging to the mucosal integrity and tissues of your digestive tract.  

I am attaching scientific studies done with pictures that show the damage.  

Hydrogen peroxide fuels aging, inflammation, cancer metabolism and metastasis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3180186/

Accidental ingestion of 35% hydrogen peroxide.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2658134/

Hydrogen peroxide ingestion with injury to upper gastrointestinal tract

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5648999/

Food Grade Hydrogen Peroxide

https://www.healthline.com/health/food-grade-hydrogen-peroxide#risks

Scott Adams Grand Master

I agree with @knitty kitty and there should be no need for you to do Food Grade Hydrogen Peroxide "therapy" to recover. Just be sure your diet and anything else you consume is 100% gluten-free, and realize that the healing process can take a while.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

knitty kitty Grand Master
(edited)

@susiegoldcoast ,

You are probably suffering from nutritional deficiencies.  Celiac Disease causes inflammation and damage to the small intestine.  This causes poor absorption of essential nutrients.  We need to boost our absorption of vitamins and minerals by taking supplements.  There are eight essential B vitamins, four fat soluble vitamins and many minerals like magnesium, iron, zinc and several trace minerals without which our bodies cannot function properly.  We need to consume sufficient B vitamins every day because our bodies cannot make them and they cannot be stored long.  

Thiamine is Vitamin B 1.  It is the essential vitamin that becomes depleted first.  Every cell in our bodies depends on thiamine to function.  The demand for Thiamine increases when we are physically ill, emotionally traumatized, and when we are physically active outside in hot weather.  

Thiamine is essential in providing our bodies with oxygen.  Along with Cobalamine Vitamin B12 and Pyridoxine B6, Thiamine is mandatory in the process of red blood cells carrying oxygen in a safe controlled manner to every cell in the body.  Insufficient Thiamine can cause "air hunger" (aka sailors' asthma).  Extreme fatigue and nausea are hallmarks of Thiamine insufficiency.  

Thiamine regulates our nervous system and controls those body functions we don't have to consciously think about.  Thiamine insufficiency affects our different body systems.  Thiamine insufficiency can affect digestion resulting in Gastrointestinal Beriberi; breathing, leading to air hunger; and blood pressure changes, when we sit or stand or move around, resulting in Postural Orthostatic Tachycardia Syndrome - POTS.  

Internal organs can be affected by Thiamine insufficiency.  Adrenal glands can over produce or under produce adrenaline, leading to adrenal fatigue.  The gallbladder can have difficulties producing digestive enzymes, resulting in sludge, stones, or infection.  The liver is dependent on Thiamine.  Non Alcoholic Fatty Liver Disease is connected to insufficient Thiamine in the liver.  The kidneys need Thiamine to asbsorb things before urine is excreted.  If kidneys don't have enough thiamine, valuable vitamins and enzymes can be lost in the urine.  Kidney stones may form.  The pancreas can have difficulty producing insulin and digestive enzymes and can result in poor glucose metabolism, high and low blood glucose level swings, and diabetes.  The thiamine insufficient heart can begin to have an irregular heartbeat or can skip a beat, tachycardia.  

Thiamine is also essential to make and clear away neurotransmitters in the brain.  Excess excitatory neurotransmitters that do not get removed because there's not enough thiamine can cause anxiety and panic attacks.  Altered mental status is indicative of Thiamine insufficiency.  The brain uses as much Thiamine just thinking at a sedentary desk job as our muscles would use running a marathon.  Thiamine deficiency can cause a lack of appetite (anorexia) or the opposite, a ravenous appetite.  The brain, prompted by the lack of essential vitamins, orders us to keep eating until vitamins are repleated.  

Thiamine needs the other seven essential B vitamins to work.  They are all interconnected and dependent on each other to function properly.  High doses of Thiamine are needed to correct Thiamine deficiency disorders. Higher doses of the B vitamins have been shown to be beneficial.  The eight B vitamins are water soluble and easily excreted in urine if not required.  

Doctors are not as knowledgeable about nutritional deficiencies as we would wish.  Doctors are trained that vitamins are old fashioned.  Doctors are trained to prescribe pharmaceuticals that cover symptoms rather than treat the root cause of illness, mitochondrial dysfunction caused by Thiamine deficiency.  

A Low Histamine Paleo Diet would be beneficial while you are healing.  High histamine levels can cause anxiety.  Histamine is a useful neurotransmitter that our body can make.  We also get histamine from our foods.  The B vitamins make DAO enzymes that remove histamine from foods, but lowering the amount of high histamine foods in our diet helps, too.  

A Low Histamine Paleo diet removes high histamine foods (aged, fermented and processed foods), but also inflammatory foods, foods that contain lots of Lectins, like those in beans (legumes) and pulses (lentils), and those with glycoalkaloids that promote leaky gut and inflammation like nightshades (tomatoes, potatoes, eggplant, and peppers).  Keep in mind that gluten free breads are not enriched with vitamins and minerals like gluten containing breads and products, and add to the burden of Thiamine deficiency.  Eating a diet high in carbohydrates increases the demand for Thiamine.  Thiamine is needed to turn carbohydrates into energy for our bodies to function.  

Talking to a nutritionist would help you choose a nutrient dense diet.  

Hope this helps.  Please read my blog for excerpts from my journey with malnutrition.  

Edited by knitty kitty
Typo correction
Wheatwacked Veteran
On 2/5/2024 at 8:33 AM, susiegoldcoast said:

Chinese one stated , my liver, gallbladder and kidneys not functioning properly,

In addition to Thiamine you should increase Choline.  Liver, eggs, beef or increase intake with Lecithin, Choline or Phoshptidly Choline supliments.  

 

On 2/5/2024 at 8:33 AM, susiegoldcoast said:

I am using aspirin

I went through a lot of Original Alka Selzer.  It is aspirin, (Acetylsalicylic Acid) for inflammation and bicarbonate to calm the stomach.  Salicylic acid used to be vitamin B11.  People used willow bark tea until Bayer marketed aspirin from research into willow.

On 2/5/2024 at 8:33 AM, susiegoldcoast said:

helps so much with the fatigue.

Vitamin D, Iodine.

5. Additional likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 650 mcg a day,  Thiamine, Choline, and Iodine.
10,000 IU vitamin D to control autoimmune, improve mood, especially the winter doldrums (Seasonal Affective Disorder), bone and dental health.   Vitamin D Is Not as Toxic as Was Once Thought: A Historical and an Up-to-Date Perspective
500 mg Thiamine - neurologic symptoms, carbohydrate metabolism, subclinical beri-beri.
Choline – Adequate intake 500 to 3000 mg - essential for fat digestion, gall bladder, liver, brain fog, cell membranes, prevent congenital spinal defects.   Could we be overlooking a potential choline crisis in the United Kingdom?
Iodine –  650 mcg of Liquid Iodine once or twice a day.  United States RDA 150 to 1100 microgram (mcg) Japan RDA 150 to 3000 mcg. speeds up healing, muscle tone, brain fog, hair and skin, thyroid. 4 -12 drops a day depenting on brand of Liquid Iodine. Nori and Kelp. For some people with Dermetitis Herpetiformus, iodine can exasperate the rash.
Iodine for Hormonal Health "Your ovaries also need iodine and without enough their structure changes. Iodine-deficient women can produce ovarian cysts and are at risk of developing PCOS."
Vitamin B2  100 mg a day. helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply. 
500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol.  Niacin Fact Sheet for Health Professionals
500 mg Pantothenic Acid - creates energy from glucose Krebs Cycle
1000 mcg B12 - creates hemoglobin for oxygen transport
500 mg Taurine - essential amino acid, a powerful antioxident that we make indogenously, but not enough when sickness increases inflammation. reduces Reactive Oxygen Species (ROS are are free radicals.).
I've been using Zinc Glyconate (Cold-Eeze) since 2004 anytime I feel an itchy throat or other sign of air borne virus coming on.  I haven't had cold or flue, including Covid 19, since. 
Naturally fermented dill pickles reestablished lactobacillus in my gut and reversed my recently acquired lactose intolerance.  100% grass fed dairy is less inflammatory. Milk is a good source of iodine.
Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation while increasing vitamin and mineral intake..  The target omega 6:3 ratio is less than 3:1.  The typical western diet is from 14:1 to 20:1 because of our food choices.

 

 

  • 2 months later...
knitty kitty Grand Master

How are you doing, @susiegoldcoast?

knitty kitty Grand Master

@susiegoldcoast, try starting a reply without quoting previous messages.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    2. - trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    3. - Nikki03 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    4. - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    5. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,768
    • Most Online (within 30 mins)
      7,748

    Sharon Bing
    Newest Member
    Sharon Bing
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • fritz2
      So what relieves the joint pain?
    • trents
      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw test scores without reference ranges are not necessarily helpful as different labs used different reference ranges. Here is an article that describes the various antibody tests that can be ordered when checking for celiac disease: As you can see, there are IGA tests and there are IGG tests. What are your symptoms? There is another gluten disorder known as Non Celiac Gluten Sensitivity (NCGS) that shares many GI symptoms with celiac disease and is 10x more common than celiac disease. There are no tests for NCGS so celiac disease must first be ruled out by formal testing.
    • Nikki03
      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200 symptoms on a growing list. And many of them present as non-GI related.
    • fritz2
      Well, as much pain as gluten has caused in the past, there's no way in hell I'm taking gluten on purpose.  What is NCGS?  And are there any remedies to quickly get over the swollen joints? My joints are swollen and hot to the touch and hurt.  For about two weeks they were too painful to even think about using them.  Six weeks later, I still can barely use my hands.  I struggle to get a bottle cap unscrewed they hurt so badly.  Edema in my legs and the knees hurt to walk.  And that was probably a minor exposure as the wheat was listed towards the end of the "contains" list in very fine print we couldn't read without a magnifying glass.
×
×
  • Create New...