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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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@Always-Hungry-Kate, I referred to one of your previous posts in which you said you had been consuming drinks like Ensure and Boost. These drinks certainly do contain added vitamins and minerals which could have contributed to your high levels of B 6 and carotene. Blood tests for vitamin levels are not accurate measurements of the amount of vitamins...
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Bone health, Osteoporosis and Vitamins
knitty kitty posted a blog entry in Thiamine Thiamine Thiamine
Interesting Reading about vitamins needed for bone health Nutritional Aspects of Bone Health and Fracture Healing https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5804294/ And... There is a significantly inverse relationship between dietary riboflavin intake and prevalence of osteoporosis in women but not in men: Results from the TCLSIH... -
@Always-Hungry-Kate, I referred to one of your previous posts in which you said you had been consuming drinks like Ensure and Boost. These drinks certainly do contain added vitamins and minerals which could have contributed to your high levels of B 6 and carotene. Blood tests for vitamin levels are not accurate measurements of the amount of vitamins...
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Questions about Test Results
knitty kitty replied to KGB1819's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm familiar with Dry Eye Disease and Sjogren's Syndrome. I've found correcting nutritional deficiencies and changing to a Paleo diet has improved symptoms. Changing ones diet changes the kinds of bacteria that live in the intestines. A Paleo diet allows for beneficial bacteria to become more dominant. The bad carbohydrate-loving bacteria that promote... -
Recovery from stomach bug with Celiac
knitty kitty replied to Msteele's topic in Related Issues & Disorders
@Msteele, Whether your daughter is fighting Covid or another bug, vitamins like Thiamine B 1, Vitamin C and Vitamin D helps us fight infections. Vitamin D helps regulate the immune system when the level is greater than 32 ng/mL (80 nmol/L). Thiamine in the form called Benfotiamine has been shown to improve gastrointestinal symptoms. Patients... -
Coeliac as a teenager
knitty kitty replied to emma1semrad's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Happy to help! Do look into the Autoimmune Protocol Diet (AIP diet) and choose low histamine foods. During immune reactions and autoimmune reactions, our body makes and releases histamine. Histamine causes inflammation which helps fight off antigens like gluten or pollen. Histamine is also found in foods. High histamine foods include... -
Coeliac as a teenager
knitty kitty replied to emma1semrad's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@emma1semrad, Thought of another article that might be interesting to you. It's about female athletes and Thiamine improving their performance. The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/ -
Could the itching be due to Histamine Intolerance? Histamine Intolerance—A Kind of Pseudoallergic Reaction https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8945898/ Evidence for histamine release in chronic inducible urticaria – A systematic review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9365951/ A Histamine-Free Diet Is Helpful for...
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Feeling of food getting stuck
knitty kitty replied to HayleighNoWhey's topic in Related Issues & Disorders
People with Celiac Disease have a higher rate of Eosinophilic Esophagitis than those in the general population. Eosinophilic esophagitis associated with celiac disease in children http://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/ Changing the diet by cutting out sugar can help improve Eosinophilic Esophagitis... -
Newhike- Sharing My Experience
knitty kitty replied to Newhike's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Newhike, Thyroid problems are common in Celiac Disease. There's a genetic overlap. Nutritional insufficiency (vitamin and mineral deficiencies) found in Celiac Disease can contribute to other autoimmune diseases. Celiac Disease causes poor absorption of essential vitamins and minerals. Correction of nutritional insufficiency is very important in... -
I developed vitamin and mineral deficiencies before my diagnosis. Thiamine deficiency made me have a voracious appetite at some times and at other times, I had no appetite at all. Thiamine affects the satiety center in the brain that tells you to eat more or you've had enough. Thiamine deficiency also causes nausea. I would wake up ravenous...
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Always Hungry?
knitty kitty replied to AshleyDawn91's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I developed vitamin and mineral deficiencies before my diagnosis. Thiamine deficiency made me have a voracious appetite at some times and at other times, I had no appetite at all. Thiamine affects the satiety center in the brain that tells you to eat more or you've had enough. Thiamine deficiency also causes nausea. I would wake up ravenous... -
Low libido due to coeliac?
knitty kitty replied to ReluctantlyGlutenFree's topic in Related Issues & Disorders
@ReluctantlyGlutenFree, I used high doses to correct my Vitamin D deficiency. I felt much better quickly. Vitamin D deficiency does affect your mood. I was struggling with depression, menstrual problems, and feeling off, but those resolved after getting and keeping my Vitamin D level above 80 nmol/L. Vitamin D is a fat based vitamin. Celiac... -
Low libido due to coeliac?
knitty kitty replied to ReluctantlyGlutenFree's topic in Related Issues & Disorders
Oh, @Scott Adams, I apologize. I had a bit of a visceral reaction due to my own icky experience. It's so much easier to correct a Vitamin D deficiency or insufficiency and look for resolution of symptoms before undergoing HRT. Many doctors, including gynecologists, are clueless about Vitamin D and how nutritional deficiencies can wreak havoc... -
Feeling of food getting stuck
knitty kitty replied to HayleighNoWhey's topic in Related Issues & Disorders
Thiamine has beneficial health effects when taken in high doses. It sort of "kick starts" the body's metabolism into functioning properly. It's truly amazing, the difference. Doses as low as 300 mg/day to as high as 2500 mg/day have been used to correct deficiencies and attenuate disease. See which level works for you. Our bodies can have difficulty... -
BP meds
knitty kitty replied to Dr. K's topic in Gluten-Free Foods, Products, Shopping & Medications
@jbrguy, Have you been checked for nutritional deficiencies? Many newly diagnosed Celiacs suffer from vitamin and mineral deficiencies, especially the eight B vitamins, Vitamin D and magnesium. The B vitamins like thiamine are water soluble and easily excreted if not needed. Thiamine B 1 has been shown to lower blood pressure. Interesting Reading... -
Feeling of food getting stuck
knitty kitty replied to HayleighNoWhey's topic in Related Issues & Disorders
Hi, @Elizabeth M Blair, How much Thiamine are you taking? What form is it in? Have you tried increasing your Thiamine dose and looking for improvement? -
Low libido due to coeliac?
knitty kitty replied to ReluctantlyGlutenFree's topic in Related Issues & Disorders
But, @Scott Adams, she's way too young (32) for menopause! Vitamin D deficiency can cause low libido. Vitamin D acts like a hormone when levels are above 80 nmol/L. Vitamin D helps regulate the immune system, reducing inflammation, and also contributes to making estrogen, and testosterone (yes, women need testosterone, too). Zinc also helps with... -
I'm so glad to hear your neuropathy is improving! Dental visits are a huge stress! Thiamine helps with headaches. A combination of Thiamine, Cobalamine and Pyridoxine B6 work to relieve pain as well! You may feel worse before feeling better.... it's like starting an automobile that hasn't been cranked for a while, a couple of backfires to...
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Newhike- Sharing My Experience
knitty kitty replied to Newhike's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Newhike, Hope you don't mind, but I helped you start your own post. Welcome to the forum! -
Yes, there's a link between vaccines and ataxia/neuropathy. Vaccines put a demand on the immune system. The immune system has to work hard to produce antibodies against whatever disease is in the vaccine. If the body is already low in Thiamine, the immune response caused by vaccinations can precipitate a thiamine deficiency. We need more Thiamine...
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Feeling of food getting stuck
knitty kitty replied to HayleighNoWhey's topic in Related Issues & Disorders
@trents, @HayleighNoWhey has been diagnosed with Celiac Disease by endoscopy. She mentioned it in a previous post. -
You are very welcome. Yes, doctors don't treat the body as a whole. Thiamine deficiency affects many body systems, many organs, but the body needs to be looked as as a whole, not just isolated parts. Yes, thiamine deficiency can affect the eyes and causes vision problems, blurry vision, and optic nerve damage. I had vision problems, too. ...
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@Vicrob, Have you been tested for a thiamine deficiency? I have two genes for Celiac Disease. I developed vitamin and mineral deficiencies because Celiac Disease damages the small intestine so that these nutrients cannot be absorbed. I have had thiamine deficiency. I had ataxia from Thiamine deficiency. I also get gluten ataxia if exposed...