knitty kitty
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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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@Matt13, A lot of newbies simply change out their gluten containing foods for gluten free versions. Gluten free facsimile foods are not required to be enriched or fortified with vitamins and minerals like gluten containing products. So, you need to buy your own vitamins and minerals now. IBS, as well as Celiac Disease, can affect absorption...
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How are you doing, @Matt13?
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@lesley bailey, welcome to the forum! Many people diagnosed with IBS can actually be misdiagnosed Celiac patients. I was told I had IBS more than a decade before my Celiac diagnosis. Have you had any specific tests for Celiac Disease? DNA test, endoscopy and biopsy, or antibody testing? Testing for Celiac Disease should be done before you remove gluten...
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@Jessica K., Keep your daughter on gluten until the endoscopy is done. Having an endoscopy now will give a baseline if, heaven forbid, she should have problems in future. Try removing dairy from her diet to ease symptoms. Half of all Celiacs react to dairy as though it were gluten due to molecular mimicry (casein, the protein in dairy, resembles...
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@Matt13, hello, Thought I would share some studies that might be of interest to you. Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/ And... Seronegative Celiac Disease - A Challenging Case https...
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Here's some interesting reading... Thiamine deficiency disorders: a clinical perspective https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Role of Vitamins and Minerals in Psychiatry https://www.ncbi.nlm.nih.gov/pmc...
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Hello, @LabLynnie, I used to have terrible frequent migraines, but since correcting nutritional deficiencies caused by Celiac Disease, I rarely get them anymore. I had tried the gamut of pharmaceuticals without any of them working. I'd much rather take vitamins that our bodies need to function properly than take medications that don't work. I...
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Hello, @badastronaut, I am seronegative on blood tests, but I have two genes for Celiac Disease. With positive DNA and improvement on a gluten free diet, I finally had a diagnosis. Diabetes, anemia and Thiamine deficiency disorders can cause seronegative blood test results. I had all of these, but only one is necessary to cause seronegative...
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Did You Miss the Gluten-Free Fireworks This Past Fourth of July?
knitty kitty commented on Jefferson Adams's article in Additional Concerns
@Bluesybirdie, So sorry to hear of your sad experience with fireworks. Fireworks also contain some irritating chemicals that can have deleterious effects on health. Fireworks release Sulfites and Sulfites, as well as Nitrous Oxide. Sulfites can destroy Thiamine and cause allergic reactions, including swollen eyes, respiratory problems,... -
Milk of magnesium is not absorbed well. Instead it pulls water into the digestive system which relieves constipation temporarily. Magnesium Glycinate is absorbed better and with Thiamine helps muscles in the digestive system function properly. Constipation is a symptom of Thiamine deficiency. You may have Candida overgrowth or SIBO. These happen...
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Bovine Colostrum
knitty kitty replied to Charliexxx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Happy Holidays, @Charliexxx, About half of the people with Celiac Disease also react to Casein, the protein in dairy, as though it were gluten. Some Celiacs cannot produce lactase, the enzyme that breaks down lactose, the sugar in dairy. Usually the tips of the villi in the small intestine produce the enzyme lactase, but damaged and blunted villi... -
Happy Holidays, @Beverley Ann Johnson, Sorry to hear about your trip to the ER. Were you having tachycardia? How long have you been vomiting? Just that day or weeks? Were you glutened? What are you currently eating? How long have you been "mostly fasting"? Are you taking any nutritional supplements, vitamins and minerals? Yes, the...
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Vitamin B12 and Vitamin D are the only two vitamins capable of being stored in the liver for a couple of years. The rest of the B vitamins and Vitamin C cannot be stored for longer than a few weeks at most. We need to replace them every day. The malabsorption that occurs in Celiac Disease is due to damage to the villi in the small intestine....
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@Linda68, Welcome to the forum! That article sounds interesting. Can you post a link? Were you checked for nutritional deficiencies when you were diagnosed for Celiac Disease? Do you currently take any nutritional supplements, vitamins, and minerals? Celiac Disease is often precipitated by an infection or a vaccination which depletes...
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Welcome, Melissa, It's really important with Celiac Disease to make sure your body is getting plenty of essential vitamins and minerals. I understand what you are going through. I developed severe nutritional deficiencies, too. The vitamin that runs out first is Vitamin B 1 Thiamine. Thiamine deficiency can cause problems with the...
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Welcome to the forum, @AlyssaM! Celiac Disease is an autoimmune reaction to gluten meaning that when we are exposed to gluten, our bodies produce antibodies which attack gluten. Unfortunately, some of our own cells resemble segments of gluten and our antibodies attack them, too. So our bodies attack gluten, and there's collateral damage to our own...
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High histamine levels can produce all those symptoms. So can nutritional deficiencies. Have you tried a low histamine diet? Nuts are high histamine. Migraines can be a symptom of Thiamine deficiency and high histamine. Are you keeping a food journal to help you track which foods cause digestive problems? Helpful Reading... Histamine...
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Meat, and fish are great sources of the eight essential B vitamins, fat soluble vitamins and minerals. Including more meat in ones diet provides these nutrients and also proteins that our bodies use for repair and maintenance. I found a Paleo diet called the Autoimmune Protocol Diet very helpful. It excludes gut irritating plant lectins found in...
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Okay, thanks for answering my questions. Yes, many of us here get misdiagnosed for ten years or more before we are correctly diagnosed. Were you losing weight because you were not eating or because you had digestive problems? What have you been eating? Are you vegetarian?
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Welcome to the forum, @Dianna Frances! Lactaid is used in lactose intolerance which is different from a dairy allergy. Some people have lactose intolerance because they lose the ability to produce the enzyme lactase which digests lactose (the sugar in dairy). Lactaid has the digestive enzyme lactase added to it. In dairy allergy, there...
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Other Disorders Caused By Gluten as a Coeliac
knitty kitty replied to Rhowarth's topic in Related Issues & Disorders
@Rhowarth, Welcome to the forum! Many have struggled with falling off the wagon. We'll give you a hand back up. You'll be alright. I found I was falling off the wagon because I was deficient in vitamins and minerals and my brain was craving the foods containing those nutrients. The damage done to the small intestine prevents us from absorbing... -
Hello, No, one serving of gluten something isn't going to be enough to provoke enteropathy. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune...
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Bloods positive, no symptoms
knitty kitty replied to OhDeer's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've found high dose Thiamine (500 mg thiamine hydrochloride) and magnesium glycinate would improve my migraines and lessen their frequency. Then I found Allithiamine (TTFD -Tetrahydrofurfuryl disulfide), which can cross the blood brain barrier by itself, and magnesium threonate, which can also cross the blood brain barrier, have prevented most migraines... -
Test results help
knitty kitty replied to awright24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@awright24, Mouth ulcers can be caused by a deficiency in Vitamin B12 Cobalamine. Most newly (almost) diagnosed Celiac people have deficiencies in vitamins and minerals which should be corrected. Many doctors don't recognize deficiency symptoms. While blood tests aren't accurate for vitamin deficiencies, supplementing with the eight essential... -
Hello, @Ckluwho and @Jeff Platt, Diarrhea can be caused by an insufficiency of Thiamine. I had diarrhea constantly until I corrected my Thiamine deficiency. I took high dose Benfotiamine which has been shown to promote healing in the digestive tract. Nutritional deficiencies are common in Celiac Disease. Many doctors don't recognize vitamin...
