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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by knitty kitty
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Have you been checked for nutritional deficiencies? Are you taking any vitamin supplements? Malabsorption due to Celiac Disease is commonly unaddressed. We are frequently low in the eight essential B vitamins which we must get from foods or supplementation because our bodies cannot make them. Supplementing with the B Complex vitamins and additional...
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I looked at the ingredients. It contains Inositol as a source of Niacin B 3. Inositol is not absorbed well by our bodies (only about 30%). Once absorbed, our bodies have to break it apart in order to use the niacin it contains. Our bodies can make Inositol from Niacin. Niacin causes flushing, a harmless reaction which will fade with continued usage...
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Some people are undiagnosed and have few symptoms until they are in their fifties or later. A Celiac Diagnosis can take several years as doctors frequently make the misdiagnosis of IBS. Celiac Disease can also affect other organs of the body, like the thyroid, pancreas, and gallbladder. Do you have any other concurrent autoimmune diseases?
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A colonoscopy looks at the colon, at the bottom end of your digestive tract. There's no villi in your colon. An endoscopy looks at the top of your digestive tract, including the esophagus, the stomach and part of the small intestine. The villi grow in the small intestine. It's these villi that are eroded away in Celiac Disease. Celiac people have...
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There are eight B vitamins. They all work together. Our bodies cannot make them so it is essential we get them from our diet. Taking just one of the B vitamins can throw the others off. For example, if you take just B12, you can be using up all your Folate B 9. Without Folate, Pyridoxine can't work. Without Pyridoxine and Folate, Riboflavin...
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@Aaron2018, Are you taking any nutritional supplements? Have you been checked for nutritional deficiencies? Deficiencies in many of the eight essential B vitamins can cause neuropathy which can feel like an itchy place. Thiamine, Niacin, Pyridoxine and Cobalamine can all contribute to neuropathy. I have had vitamin deficiencies that resulted...
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Non Celiac Gluten Sensitivity
knitty kitty replied to drwyrick's topic in Related Issues & Disorders
Hi, how are you doing? Were you had a genetic test to look for the known Celiac genes? There are some Celiac people who are seronegative in blood tests. I'm one. Diabetes, anemia and Thiamine deficiency can cause false negatives on tTg IgA tests. I have two Celiac genes, but only one is needed for potential Celiac to develop. Nightshades contain... -
Hi, @Sallymarie, Have you tried lowering the amount of Iodine in your diet? Iodine makes the antibodies in the skin lots more active. I have cut out foods high in Iodine, like eggs, dairy, and seafood (crustaceans and kelp) and my DH has subsided. Niacin Vitamin B 3 also helps reduce the inflammation and promote healing in the skin. Other...
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Having the genes for Celiac Disease means a person has the potential to develop Celiac Disease. The genes have to be triggered and turned on by an event, commonly an infection with a virus, a traumatic injury, a stressful life event. Starting a gluten free diet in children and adults with the Celiac genes, but not active Celiac Disease, is beneficial...
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Welcome to the forum, @Llana! Question 1: Iron supplementation... Iron is better absorbed if taken separately, away from food and other supplements and medications that can interfere with iron absorption. I take my iron before bedtime, at least couple of hours after any food. Vitamin C does help with iron absorption. Vitamin C can make...
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Welcome to the forum! There are some brand names that I have taken that are gluten free... Doctor's Best, Now, Nature Made. Just be sure to double check the label. I take my Magnesium Glycinate with Tryptophan (a form of Niacin that helps make serotonin, the feel-good neurotransmitter). Theanine, found in chocolate and Oolong...
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Having a really hard time adjusting
knitty kitty replied to Natalie14's topic in Coping with Celiac Disease
Welcome, @Natalie14! Because Celiac Disease is passed on genetically, your parents and siblings (first degree relatives) should be tested for Celiac Disease before going gluten free. Celiac Disease has over three hundred various symptoms. They may attribute health problems, if any, to other factors like stress or to another health condition.... -
Creatinine/BUN Ratio?
knitty kitty replied to xRavenHeartx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@xRavenHeartx, What are some of your many other symptoms? -
Advice please before I see dr again
knitty kitty replied to ItchDrivingMeCrazy's topic in Dermatitis Herpetiformis
@ItchDrivingMeCrazy, Yes, looks like more than one thing going on, DH and Vitamin C deficiency (Scurvy). The nonstop itching could be peripheral neuropathy from deficiencies in the B Complex vitamins, especially B12 Cobalamine. I had lots of vitamin deficiencies and DH going on, but I remember the itching never stopped and the bruising... -
8 year old suffering with dizziness and back pain
knitty kitty replied to CatCann's topic in Related Issues & Disorders
I was wondering what tests were run. -
Hi, @alexsb01, How are you doing? Are you feeling better? You want to take Tryptophan. Not Glutamine. Glutamine gets turned into Glutamate, a neurotransmitter that excites not just in the brain, but also in the intestines. Tryptophan gets turned into Serotonin, the neurotransmitter that helps regulate mood (happy, agreeable), and...
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8 year old suffering with dizziness and back pain
knitty kitty replied to CatCann's topic in Related Issues & Disorders
Hi, @eekunique! Wow! How did you get diagnosed with that?!? Thiamine works with Niacin in the energy production cycle. In CeD, a person is usually low across the board in the eight essential B vitamins. Thiamine insufficiency appears first since our bodies use so much daily, especially when we're sick, emotionally stressed and physically active... -
Celiac with low iron
knitty kitty replied to Peggy M's topic in Gluten-Free Foods, Products, Shopping & Medications
@Peggy M, If you've been taking a B100 Complex in the eight to twelve weeks before having your B12 and B 1 tested, your blood tests would be picking up on the vitamins circulating in your bloodstream before being absorbed. These would be inaccurate measurements. You can have a subclinical thiamine insufficiency before it is reflected in the blood... -
@emoxon, I understand how doctors can blame the patient when they, the doctors, are out of answers. I was told it was all in my head when I had severe nutritional deficiencies with undiagnosed CeD. My blog has more details. Can you get a genetic test to look for the most common Celiac genes? Some people have the genes, but they...
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8 year old suffering with dizziness and back pain
knitty kitty replied to CatCann's topic in Related Issues & Disorders
@CatCann, Yes, it is like poison. Whatever happened to the Hippocratic oath "first do no harm"? It's frustrating for sure. Studies are being done to find other markers for Celiac. IL-2 has been identified as a potential marker, as it says in this article... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader Has your daughter...