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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Have you been checked for nutritional deficiencies? Are you taking any vitamins? Minerals? Our bodies cannot heal until we provide the proper vitamins. Have you tried Benfotiamine? It's a form of Thiamine Vitamin B 1 that promotes intestinal healing. Tryptophan, a form of Niacin B 3, is also beneficial in healing the intestines...
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@camercla, Welcome to the forum! Have you been checked for nutritional deficiencies? These can occur on gluten free diets and due to the damage done to our small intestines (where our nutrients are absorbed) by elevated antibodies. Vitamin D helps regulate the immune system when blood levels are above 80 nmol/L. Vitamin D deficiency is linked...
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This article refutes the article in the post left by @Russ H. Can we ignore the utility of deamidated gliadin peptide in the diagnosis of celiac disease in children? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6697416/ And another article about the value of the DGP IgG test... Diagnostic accuracy of anti-DGP (IgG) for celiac disease ...
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Fear and burden of disease
knitty kitty replied to Kurlykaitlyn's topic in Coping with Celiac Disease
Hey, @Kurlykaitlyn! How are you doing? Did the diarrhea resolve? I find dates are great sources of water soluble fiber that is great for bulking up stools in a gentle way. How are you preparing for your husband's trip? Having hobbies and projects to work on helps me get through trying times. I highly recommend knitting and embroidery. Keeping... -
Feels like I'm reacting to everything?
knitty kitty replied to EmptyJars99's topic in Food Intolerance & Leaky Gut
@EmptyJars99, I think you would be wise to revisit what @Wheatwacked said about Oral Allergy Syndrome. Allergy to birch pollen can trigger oral allergy reactions to plants with similar pollen like potatoes, celery, walnuts and pecans. Oral Allergy Syndrome symptoms include hives and other skin reactions after eating a provocative food. See Table One... -
Yes, I avoid foods with the "may contain" warning on it. Getting glutened causes anxiety in me, too. Part of the autoimmune response is the release of histamine. High levels of histamine in the brain causes anxiety. I find taking Vitamin C, B 12 Cobalamine, and B6 Pyridoxine helps reduce histamine levels. Our bodies need Thiamine and the...
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Tissue transglutaminase is an enzyme used in the body by cells for growth and repair and is found on cell surfaces as well as inside cells. Anti-tissue transglutaminase antibodies (immunoglobulins like IgA and IgG) attack the tissue transglutaminase enzymes on cell surfaces. Segments of gluten and casein can resemble segments of tissue transglutaminase...
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If Total serum IgA is deficient (as sometimes is with anemia), the tTg IgA test may register a false negative. However, there is another test, the tTg IgG that is used. IgG and IgA are different types of Immunoglobulins. Both types are present in Celiac Disease. Perhaps you have the results of the tTg IgG test, with the tTg IgA test...
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Please help, mass in the abdomen
knitty kitty replied to Ruby89's topic in Related Issues & Disorders
@Tanja Kocaleva, I'm so sorry you are going through this. I believe you may have a deficiency in Thiamine Vitamin B 1. I've had Thiamine deficiency after pregnancy and breast feeding. Your symptoms sound very familiar. Thiamine is a vitamin, an essential amino acid that we cannot make in our bodies, and so must get from our diets... -
monosaccharides, oligosaccharides, polyols
knitty kitty replied to Gidget50's topic in Related Issues & Disorders
@Gidget50, Monosaccharides, oligosaccharides, and polyols are naturally occurring sugars to be limited on the FODMAP diet. These can cause bloating and gastrointestinal problems. Food manufacturers sometimes adds additional oligosaccharides as preservatives, and texture and flavor enhancers. The easiest way to avoid these would be to avoid... -
Confusion about testing
knitty kitty replied to SammyProd's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @SammyProd, Anemia can affect tTg testing, causing false negatives. Hemolysis and IgA‐antibodies against tissue transglutaminase: When are antibody test results no longer reliable? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6816937/ You would be better off getting genetic testing to see if you have any of the c... -
@jaggirl47, My heart breaks for you. You were right all along. Things will get better now. Look into the Autoimmune Paleo Diet. It really helped me recover. The Paleo Approach by Dr. Sarah Ballantyne is a very helpful book. Dr. Ballantyne, a Celiac herself, designed the diet for herself and her Celiac children. It's been studied and shown...
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Yes. Here's an article from the National Institute of Health.... Hemolysis and IgA‐antibodies against tissue transglutaminase: When are antibody test results no longer reliable? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6816937/ And another type of anemia... Celiac Disease With Autoimmune Hemolytic Anemia and Autoimmune Hepatitis i...
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Those are definitely Celiac genes and with improvement on a gluten free diet, I'd say that's a Celiac diagnosis. It's how I was finally diagnosed. Anemia or Diabetes can cause false negatives on blood tests for Celiac. I have Type Two Diabetes. Correcting nutritional deficiencies was a beneficial step for me. I was low in Vitamin D, and the...
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Fever From Gluten?
knitty kitty replied to tannilisa's topic in Parents, Friends and Loved Ones of Celiacs
Welcome to the forum, @Monica Guzman! Yes, it is possible to have Crohn's and Celiac Disease together. We have several members who do. I get fevers if I get exposed to gluten. I also get fevers if exposed to dairy. About half of Celiacs react to dairy the same as gluten because dairy molecules resemble gluten molecules. Ask your doctor... -
Welcome to the forum, @Gidget50 It's a good idea to avoid oats for a while after diagnosis. Sensitivity to other foods can develop while your body is still so inflamed. Cutting out dairy is helpful, too. Some Celiacs have a reaction to Casein (a protein in dairy) the same as to gluten. Others develop lactose intolerance. Lactose is the sugar in...
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Welcome to the forum, @lydialoo! Ask your doctor to check for vitamin and mineral deficiencies as part of proper follow up care for Celiacs. Ask for a referral to a nutritionist or dietician who can point you towards a nutrient dense diet. Most newly diagnosed Celiacs are deficient in B Complex vitamins, Vitamin D and minerals like iron, zinc...
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Glutened by New Bedding?
knitty kitty replied to StrongerThanCeliac's topic in Super Sensitive People
https://www.thehouseofpillows.eu/polyester-shouldnt-be-in-your-bed-blog/ Wheat starch and vegetable based starches are usually used on natural fibers like cotton because these starches don't stick to polyester. -
Glutened by New Bedding?
knitty kitty replied to StrongerThanCeliac's topic in Super Sensitive People
https://pubmed.ncbi.nlm.nih.gov/31706747/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8904271/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9748405/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6133113/ If you've slept on sheets before without washing them and nothing, why would you want to blame the sheets for your reaction now... -
Glutened by New Bedding?
knitty kitty replied to StrongerThanCeliac's topic in Super Sensitive People
No, your new polyester sheets have not been doused with gluten. Polyester fabrics are made from petrochemicals and have more petrochemicals used on them to get the correct texture, and prevent wrinkles, and sizing chemicals so the fabric stays in the right shape. Some petrochemicals are used to make plastic disposable food containers like those... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
@Jeanette P, Welcome to the forum! Please look into nutritional deficiencies which commonly occur in Celiac Disease. Your reaction to salt in your diet may signal insufficiencies in potassium, magnesium, and calcium. These minerals along with sodium work together in muscles and nerves. If not balanced, an insufficiency in any of these minerals... -
Iron Supplements
knitty kitty replied to Raquel2021's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
More than iron supplements are needed to correct iron deficiency anemia. Cobalamine B12 is needed, as is Folate B9. Also Riboflavin B2. And Pyridoxine B6. And Niacin B3 and Thiamine B1 are needed to provide energy for the production of red blood cells and iron absorption. Here's some helpful reading... https://www.nhsinform.scot/illnesses... -
Dole Bananas
knitty kitty replied to StrongerThanCeliac's topic in Gluten-Free Foods, Products, Shopping & Medications
Yet another scientist chiming in. Again. Fructose malabsorption can happen in Celiac Disease and other gastrointestinal disorders. Fructose malabsorption symptoms include gastrointestinal symptoms as well as skin rashes and worsen asthma. Bananas as they ripen contain increasingly more fructose. Since banana bread is made with ripe or...