knitty kitty
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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@Phyllis Stempinski, Welcome to the forum! Yes, do follow up with your internist and nutritionist. Checking for nutritional deficiencies is part of proper follow up care for Celiac people. It's unusual to be deficient in just one vitamin. Usually Celiacs have poor absorption of the eight essential B vitamins and minerals like magnesium and...
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Celiac, NCGS, or allergy?
knitty kitty replied to Emmy208's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emmy208, NCGS is not genetic. NCGS doesn't run in families. Celiac Disease is genetic and runs in families. Do get the genetic test! Do get your Vitamin D level checked. Low Vitamin D level can affect your thyroid, as can low B 12 level. You can have Vitamin B 12 deficiency symptoms before your blood levels show an outright deficiency... -
Welcome, @Oregon Country Girl! Cattle fed grain are usually in a feed lot with lots of other cattle. Crowded conditions can raise stress levels in the animals causing a release of histamine. Same with grain fed chickens, they're probably couped up. Grass fed, pasture, is much better for animals. They are more relaxed, less stress, less histamine...
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Elevated ALT enzymes
knitty kitty replied to Parish's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome, @Parish! Muscle cramping can be caused by magnesium deficiency and deficiencies in some B vitamins like thiamine and niacin, and calcium. Nutritional deficiencies can occur in anyone, but especially in malabsorption disorders like Celiac Disease. Getting checked for nutritional deficiencies beyond Vitamins D and B12 is part of proper... -
Over methylated symptoms sound like other vitamin deficiencies may be incurred when the methylated forms of B12 and methylfolate deplete other B vitamins necessary in different processes. I found this article very interesting. It discusses thiamine tetrahydrofurfuryl disulfide and methylation, and how thiamine supplementation can reveal a methylation...
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Dr. Derrick Lonsdale, published on NIH, has done much research on mitochondria and thiamine. He and Dr. Chandler Marrs have interesting articles on Dr. Marrs' website. https://www.hormonesmatter.com/mitochondria-need-nutrients/
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Yes, the MTHFR genetic mutation is common with Celiac Disease. Methylated forms of vitamins are the activated forms of some of the B vitamins. Methylfolate, methyl Cobalamine, P5P form of Pyridoxine. The activated forms of these vitamins are ready for the body to use. Definitely MTHFR mutation can affect mitochondrial health. https:/...
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Sluggish DNA? Hmmm, sluggish DNA makes me think of mitochondria because they are busy replicating DNA. Mitochondria don't work well when there's a deficiency in Thiamine Vitamin B 1. Without sufficient thiamine, the mitochondria can become dysfunctional. A person can roll along with subclinical vitamin deficiencies. Symptoms can wax and wane...
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Nutritional deficiencies can develop over years even if gluten free. Genetic testing would allow you to tell if you have any Celiac genes. If not, you would know to look for something else.
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I'm glad you're off the lansoprazole. Acid reflux (Gerd) is really caused by low stomach acid (hypochlorhydria). So taking a proton pump inhibitor that suppresses stomach acid secretion makes things worse. Plus PPI's can make intestinal damage worse. Low Niacin Vitamin B3 can cause hypochlorhydria. (Niacinamide is the nonflushing form of Niacin...
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The tTg IgA is usually the go-to test for Celiac Disease. Some members have negative tTg IgA but positive DGP IgG. Some medications have been found to suppress the immune system, affecting the production of tTg IgA. Labs use different scales, so you would need to give the parameters of the test results (what is considered normal, what's high...
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Could have been that salsa. Could take a few days for things to settle down. Do you have any oolong tea? It's very soothing to irritated intestines. Oolong tea has the amino acid L-Theanine which helps increase serotonin and dopamine, the feel good neurotransmitters. Are you taking a B Complex? B12 is just one of eight essential B vitamins...
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Curiouser and curiouser... Thanks for answering. How frequently did you take the PPI's? Were you taking them around the time of previous tests?
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Do you have diabetes or anemia?
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@May2000, Have you been on antibiotics, PPI's, or antidepressants? Any prescription medications? We've had several new members with only positive DGP IgG. Some medications suppress the immune system. Curious if there's a connection.
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Sure, there's more to consider. Nutritional deficiencies can affect genes and how their instructions are carried out. I read a paper on NIH that studied how thiamine deficiency affects genes. They found that thiamine deficiency caused thiamine transporters on cell surfaces to shut down, and other dormant HLA genes switch on, genes for autoimmune...
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@GUY1, DQA1 *05 is one gene. Only one gene is needed to develop Celiac Disease. This gene combined with other Celiac alleles produce more severe Celiac Disease. And, besides, you may want to change to a gluten free diet anyway.... HLA-DQA1*05 Associates with Extensive Ulcerative Colitis at Diagnosis: An Observational Study in Children ...
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mcas Mast Cell Activation Syndrome (MCAS)
knitty kitty replied to Bronwyn W's topic in Related Issues & Disorders
@Bronwyn W, I don't believe a diagnosis is necessary for histamine intolerance. Our bodies can make histamine. Mast cells (a type of immune cell) release histamine in our bodies in reaction to perceived invaders like bacteria, viruses, and gluten. Our food contains histamine. Some foods contain higher levels of histamine than others. ... -
Eating out is like playing Russian Roulette. You and I might know the right questions to ask, but there's no guarantee the kitchen staff will actually be as careful as we need them to be. I've gone to restaurants, been assured by the manager a gluten free meal would be provided, then served a salad with croutons. They don't have a clue...
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Welcome to the forum! Yes, the urge to eat an entire loaf of bread will go away. Our bodies crave that bread because traditionally bread has been a source of B vitamins and some minerals for us. Gluten based breads (made from wheat, rye or barley) are required by law to be enriched with vitamins and minerals. Bread has vitamins added to...
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Lentils are gluten free, however, lentils might be contaminated with gluten if the equipment used to harvest, transport and process them have previously been used for other crops like wheat. Lentils contain Lectins which are hard for our gastrointestinal systems to digest. Undigested Lectins can provide carbohydrates that SIBO bacteria thrive on....
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Dermatitis Herpetiformis outbreaks can be triggered by iodine. High levels of Iodine are found in dairy products and shellfish and iodized table salt. I've cut out dairy, avoid shellfish and switched to Pink Himalayan salt, and my DH flares cleared up. Niacin (flushing form of Vitamin B3) or Niacinamide (nonflushing form of B3) helps tremendously...
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Hi, @LIZARD66! I had painful neuropathy which turned out to be caused by nutritional deficiencies. Unfortunately my doctors were poorly educated about vitamins and minerals, and completely missed the real cause of my neuropathy. The Gluten free diet can be low in some vitamins and minerals. In Celiac Disease, it's common to have nutritional...
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@MominWA, Were your son's magnesium and zinc levels checked?
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree more research needs to be done. I'm curious about the different antibodies being produced and why some people have negatives on tTg IgA, but positive anti gluten IgG. @cluelesslycontaminated posted that the skin symptoms had started in March. Were antihistamines started at that time? The antihistamines (and PPI's) might affect the...
