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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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@corkfella, There are more vitamins than B12 and Vitamin D. You would do better to add a B Complex and Vitamin C to your regimen. Vitamin C deficiency can cause swollen and inflamed gums, as well as rashes on the skin and trouble breathing. Here's an article about Vitamin C deficiency. See if your symptoms match these. https://www...
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Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, You seem to have a wonderful relationship with your wife! I admire you both are making a team effort, so here's some more tips for wife care... Get her Vitamin D level above 80 nmol/L. At that level and above, Vitamin D acts like a hormone. It's a major help. I was so deficient in Vitamin D (single digits) that I had severe menstrual... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, I've found Niacin Vitamin B 3 helps heal Dermatitis Herpetiformis outbreaks. Nicotinic acid, the form of Niacin that causes flushing helps DH the best for me, but if the flushing is too much for you, Niacinamide works, too. I've suffered from Gastroparesis. I have Type Two Diabetes, under control with diet and Benfotiamine. Benfotiamine... -
Falling off the wagon and losing control of my diet
knitty kitty replied to JohnAdam's topic in Coping with Celiac Disease
Here's a study about Benfotiamine and alcoholism... DOUBLE-BLIND, RANDOMIZED PLACEBO-CONTROLLED CLINICAL TRIAL OF BENFOTIAMINE FOR SEVERE ALCOHOL DEPENDENCE https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3818307/?report=reader -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
I have a lucky iron fish! Yes, keep us apprised of your findings! -
Anyone get sick delivering/handling food?
knitty kitty replied to StrongerThanCeliac's topic in Super Sensitive People
@StrongerThanCeliac, Yes, there are other sensitive Celiacs who react to airborne gluten. Airborne gluten particles can enter through your nose and get washed down the throat and into our digestive system. I get sick shopping in the bakery and bread aisle at the grocery store. I react to crustaceans also, so restaurants that boil shrimp... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
P. S. Thought you would be interested in this article, too... Loss of food nutrients orchestrated by cooking pots: a common trend in developing world https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8249525/ -
@DanMc, POTS is seen in Thiamine Deficiency Disorders. Vitamin B1 deficiency in patients with postural tachycardia syndrome (POTS) https://pubmed.ncbi.nlm.nih.gov/28531358/ One can have a deficiency in Thiamine while still showing "normal" blood levels. Blood levels are not an accurate measurement of how well Thiamine is being utilized...
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Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, Thank YOU so much for keeping an open mind and for validating the Autoimmune Paleo diet! I've a degree in Microbiology, and have taken as many nutrition classes as were available at my university. The connection between what happens on a cellular level within our bodies and essential nutrients from our diet is intricately woven... -
Falling off the wagon and losing control of my diet
knitty kitty replied to JohnAdam's topic in Coping with Celiac Disease
@Scott Adams, The information (the majority of alcoholics are Celiac or have gluten sensitivity) came from a National Institute of Health study. Unfortunately, I cannot remember from which study, as I've read hundreds. I don't mind retracting the statement until I can find the study. However, I've found this study which shows alcohol consumption... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, The Paleo Approach by Dr. Sarah Ballantyne has information about a vegetarian version of the AIP diet. -
Falling off the wagon and losing control of my diet
knitty kitty replied to JohnAdam's topic in Coping with Celiac Disease
@NNowak, Please reconsider your laissez faire course of inaction. As someone who is experiencing osteoporosis, the long term effects start when one is young. The majority of calcium in your bones is laid down in childhood, but especially during adolescence and young adulthood. After that, if one doesn't absorb sufficient calcium from the daily... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@Jacki Espo, I'm glad you found a diet that works for you. I want to clarify this is the AutoImmune Paleo Diet. It is different from an anti-inflammatory diet, although both are beneficial. Remember to provide your body with the eight essential B vitamins. When we cut out bread and such stuff, we cut out the vitamins added by the manufacturers... -
It highlights the impaired judgment of vitamin deficiencies that can occur in Celiac Disease.
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Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
Hi, @newtonfree, I followed the Autoimmune Paleo Protocol diet which excludes all grains, pseudo grains, ancient grains, legumes and pulses. These are full of difficult to digest plant lectins. By removing these irritating lectins, the gastrointestinal tract can heal faster and easier. Those undigested plant lectins can promote Small Intestinal... -
Welcome to the forum, @Elizabeth M Blair, I found the book, The Paleo Approach, by Dr. Sarah Ballantyne, a Celiac herself, very helpful. This diet has been shown to promote healing in the gastrointestinal tract. The Autoimmune Paleo Protocol Diet (AIP diet) is designed to remove inflammatory plant lectins, and other problematic foods thus reducing...
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Ice cream.
knitty kitty replied to Elizabeth M Blair's topic in Gluten-Free Foods, Products, Shopping & Medications
Welcome to the forum,@Elizabeth M Blair! I found the book, The Paleo Approach, by Dr. Sarah Ballantyne, a Celiac herself, very helpful. This diet has been shown to promote healing in the gastrointestinal tract, by removing irritating plant Lectins and dairy. Dairy can cause the same inflammation as gluten. Mucosal reactivity to cow's milk... -
So glad you are trying Thiamine and B Complex! Remember when we go gluten free, we lose a source of vitamins. Vitamins are added to bread and gluteny stuff to replace the vitamins destroyed in processing and manufacturing. Vitamins added to bread and gluteny stuff are cheap and shelf-stable (not in forms our bodies can easily utilize). So, it's...
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Pick up a B Complex with all eight B vitamins and additional Thiamine Hydrochloride and or Benfotiamine. And Vitamin D 3 which will help down regulate inflammation. And magnesium glycinate to make enzymes with Thiamine. Nightshades promote leaky gut syndrome which can lead to inflammation in joints.
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@B.J., Thiamine Hydrochloride and Benfotiamine is available over the counter and online. Doctors can also give thiamine hydrochloride in an IV. Since you may have electrolyte imbalance due to the water pill, you may want your doctor to give an IV under medical supervision. Magnesium and potassium help Thiamine work properly. Thiamine is...
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Get the appointment. Eat gluten four or five days prior to bring out the rash. Or... Foods high in iodine (eggs, dairy, crustaceans) can stimulate DH flares, too. Or... Get a genetic test to look for Celiac genes. Genes don't change, and you don't have to consume gluten beforehand. -
@B.J., Welcome to the forum! Celiac Disease can cause vitamin and mineral deficiencies because Celiac Disease results in malabsorption of nutrients. Unfortunately, many doctors are not well versed in vitamin and mineral deficiencies. They're trained to prescribe pharmaceuticals. Thiamine Vitamin B 1 helps with edema in the extremities...
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@B.J., Thiamine deficiency can cause edema of the extremities. It happened to me. Thiamine Deficiency in a Nondrinker and Secondary Pulmonary Edema after Thiamine Replenishment https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7028406/
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Celiac disease and Hashimotos
knitty kitty replied to Raquel2021's topic in Coping with Celiac Disease
@Raquel2021, Well, not anymore. Thiamine is needed for the thyroid to function properly, too. Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients https://pubmed.ncbi.nlm.nih.gov/37278003/ And... https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue/