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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by knitty kitty
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mast cells are part of the immune response. They release histamine when presented with an antigen like gluten. Mast cells also call in immune cells that make antibodies like tTg IgA when histamine is released. Antihistamines affect the release of histamine from mast cells. If the mast cells release of histamine is affected by antihistamines... -
@MominWA, Protein in urine (proteinuria) can be seen in diabetes. Thiamine Vitamin B 1 is known to improve proteinuria. Metabolic Benefits of Six-month Thiamine Supplementation in Patients With and Without Diabetes Mellitus Type 2 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3921172/ And... A Summertime Stupor https://www...
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sure, @trents, Effects of antihistamines on innate immune responses to severe bacterial infection in mice https://pubmed.ncbi.nlm.nih.gov/21346365/ Antibodies in celiac disease: implications beyond diagnostics https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4003135/ Regulatory effects of antihistamines on the responses to staphylococcal... -
"...chronic administration of 1–6 g oral pyridoxine per day for 12–40 months can cause severe and progressive sensory neuropathy characterized by ataxia (loss of control of bodily movements). Symptom severity appears to be dose dependent, and the symptoms usually stop if the patient discontinues the pyridoxine supplements as soon as the neurologic symptoms app...
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PPI
knitty kitty replied to Elliemae7395's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Elliemae7395, PPI's have been scientifically studied and shown to promote CeD. GERD is caused by having low gastric juices, hypochlorhydria. PPI's lower the production of gastric juices further and disrupt digestion, leaving undigested food available for fermentation by bacteria in the gastrointestinal tract resulting in bloating, wind,... -
Welcome to the forum, @eagards177! I found it helpful to cut tomatoes and peppers out of my diet for a time while healing. Tomatoes, peppers, potatoes and eggplant are nightshades which contain glycoalkaloids which promotes zonulin production in the small intestine which results in Leaky Gut Syndrome. (Basically you get a porous intestinal lining...
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@Gina C, Welcome to the forum! I had to totally do away with the mindset that breakfast consists of hot cereal, bacon and eggs. I react to Casein in dairy, and to buckwheat. I have sensitivity to eggs sometimes, and cannot eat bacon. I've found it helpful to have a small crock pot of stew cooking overnight. Veggies and meat stew...
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@cluelesslycontaminated, The antihistamines you've been taking have probably affected your blood tests for Celiac Disease. The release of histamine from mast cells is part of the immune reaction in Celiac Disease. Antihistamines block this "fire alarm" or call to action of the immune system, resulting in low antibodies. You may want to consider... -
Itchy nose but no allergies
knitty kitty replied to Acacia Voynar's topic in Food Intolerance & Leaky Gut
I thought this article was interesting. It discusses under-methylation and vitamins in cancer. Choline and Betaine, and methylated forms of some B vitamins donate methyl groups. Methyl Donor Micronutrients that Modify DNA Methylation and Cancer Outcome https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6471069/ -
@Marmee, I'm so sorry you're going through this. If someone who has Celiac Disease has been off gluten for long periods of time, an autoimmune reaction to gluten may take months of gluten consumption to be triggered again. The immune cells that "remember" gluten only live for about two years. Of course you're not going to have blatant damage...
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Celiac, NCGS, or allergy?
knitty kitty replied to Emmy208's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emmy208, Welcome to the forum! Can you post your blood test results here? A Total IgA test needs to be done whenever a tTg-IgA test is run. If the Total IgA is low, a false negative results. Anemia (as in iron deficiency anemia or B12 deficiency anemia) can cause false negatives. Not only will red blood cell counts be low, but white blood... -
"Our findings support that vitamin B may have an influence on carcinogenesis of the esophagus. Vitamin B1, B3, B6, and B9 showed a decreased risk of EC, vitamin B12 showed an increased risk of EC. (It is clear that scientists must apply the very best science in characterizing the safety of vitamin supplements.)" Dietary vitamin B intake and the risk...
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@MominWA, Was your son's phosphate level checked? Hypophosphatemia (too little phosphate) can result in high B6 levels. Hypophosphatemia can occur in Vitamin D deficiency. https://my.clevelandclinic.org/health/diseases/24040-hypophosphatemia
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Another question...may just be my old tablet, but... My font keeps changing. Sometimes it's big enough, but when I post, the font changes to tiny, tiny print. I've got big lettering set for my vision problems, but after posting, I can't get the font big again unless I sign out and sign back in. Curious...
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@Wheatwacked is correct. Correcting quickly Vitamin D deficiency by taking high doses is safe and beneficial. I ate Vitamin D 3 supplements like m&m's when my level was as low. I felt much better faster. It really made improvement faster.
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When will the Diarrhea stop??
knitty kitty replied to DeeDee95's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@DeeDee95, How are you doing? Covid and other illnesses can cause one to use up lots of their vitamin stores to fight the infection. This means we can become depleted in B vitamins quickly. Deficiencies in several B vitamins can show up as diarrhea. B12 Cobalamine, Thiamine B1, and Niacin B3 or Tryptophan. Since you've been gluten free... -
Itchy nose but no allergies
knitty kitty replied to Acacia Voynar's topic in Food Intolerance & Leaky Gut
It could mean there's not enough of the other B vitamins to function with B12 and Folate. The B vitamins are all interdependent on each other to do their various jobs. -
Gliadin Ab IgA
knitty kitty replied to Marmee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with @trents. Do not take the PPI. It can cause more inflammation. Reflux or Gerd is symptomatic of low stomach acid, hypochlorhydria. Deficiency in Niacin Vitamin B3 can cause low stomach acid. My Gerd resolved after supplementing with Niacin. There are eight B vitamins which all work together. A B Complex usually contains... -
Gliadin Ab IgA
knitty kitty replied to Marmee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Marmee, I am so sorry you're going through this. Lots of us have been misdiagnosed, misdirected, and mistreated by doctors ignorant of Celiac Disease. My heart goes out to you. You're almost done with the gluten challenge, so stay strong. You can make it through. You will have a baseline endoscopy with which to compare future endoscopies... -
Gliadin Ab IgA
knitty kitty replied to Marmee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Marmee, A positive is a positive. Like being a little bit pregnant. 😸 Welcome to the club. You can double check with a genetic test. Most Celiacs have HLA DQ 2 or 8, though there are more rare Celiac genes out there. You don't have to be eating gluten to get a genetic test. Some people can't complete a gluten challenge if... -
question on TTG level
knitty kitty replied to Karynkat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@lindalee, You may have nutritional deficiencies that are causing hypothyroidism. Thiamine Vitamin B 1 is used by the thyroid. Hypothyroidism can occur in Thiamine deficiency. Supplementing with Thiamine could help get your thyroid working better. A good B Complex would help correct nutritional deficiencies that develop in CeD. -
Itchy nose but no allergies
knitty kitty replied to Acacia Voynar's topic in Food Intolerance & Leaky Gut
@Acacia Voynar, I like Life Extension brand (available on Amazon). Their Benfotiamine (250mg capsule) is a form of thiamine I use. You want to get lower doses of B vitamins and take with each meal throughout the day. Our bodies can absorb a limited amount at a time, so taking vitamins throughout the day helps us absorb more. Niacin can cause... -
One should be off of vitamin and mineral supplements for eight weeks before testing blood levels. Yes, the vitamins you gave your son could be reflected in his blood tests. A 20% increase in dietary thiamine can cause an 80% increase in the brain and symptoms temporarily improve. High doses of Thiamine is needed to repair and replace the mitochondria...
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It's more likely the Cefalexin antibiotic itself has caused the symptoms as a side effect. Antibiotics also disrupt the intestinal flora (killing off the good bacteria in the gut). Antibiotics also destroy Thiamine Vitamin B 1. Deficiency in Thiamine can cause gastrointestinal symptoms and headaches. Are you taking any vitamin supplements...