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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Exactly! Not staying on gluten until all testing is completed is a huge problem! Many doctors don't understand that antibodies go away if one goes off gluten. We have many members who have questionable blood tests for the reason they tried a gluten free diet at home, felt better, then went to the doctor and asked for Celiac tests. Their antibodies...
  2. knitty kitty
    @Rogol72, Just a few weeks, if even that. I had improvement in digestive symptoms within the first few days which kept improving. It wasn't long before my bloated (ten months pregnant looking) abdomen began to flatten and I could find my hip bones again. Six to eight weeks maybe. No, I did not take probiotics nor antimicrobials. The microbiome...
  3. knitty kitty
    @Lizi, I encourage you to eliminate dairy, too. The protein in dairy, casein, resembles the gluten molecule (molecular mimicry), so dairy can cause continuing inflammation. Dairy is debilitating for me. I get dizzy, depressed and demented when I consume dairy. Dairy and gluten are sources of exogenous opioids. We have opioid receptors...
  4. knitty kitty
    It's possible. People can be so messy and get crumbs everywhere! If the towel is dry, I would think giving it a good shake outside would get most crumbs off. If the towel is damp or wet, more crumbs might stick to it, so I would throw that towel in the laundry and give it a good wash. You're doing so well. You are impeccable about cross contamination...
  5. knitty kitty
    @Stacey grint, Iron deficiency is a common symptom of Celiac Disease, especially in the early stages. I'm so glad doctors are recognising the connection now. Here's a science-y article about it... Anemia in Celiac Disease: Prevalence, Associated Clinical and Laboratory Features, and Persistence after Gluten-Free Diet https://www...
  6. knitty kitty
    My favorite AIP diet book is "The Paleo Approach" by Dr. Sarah Ballantyne. https://www.thepaleomom.com/autoimmune-protocol-clinical-trials-and-studies/ Dr. Ballantyne is Celiac herself, and developed the AIP diet for herself and her Celiac kids. The AIP diet has been scientifically proven to promote intestinal healing. Hope this helps!
  7. knitty kitty
    @Maxipoo, I'm a curious kitty. What are your strange medical symptoms? Why did you go to a neurologist? I had subclinical vitamin and mineral deficiencies for years. An illness like Covid (any physical or emotional stressor) can push the body into a serious deficiency as the body's vitamin stores run out. Unfortunately, my doctors did not...
  8. knitty kitty
    @Lizi, Yes, a diet that eliminates all grains, pseudo grains, legumes, seeds and nuts is the Autoimmune Protocol Diet. Our gastrointestinal symptoms get a chance to rest, recuperate, and repair itself if we eliminate those foods for several months. The AIP diet has really helped me. A benefit has been that my SIBO is gone. SIBO is the overgrowth...
  9. knitty kitty
    @Dianasolvei, You could go ahead and get an endoscopy now WITHOUT a gluten challenge. Have lots of samples taken. This way you would get a baseline with which to compare future endoscopies to check for healing and if other problems arise. Some people who have really severe reactions and nutritional deficiencies may have flattened or absent villi...
  10. knitty kitty
    @Russ H, Thiamine, Vitamin B 1, chelates heavy metals like arsenic, lead, and cadmium, which the body can then easily excrete. Chelation makes the heavy metals nonreactive, harmless. Thiamine also protects DNA from mutation when exposed to radiation. I remember hearing about Thiamine tablets being distributed in Ukraine when the nuclear...
  11. knitty kitty
    @HannahLaF, The doctor saw your daughter's improvement after the virus and gluten free. Yes, some severe norovirus infections in young children can cause damage to the intestines. A gluten challenge for six weeks is necessary in order to test for antigliadin antibodies again. If your daughter's antibodies are high again, it's likely Celiac and...
  12. knitty kitty
    Oh, no, @MBjim. You might not have been eating enough gluten. On the forum, we've been saying at least two slices of bread a day. "You will need to eat a three to 10 grams of gluten per day, and two grams is roughly equivalent to a slice of bread." https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ Different types...
  13. knitty kitty
    Welcome to the forum, @MBjim! The damage done to the small intestine can vary. Are you familiar with Marsh scores? Marsh scores describe the severity of damage in the small intestine. Not eating sufficient gluten daily for at least two weeks prior to an endoscopy can affect how badly damaged and inflamed the small intestine becomes. ...
  14. knitty kitty
    @ac5858, After being on the gluten free diet for such a long time, it is more likely you have developed nutritional deficiencies. These are all symptoms of Thiamine deficiency. I know from experience, thiamine deficiency will cause Depression, extreme fatigue, headaches and brain fog, and canker sores and acne. Nutritional deficiencies...
  15. knitty kitty
    Nutritional deficiencies can play a part in pelvic pain...Since Celiac Disease can lead to nutritional deficiencies even on a gluten free diet, trial supplementation may be helpful. "Nutritional deficiencies and metabolic disorders are not uncommon among women with MFPP but may be overlooked by medical practitioners as an underlying contributor to CPP...
  16. knitty kitty
    @bechari, Do you wash your rice before you cook it? Washing rice can wash away the the vitamins in enriched white rice. Your symptoms sound like mine when I was deficient in vitamins, especially thiamine deficiency. Vitamin D deficiency can cause vertigo, but in thiamine deficiency, vertigo, peripheral neuropathy, and muscle spasms...
  17. knitty kitty
    Neuropathy is a classic symptom of Thiamine deficiency. Doctors do not recognize Thiamine Deficiency Diseases yet. I had improvement in my peripheral neuropathy, in my feet and hands within an hour of taking Thiamine Hydrochloride. @trents, Naltrexone can be used to help with pain... The use of low-dose naltrexone (LDN) as a novel anti...
  18. knitty kitty
    @Bettyvan, Swelling of the extremities (hands, feet, ankles, calves) is a symptom of Thiamin deficiency. Thiamin deficiency is a serious medical condition. Thiamin deficiency can worsen quickly and cause heart problems, ataxia, and brain dysfunction. It can result in death. You should talk to your doctor about supplementing with thiamin. Your...
  19. knitty kitty
    Don't give up on getting a diagnosis of Celiac Disease. Wait until you get your endoscopy (continue with gluten in your diet) before you start looking for other causes. Metformin can cause vitamin deficiencies in Thiamine B 1 and Folate B9 by blocking their absorption. Without Folate B9, Cobalamine B12 can't be used effectively. These deficiencies...
  20. knitty kitty
    Yes, anti-DGP testing is valid in adults. Antibodies against deamidated gliadin peptides identify adult coeliac disease patients negative for antibodies against endomysium and tissue transglutaminase https://pubmed.ncbi.nlm.nih.gov/20456302/ "In this study of patients...IgA/IgG-DGP identified adult coeliac disease patients negative for antibodies...
  21. knitty kitty
    B12 deficiency can cause anhidrosis (not sweating) and hypohidrosis (very little sweating). B12 deficiency is common in both Celiac Disease and scleroderma as well as Sjogren's syndrome. Celiac Disease can cause problems with absorption of Vitamin B12 Cobalamine. B12 needs to bind with an intrinsic factor produced in the stomach in order to be...
  22. knitty kitty
    UBOs can be found in Thiamine deficiency. Cerebellar spots... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2854955/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9945014/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9402833/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4728174/ Thiamine deficiency...
  23. knitty kitty
    @Vicrob, Thiamine deficiency can occur outside of alcoholism. Thiamine deficiency can occur in malabsorption syndromes like Celiac Disease. Elevated liver enzymes are frequently seen in alcoholism because alcohol interferes with the absorption of Thiamine (Vitamin B1) resulting in Thiamine deficiency. Alcoholism damages the small intestine where...
  24. knitty kitty
    @Dtoc and all, Just a little side note... That "daily skin dust" on your calves sounds similar to the dust I had on my feet and calves when I had deficiency in Vitamin B 3, Niacin. It starts with"dust', but it can get worse. Rough, scale-y and bumpy skin appears on hands, feet, and neck (called boots and gloves of pellagra). A reddening...
  25. knitty kitty
    @lyndze, Celiac Disease destroys the lining of the small intestine preventing the absorption of essential vitamins and minerals. You should be checked for vitamin and mineral deficiencies as part of proper follow up care for Celiac people. Anemia and Diabetes (both types) can affect blood tests for Celiac Disease, resulting in false negatives...
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