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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Plola, You're not alone! I understand! It's a dumping, mass evacuation type diarrhea. Propylene Glycol is an ingredient, generally recognized as safe, but diarrhea is one of the side effects. Propylene Glycol causes water from body fluids to influx into the intestines and colon which results in that mass evacuation. Propylene Glycol...
  2. knitty kitty
    Chicken meat can trigger a Celiac-like response in some people because the type of protein in dark meat (legs, thighs) resembles a segment of the gluten protein. I'm one of those that react to chicken. You're not alone, @SargeMaximus.
  3. knitty kitty
    @416510, You may want to ask for the anti-DGP - IGg tests. It's part of the"complete Celiac panel" @trents mentioned. Here's some studies about it... Diagnostic accuracy of anti-DGP (IgG) for celiac disease https://pubmed.ncbi.nlm.nih.gov/37025242/ And... Diagnostic Value of Immunoglobulin G Anti-Deamidated Gliadin Peptide...
  4. knitty kitty
    Dietary intake of thiamine and riboflavin in relation to severe headache or migraine: A cross-sectional survey https://pubmed.ncbi.nlm.nih.gov/36047917/ "Conclusions: We found that high intake of thiamine was significantly associated with lower odds of migraine, especially in females." Celiac Disease damages the intestinal lining so that nutrients...
  5. knitty kitty
    I've found some research articles that should be helpful.... Wernicke Encephalopathy Presenting with Dysphagia: A Case Report and Systematic Literature Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9788281/ And... Severe dysphagia as the presenting symptom of Wernicke-Korsakoff syndrome in a non-alcoholic man https://pubmed...
  6. knitty kitty
    Hello! I'm Type Two and I've found the Autoimmune Protocol diet works best for me. I could not take Metformin nor other similar medications because I have a hypersensitivity to sulfa drugs. Metformin actually blocks Thiamine Vitamin B 1 from entering cells in the body. The great thing about the AIP diet is that it allows me to maintain my 4...
  7. knitty kitty
    @Ben.D, Welcome to the forum! I'm going to ask about your diet. What did a typical day's food intake look like prior to symptoms 6-7 years ago? What does your diet include now? What foods are problematic for you? Are you a vegetarian?
  8. knitty kitty
    @GlutenbusterMama, Let's keep in mind that the digestive tract has a limited vocabulary. Not everything is caused by gluten. Yes, there's a connection between a diet high in sugar and insufficient Thiamine Vitamin B 1. Thiamine is needed to burn sugar for energy. If there is not enough thiamine to process sugar and turn it into energy, lactic...
  9. knitty kitty
    @KL443, Sorry to hear you are feeling so poorly. I was not able to take Omeprazole because it made my stomach and digestive tract hurt worse. There is scientific research that shows that proton pump inhibitors like omeprazole and antidepressants cause continuing inflammation and damage in the digestive tract. You may try discontinuing...
  10. knitty kitty
    Hi, Faye! What was the medication? Some medications themselves can cause worsening GI symptoms. Some medications can precipitate vitamin deficiencies which can manifest as the symptoms you've described.
  11. knitty kitty
    Thiamine Vitamin B 1 deficiency and Pyridoxine Vitamin B 6 deficiency can increase oxalate uptake. Absorption of glyoxylate and oxalate in thiamine and pyridoxine deficient rat intestine https://pubmed.ncbi.nlm.nih.gov/3947375/ "Dietary deficiency of thiamine or pyridoxine has been shown to produce hyperoxaluria and renal stone formation in...
  12. knitty kitty
    @KatrinaMindy, I've had hearing loss related to untreated Celiac Disease. I've had almost all those symptoms you listed. (No resection.) Please, please, please, get checked for nutritional deficiencies, especially Thiamine Vitamin B1, as soon as possible. Vitamin deficiencies need to be corrected as quickly as possible so the damage does not...
  13. knitty kitty
    @ravenwoodglass, I do hope it's not come to that! My heart goes out to you! There is a mounting body of evidence that high dose Thiamine (esp. Benfotiamine) can have anticancer effects. High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963161/ ...
  14. knitty kitty
    Welcome to the forum! I agree that current medical training leaves a lot to be desired. Doctors are trained in medical training institutions funded by pharmaceutical companies to dispense pharmaceuticals. Doctors are given about fifteen minutes of education about vitamins and nutrition in seven years of med school. How are they correcting...
  15. knitty kitty
    @Seethefacts, If you have not been diagnosed with Celiac Disease, know that you will have to consume regular amounts of gluten (10 grams/day) for up to eight to twelve weeks ( a gluten challenge) in order to test for antibodies to gluten in your blood. A minimum of two weeks of gluten consumption is required before an endoscopy to biopsy the small intestine...
  16. knitty kitty
    Are you taking a B Complex supplement? Several of the eight essential B vitamins can help reduce anxiety, Cobalamine B12, Thiamine B1, and Pyridoxine B 6. But all eight are needed for them to function properly. Magnesium and Vitamin D help, too. Anxiety and depression are early symptoms that you may have insufficiency in vitamins and minerals...
  17. knitty kitty
    Check for diabetes and anemia, too.
  18. knitty kitty
    Dermatitis Herpetiformis is a skin condition that occurs with Celiac Disease. DH can take different forms... Have you looked at the pictures in the photo bank in the Dermatitis Herpetiformis section of the forum? https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/
  19. knitty kitty
    Yes, I understand. Your son should use some pain he has experienced as a reference to describe his pain from stomach cramps. I'm concerned as to why he wants to use that particular comparison. He may get laughed at or bullied. Perhaps this may help.... "How can I describe my pain to my health care provider?" https://www.nichd...
  20. knitty kitty
    @PrismagicMushroom, Yes, Celiac Disease can be precipitated after an infection. During an infection, our bodies can run short on Vitamin B1, Thiamine. High dose Thiamine can help recovery. Vitamin D deficiency can cause symptoms of arthritis. Celiac Disease damages the small intestine where vitamins and minerals are absorbed. Supplementing...
  21. knitty kitty
    @PrismagicMushroom, What prompted you to go to the doctor? Maybe better said, what prompted the doctor to test for Celiac?
  22. knitty kitty
    Yes, I avoid the bakery section, too. Some highly sensitive people can have a reaction to inhaled gluten. We smell "stuff" because little molecules of that "stuff" get airborne and finds its way to our nose, triggering smell receptors. The "stuff" gets stuck in the mucus produced by the mucus membranes in the nose which drains down the back...
  23. knitty kitty
    @PrismagicMushroom, Welcome to the club! Looks like your DGP test is positive and you only need one positive test. Have you been eating gluten prior to the blood tests?
  24. knitty kitty
    @Sarah8527, That's like comparing apples and oranges. I discourage the use of that comparison. It's two different organs that function in two different ways, hence different kinds of pain. Instead use some injury your son is more familiar with. If your son ever got a Charlie horse, stubbed his toe, or sprained his ankle. Or better yet, say...
  25. knitty kitty
    White rice is easily broken down into glucose. Our brains like to run on glucose. Unfortunately, white rice is usually enriched with thiamine mononitrate, which is shelf stable, but not a bioavailable form our bodies can use. Benfotiamine is a form of thiamine that helps promote healing in the small intestine. Hiding in Plain Sight:...
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