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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @SargeMaximus, Only fresh pineapple has Betaine Hydrochloride. But Betaine Hydrochloride capsules are available over the counter. Betaine Hydrochloride is a digestive enzyme that is helpful for those with low stomach acid. Gerd is a symptom of low stomach acid.
  2. knitty kitty
    @Liquid lunch, It's a blessing to me that you and your family are going to try Thiamine! I'm glad you found a link to the Allithiamine. Do be aware that Allithiamine is made from garlic, a member of the Allium family of plants. Sometimes there's an essence of garlic if one takes a very high dose. It's not bothersome to me. It fades away as...
  3. knitty kitty
    Breads are a source of vitamins that may have helped your brain function. But the inflammation and long term damage it causes in Celiacs isn't worth it. That's why taking essential vitamins and minerals when you go gluten free is important, especially while healing. Even people who have been on the gluten free diet for a long time can develop...
  4. knitty kitty
    @SargeMaximus, In a way, yes. Thiamine and other vitamins are needed to make digestive enzymes, enzymes that break down complex carbohydrates into simple sugars like glucose. The heavier the carbohydrate load, the more Thiamine is required. Glucose can go through the intestinal wall and get into the blood stream. In the brain, glucose stimulates...
  5. knitty kitty
    @SargeMaximus, I'm glad you found it! Yes, any thiamine will help heal. Benfotiamine has been studied and shown to heal the intestinal tract. Benfotiamine can enter cells easily without going through the Thiamine transporters (doorways). Thiamine Hydrochloride has to go through the transporters to get into the cells. If there's a high...
  6. knitty kitty
    Hi, @Maddie6332! These are my favorite cookies right now...they have oats, so beware if you are sensitive to oats. https://partakefoods.com/products/birthday-cake-cookies P.S. Unfortunately, I haven't had time to try your recipe for Chocolate Chip Pumpkin Muffins yet. But I have all the ingredients waiting! I'm looking forward to making...
  7. knitty kitty
    @Glutton3, I like this article, written by a doctor with Hashimoto's, explaining how Thiamine (Vitamin B 1) can manifest as Hashimoto's. Thiamine is the vitamin that we can run out of quickly because we don't eat enough, can't absorb enough, or use up quickly like when we're stressed emotionally or physically. https://thyroidpharmacist.com...
  8. knitty kitty
    @Jackland79, I don't want to contradict your doctor's orders. I think clarification from the specialist doing the endoscopy is needed. If your doctor has let the specialist know it was recommended that you immediately start the gluten free diet, the specialist should take into account the amount of healing done in the gluten free time period. Your...
  9. knitty kitty
    @Xsmama, I understand how frustrating the diagnosis process is. Your doctors are correct in telling you to continue the gluten containing diet until the endoscopy. Healing in the small intestine can take place rapidly once gluten is removed. While some damage is visible without a microscope, the doctors need to take samples of the small intestine...
  10. knitty kitty
    @Jackland79, Welcome to the forum! Sorry you're feeling so poorly. Yes, a Celiac diagnosis can be disorienting. One book I found very helpful is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself. She developed the Autoimmune Protocol Diet which has been scientifically shown to promote healing in the gastrointestinal tract. Here...
  11. knitty kitty
    @Sally Walker, That's good to know! I have Hypersensitivity type four to sulfa drugs and iodide. @MADMOM is correct about nightshades being inflammatory. Vitamin B12 and Vitamin C help calm inflammation and clear histamine. Lots of histamine is produced during flare ups as part of the autoimmune response. Niacin will help, too...
  12. knitty kitty
    @Arietti, Yeah! You figured out how to post! 😺 My DH gets really puffy and blister-y looking if I've had both dairy and gluten. If I just get glutened, it's smaller, drier bumps. Are you keeping a food journal? It can help pinpoint problematic foods. Be sure to note any symptoms afterwards (including changes in bowel movements as we...
  13. knitty kitty
    @SargeMaximus, Here's the link.... https://www.vitamart.ca/now-b-1-100mg @trents it does look like prices are higher if one doesn't have "prime".
  14. knitty kitty
    @LaLeoLoca, Not my intention at all. I've seen your posts on other threads mentioning many different illnesses. It breaks my heart to see people suffer. I know what it feels like. I've been there. I became a Microbiologist to find answers. I came to the forum to share what I've learned so others don't have to suffer like I did. God...
  15. knitty kitty
    @Arietti, Yes, I have DH and sometimes it's not symmetrical. Yes, sometimes my outbreaks are different. I've had DH blisters happen on my left leg. I sleep on my left side (for good digestion) and have woken up with a stripe of blisters down one leg. It might have been a seam down the leg in my pajamas.... DH is pressure sensitive. It...
  16. knitty kitty
    Welcome to the forum, @wayne w! Yes, it's called Costochondritis. I had it while I was deficient in Thiamine Vitamin B 1 prior to diagnosis. I've been supplementing with high dose thiamine (as Dr. Derrick Lonsdale suggested) and B Complex, magnesium and Vitamin D. Here are some articles from Dr. Lonsdale's website with Dr. Marrs https...
  17. knitty kitty
    Are any of your prescriptions sulfa drugs?
  18. knitty kitty
    @LaLeoLoca, I do wish you would reconsider the raw veggies. Grinding veggies and drinking the juice is not the same as "pre digesting" them. People who are vegetarian have lower Vitamin B12. B12 is needed to remove histamine. Histamine release is part of the inflammation response. You said "leaky gut is a big problem." Could you explain...
  19. knitty kitty
    @sandree33, It's definitely worth talking about it with your doctor. I'm hoping he will be knowledgeable about Celiac Disease. Your doctor may offer an endoscopy without a gluten challenge prior to it. Samples may be taken for confirmation testing. That way they can check out if there's anything else going on like H. Pylori infection or gastritis...
  20. knitty kitty
    Yes that one is great. I looked on the same site and found this one... https://www.walmart.ca/en/ip/Life-Extension-Mega-Benfotiamine-250-mg-120-Vegetarian-Capsules/PRD7A85TQTKJAN5
  21. knitty kitty
    @SargeMaximus, I'm sorry you're having problems with your phone. On WalMart.ca do a search for NOW brand thiamine hydrochloride. You can also do a search for benfotiamine. https://www.vitamart.ca/new-roots-benfotiamine-active-vitamin-b1-150mg And... https://www.vitamart.ca/now-b-1-100mg
  22. knitty kitty
    @Sally Walker, Welcome to the forum! I get DH rash if I'm exposed to iodine in foods like crustaceans and seafood, and nori (seaweed). Even dairy has high levels of iodine. I use Pink Himalayan Salt, because I react to sea salt and iodized salt. Check your vitamins labels to see if they have added iodide components. Some prescription medications...
  23. knitty kitty
    @sandree33, My heart goes out to you. I would get too ill to complete a gluten challenge, so the doctor did a genetic test. I have two genes for Celiac Disease. With a positive DNA test and my reactions on and off gluten, the doctor made a diagnosis of Celiac Disease. You have had a DNA test. See... HLA-DBQ1 allelle 1 0201 - HLA-DBW1...
  24. knitty kitty
    Thiamine Hydrochloride "Now Foods" brand. 100 mg tablets 100 tablets $4.99 at Walmart and $9 at vitamart https://www.vitamart.ca/now-b-1-100mg Benfotiamine $19.99 https://www.vitamart.ca/new-roots-benfotiamine-active-vitamin-b1-150mg I hope you can find Benfotiamine at a store near you.
  25. knitty kitty
    I'm sorry about the price. I'm surprised you could not get the plain Thiamine Hydrochloride at a drugs store or a nutrition/sports health/health food store. I'm glad your doctor is doing more investigation. Keep us posted on the results!
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