Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Inflammation


B.J.

Recommended Posts

B.J. Rookie

Hello - I was diagnosed a year ago by biopsy to have celiac disease. Since then I have been diligently eating a no gluten diet. I have noticed recently that the joints and tendons in the back of my feet are swollen and stiff. It feels arthritic. Doctor put me on a strong water pill....not helping. Has anyone experienced this? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

@B.J.,

Welcome to the forum!

Celiac Disease can cause vitamin and mineral deficiencies because Celiac Disease results in malabsorption of nutrients.

Unfortunately, many doctors are not well versed in vitamin and mineral deficiencies.  They're trained to prescribe pharmaceuticals.

Thiamine Vitamin B 1 helps with edema in the extremities.  Water pills can cause more Thiamine loss and loss of electrolytes.

Along with magnesium, Thiamine helps stiff joints and fatigue.  Vitamin D can also help improve symptoms.  Vitamin D helps regulate inflammation in the body.

Thiamine Deficiency in a Nondrinker and Secondary Pulmonary Edema after Thiamine Replenishment

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7028406/

There are eight essential B vitamins.  They work together.  You need to take all eight together in a B Complex to get the most benefit.  Taking high dose Thiamine can have health benefits.

https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/

 

trents Grand Master
1 hour ago, B.J. said:

Hello - I was diagnosed a year ago by biopsy to have celiac disease. Since then I have been diligently eating a no gluten diet. I have noticed recently that the joints and tendons in the back of my feet are swollen and stiff. It feels arthritic. Doctor put me on a strong water pill....not helping. Has anyone experienced this? 

Do you eat a lot of night shades (tomatoes, peppers, potatoes)? They can cause inflammation in the joints. May we ask what is your age?

Wheatwacked Veteran
2 hours ago, B.J. said:

the joints and tendons in the back of my feet are swollen and stiff. It feels arthritic.

Make sure you are are getting enough iodine in your diet.

Why a water pill? It what they would use for congestive heart falilure.

Symptoms of Iodine deficiency include: dry skin, muscle pain, headache, weight gain, poor memory, constipation, muscle cramps, depression, weakness and brittle nails, slow metabolism, leg swelling, ovary and breast cysts, hair loss, fatigue ( esp around 2-3pm e, insomnia and mental imbalance, irritable bowel, hyperactive disorder, fibromyalgia, various autoimmune diseases.

B.J. Rookie
1 hour ago, Wheatwacked said:

Make sure you are are getting enough iodine in your diet.

Why a water pill? It what they would use for congestive heart falilure.

Symptoms of Iodine deficiency include: dry skin, muscle pain, headache, weight gain, poor memory, constipation, muscle cramps, depression, weakness and brittle nails, slow metabolism, leg swelling, ovary and breast cysts, hair loss, fatigue ( esp around 2-3pm e, insomnia and mental imbalance, irritable bowel, hyperactive disorder, fibromyalgia, various autoimmune diseases.

I had blood work drawn this morning and the results show normal sodium, potassium, kidney function, GFR etc. (BMP panel) and also normal Iron. I am going to pick up some B1 and see if that helps.

2 hours ago, trents said:

Do you eat a lot of night shades (tomatoes, peppers, potatoes)? They can cause inflammation in the joints. May we ask what is your age?

I eat a lot of tomatoes, yes. I am 60.

knitty kitty Grand Master

Pick up a B Complex with all eight B vitamins and additional Thiamine Hydrochloride and or Benfotiamine.  And Vitamin D 3 which will help down regulate inflammation.  And magnesium glycinate to make enzymes with Thiamine.

Nightshades promote leaky gut syndrome which can lead to inflammation in joints.  

B.J. Rookie
1 minute ago, knitty kitty said:

Pick up a B Complex with all eight B vitamins and additional Thiamine Hydrochloride and or Benfotiamine.  And Vitamin D 3 which will help down regulate inflammation.  And magnesium glycinate to make enzymes with Thiamine.

Nightshades promote leaky gut syndrome which can lead to inflammation in joints.  

Thank you Kitty...I am definitely going to give that a try. This is an awful feeling. I already take Vitamin D3, but will focus on the B complex and addl Thiamine. I didn't know that about nightshades! This is all very interesting!!! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

So glad you are trying Thiamine and B Complex!  

Remember when we go gluten free, we lose a source of vitamins.  Vitamins are added to bread and gluteny stuff to replace the vitamins destroyed in processing and manufacturing.  Vitamins added to bread and gluteny stuff are cheap and shelf-stable (not in forms our bodies can easily utilize).  So, it's very important to supplement with vitamins that are bioavailable like Benfotiamine.  

I took high dose Thiamine while healing.  I took 300 mg with meals every day.  Flooding the body with Thiamine allows it to get into cells easily.  

The World Health Organization (WHO) says a thiamine deficiency can be diagnosed if health improvements are see in a patient after taking a minimum of 500 mg a day for several days.  Continue thiamine supplementation for several months.  

I had health improvements within an hour.  I was severely deficient.  It was truly amazing to feel better in such a short period of time.  I still take Benfotiamine and B Complex every day.  You can read more about my experiences on my blog. (Click on my name to go to my profile, and look in the Activities menu for a link to my blog.)

I'm looking forward to hearing about your results with Thiamine.

Keep us posted on your progress!  

Wheatwacked Veteran
(edited)

Ingredients in original flaver Red Bull:  Carbonated Water, Sucrose, Glucose, Citric Acid (vitamin C, Taurine (an essential amino acid), Sodium Bicarbonate (neutalizes acid), Magnesium Carbonate, Caffeine, Niacinamide (B3), Calcium Pantothenate (B5), Pyridoxine HCI (B6), Vitamin B12, Natural and Artificial Flavors, Colors.

this may seem off the wall but try some Red Bull. A quick preview to what the B vitamins Nothing bad in it. Just vitamins and real sugar instead of high fructose corn syrup. High fructose corn syrup has to be processed by the liver first.  Glucose goes straight to the blood, giving that burst of energy while the vitamins are the ones needed to turn sugar into energy.  Eyes and brain especially need Glucose from carbs, not fat.  The Taurine targets the Reactive Oxygen Species. Oxidative stress in turn causes cellular damage and results in more reactive oxygen species being produced; a vicious cycle that contributes to a progressive decline in cellular function. Taurine reverses all the adverse effects derived from excessive oxidative stress via various mechanisms.

My blood sugar base is 180 ng/ml.  Very low carb diet. Oddly, the longer I fast the higher it goes, while small amounts of sugar lowers it.  A representative of a Keto Diet grudgingly admitted that some of their members reported high glucose on low carb. No meds other than prednisolone (secondary adrenal cortex insufficiency because I started on it in 2012 for the overwhelming pains, before discovering that the pain was gluten.)  and recently Chlonidine for high blood pressure (all other bp drugs cripple and dehydrate me; Lisinopril caused me an inguina hernia from the persistant cough.)

I am pain free and getting stronger. I was bedridden from 2010 to 2014 so still working on the atrophy.

An hour after drinking it my glucose goes to 225 ng/ml (as expected that's why we drink sugary soft drinks) then drops to around 150.

Last summer I combined B vitamins with choline and lost 30 pounds of belly fat.  Adding the Taurine and Kelp for iodine recently improved my muscle tone, brain function and general wellbeing.

 

  1. 5 to 15 mg prednisolone maintenance dose because my adrenal cortex does not produce any cortisol.
  2. Clonidine .2 mg 3 times a day for blood pressure. (was 180/79 even with meds, now between 130/65 and 118/60.

Daily Vitamins

  • 10,000 IU D3  blood is constant at 80 ng/ml
  • 500 mg Thiamine B1
  • 500 mg Nicotinic Acid B3 you get used to the flush
  • 500 mg Pantothenic Acid B5
  • 1 mg B12 (1000 mcg)
  • 1000 mg Taurine
  • 840 Phosphatidyl Choline ( = 500 mg choline)

Breakfast is 17 to 24 ounces of Red Bull and an ounce (30 grams) rehydrated dryed kelp sheets cut into gummy worms.  very chewy and tastes like string beans.

Labs in two weeks so I'll see if they are as good as I feel.
 

 

Edited by Wheatwacked
Wheatwacked Veteran

I forgot to include 2 ounces of Cherry flavor magnesium citrate in 20 ounces of water.  Tastes like lemonade. Thats 580 mg of magnesium.

Last night at 9 pm my glucose was 180 mg/dl. Checked it just now, 6:30 pm. 124 mg/dl.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,503
    • Most Online (within 30 mins)
      7,748

    Jenn Cass
    Newest Member
    Jenn Cass
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Your feelings are completely valid, and I want to commend you for advocating for yourself despite the initial resistance from your doctor. Navigating a new celiac diagnosis can feel overwhelming, especially when you're adjusting to such a big lifestyle change. It’s natural to grieve the loss of your old eating habits and to feel frustrated by the constant label-reading and vigilance required. But please know that you are not alone, and many others have walked this path and come out stronger on the other side. Healing takes time, and while the brain fog, fatigue, and bowel symptoms can be discouraging, they often improve as your body begins to recover. It’s great that you’ve hired a dietitian—that’s a big step in supporting your healing journey and ensuring you’re getting the nutrients your body needs to rebuild. Remember, each small step you take is progress, even if it doesn’t feel like it right now. It’s okay to feel sad and angry, but also try to give yourself credit for your strength in facing this. The fact that you pushed for answers shows how resilient you are. While the road ahead may have challenges, many people find that over time, they feel better than they ever imagined possible once their gut begins to heal. You’ve got this, and the celiac community is here to support you every step of the way. If you have time, this book was published on Celiac.com's and you might find it helpful: Also, this article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • trents
      Welcome to the forum, @Whyz! By "half way to being diagnosed" I assume you mean you have had the blood antibody testing done but not the gastroscopy with biopsy. Is this correct? Were the results of your blood work positive for celiac disease?
    • trents
      Three days of no gluten is not likely to have much impact on serum antibody test results. I have more concern over exactly what test or tests were ordered. When you get the results back, please post them including the reference ranges for the tests for negative vs. positive. What country are you in? Do you have much choice in what doctors you see? Sounds like it might be a good idea to seek out another physician who knows what they are doing in this area of disease diagnosis. At any rate, you have the link I shared above outlining the various tests that can be run so that might be a resource you could share with a physician.
    • Whyz
      I’m only half way to being diagnosed I’ve started eating gluten free food because normal food makes me feel ill. is this ok
×
×
  • Create New...