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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @April42, If your total IgA was low, you would have a false negative on Celiac blood tests. Diabetes and anemia can cause false negatives on Celiac blood tests. I'm Celiac, diabetic, anemic and I have DH. I could not finish a gluten challenge, so I opted for genetic testing through my doctor. I have two genes for Celiac. Have you...
  2. knitty kitty
    I make lots of phlegm when I have dairy.... I also bloat like a balloon in Macy's parade.... Yogurt and goat's cheese? Mucosal reactivity to cow's milk protein in coeliac disease "A mucosal inflammatory response similar to that elicited by gluten was produced by Cow Milk protein in about 50% of the patients with coeliac disease. Casein...
  3. knitty kitty
    PPI's are not meant for long term use. Have you tried taking a magnesium supplement after meals? Many Over the counter antacids contain magnesium. Not producing enough stomach acid is called Achlorhydria. https://www.ncbi.nlm.nih.gov/books/NBK507793/
  4. knitty kitty
    @Papafma, What a relief to know! Big sigh of relief! Although, antibiotics work better with Thiamine! Are you giving your son a vitamin supplement since changing from formula? Rice milk formula? Plain rice milk isn't enriched with vitamins. The eight essential B vitamins are water soluble and easily become depleted with diarrhea. ...
  5. knitty kitty
    @Papafma, Glad to know you'll get the genetic test soon. Thiamine Vitamin B 1 is not routinely tested for. Blood tests for thiamine are not reliable. An Erythrocyte transketolase test would be a better test. It tests how well thiamine is being utilized by the body. Extended diarrhea is a symptom of Gastrointestinal Beriberi, caused by...
  6. knitty kitty
    @SargeMaximus, Yeah, the food choices on the menu may say gluten free, but the food is cooked in the same kitchen, on the same grill as gluten foods. Gluteny pancakes may have been cooked on the same grill as your hash browns. Your English muffin may have been toasted in the same toaster as gluteny toast. Unfortunately, it happens. The digestive...
  7. knitty kitty
    @Papafma, There are two tests DGP IgA and DPG IgG. Have you considered genetic testing? Curious, is your son's voice hoarse?
  8. knitty kitty
    @cristiana, Restless leg syndrome doesn't really involve cramping. It has been linked to B12, iron and thiamine deficiencies. Cramping is a symptom of thiamine and magnesium deficiencies. Thiamine and magnesium need each other to function properly.
  9. knitty kitty
    @SargeMaximus, You have admitted to eating hamburgers and eating out in restaurants. When one stops eating gluten, then eats gluten again, the body's reaction can be a more intense autoimmune reaction than previously. Every time one eats gluten, the antibodies attack, and symptoms flare. I understand about craving carbs. With SIBO, the bacteria...
  10. knitty kitty
    @MissTeaMuse, @bookless is correct about Total IgA needing to be checked when testing tTg. Anemia and Diabetes can cause false negatives. A gluten "sensitivity" is like being "a little bit pregnant". A positive is a positive. How high the numbers are on the test doesn't correlate to the severity of damage in the small intestine. Low numbers...
  11. knitty kitty
    @SargeMaximus, If you're still having digestive problems, you may want to reconsider the AIP diet. The beans and nuts are high in lectins that can be hard on the digestive system. There are some proteins in some foods that resemble gluten proteins. Casein in dairy, avenging in oats, rice protein, yeast and chicken meat. Are you keeping...
  12. knitty kitty
    @Tweaton, You'll want to stay on a gluten containing diet and get testing for antibodies typical of Celiac disease. If you eliminate gluten, your body will quit making antibodies and you'll get a false negative. If you eliminate gluten now and try to reintroduce it later, you may have more severe reactions to gluten as your body launches...
  13. knitty kitty
    @SargeMaximus, I prefer cashew butter, and walnuts, and pecans... I find almonds hard on my tummy.
  14. knitty kitty
    @SargeMaximus, Maybe switching it up with greens would be beneficial. Or eat beans and greens at the same meal. You'll get different vitamins and different kinds of fiber. Metal pillcases that can attach to a keyring are available online.
  15. knitty kitty
    @bookless, I developed Non-Alcoholic Fatty Liver Disease (NAFLD). NAFLD can be caused by Thiamine deficiency. My NAFLD resolved after supplementing with Thiamine Vitamin B 1. Anorexia and obesity can occur in Thiamine deficiency. I've experienced both at different points. In Thiamine deficiency, the body burns fat and muscle as...
  16. knitty kitty
    @MissTeaMuse, I stopped taking the PPI's because I got so sick from them. PPI's are sulfa drugs. A hypersensitivity to Sulfites and sulfa drugs is common in Celiac Disease. I have developed Type Four Hypersensitivity to Sulfa drugs. Being sensitive to perfumes, scented cleaning products, certain foods and other sulfa containing medications are symptoms...
  17. knitty kitty
    Welcome to the forum, @bookless!
  18. knitty kitty
    Welcome to the forum, @Bill K! Hello, @GfreeOH. I've had Mast Cell Activation Syndrome and Histamine Intolerance. I supplemented with Thiamine Vitamin B 1 (and the rest of the eight B vitamins and minerals). Thiamine helps keep Mast Cells from releasing their histamine (degranulation). Vitamin C and B12 help the body clear histamine. Metformin...
  19. knitty kitty
    @MissTeaMuse, Welcome to the forum! You have "HLA-DQA1*05 Positive" which is a gene for Celiac Disease. Your DGP antibody test is positive. These are positive test results for Celiac Disease. It may be a low risk, but it has happened. Terrible acid reflux is actually a symptom of low stomach acid, so taking PPI's further reduces stomach...
  20. knitty kitty
    @SargeMaximus, Yes, beans have enough fiber.
  21. knitty kitty
    @TB93, I think it was the potatoes. Potatoes and other nightshades (tomatoes, potatoes, eggplant, and peppers) contain alkaloids that promote "leaky gut" and inflammation. I get achy joints and swelling. My hands get so puffy and stuff I can't knit! I hope you feel better! Drink plenty of fluids. Vitamins C, B12, and Pyridoxine B6 can...
  22. knitty kitty
    @kab3706, Some younger people can have negative ttg-IgA, but be positive on DGP-IgA test. Were you eating gluten consistently in the two to three months before your blood tests? The tTg-IgA tests for antibodies to gluten. If you were gluten free, you would not have been making antibodies, and the test would give a false negative. Do you...
  23. knitty kitty
    @SargeMaximus, Cheers for eating gluten free! Are you getting enough fiber? Eat leafy greens. Collards, kale, mustard greens, turnip greens. Skip spinach, it's high in oxalates (which form kidney stones). Why not at lunch? If you're doing such physical work, keeping thiamine levels up would be beneficial. Glad you had a good day...
  24. knitty kitty
    Anemia not only affects red blood cell production, it can affect white blood cells and antibody production, too. A positive is a positive. I found this study... Antibodies against deamidated gliadin peptides identify adult coeliac disease patients negative for antibodies against endomysium and tissue transglutaminase https://pubmed...
  25. knitty kitty
    Pretty much, yes.
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