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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @lil rory, Welcome to the forum! I had to have my gallbladder removed in emergency surgery. It didn't relieve all of my digestive symptoms either. As my symptoms worsened, I began researching. (I'm a microbiologist.) I found many of my symptoms were a result of malnutrition, Thiamine Vitamin B1 in particular. Thiamine deficiency...
  2. knitty kitty
    @Rogol72, Strangely enough, no. I've not had a DH outbreak where I applied the iodine. I've not noticed any new breakouts after.
  3. knitty kitty
    @Voltage, You have had a difficult journey! My heart goes out to you. I understand having something wrong and not being able to find a solution. I went through similar symptoms that are now called POTS (Postural Orthostatic Tachycardia Syndrome). Symptoms include fainting and tachycardia, and anxiety in spades, too. What helped my POTS...
  4. knitty kitty
    That's what I do, too, @MiriamW! I use J. Crow's Lugol's Solution of Iodine 5% 1 oz Bottle. Since it's being absorbed through the skin into the surrounding tissues, I rub a few drops of iodine on my neck in the thyroid area.
  5. knitty kitty
    @sljak, welcome to the forum! If you had a regular soda sweetened with High Fructose Corn Syrup, you might have developed Fructose Malabsorption. This article explains fructose malabsorption well. Symptoms include gas and bloating. https://www.healthline.com/health/fructose-malabsorption Small Intestinal Bacterial Overgrowth...
  6. knitty kitty
    Do you want to talk about it? Sometimes a bear hug makes me feel better. Just having someone acknowledge that you're going through a tough time. With a bit of encouragement. So I'm sending a bear hug.
  7. knitty kitty
    I take Allithiamine, Benfotiamine, and Thiamine Hydrochloride. Ecological Formulas, Life Extension, and Thiamax are some brand names although there are others. Benefits from Thiamine Hydrochloride can be seen at 500-2000 mg. Allithiamine and Benfotiamine are fat soluble (they get into cells easily) and benefits can be seen at lower doses of...
  8. knitty kitty
    Hello! Good to hear from you again. I'm glad you got some results back. The pathology report about the biopsies should tell more. While things may look okay with the naked eye, the damage from Celiac can be microscopic. If laid out flat, the intestines cover an area the size of a tennis court. Areas of damage may be patchy or further down out...
  9. knitty kitty
    I haven't heard of that, but I'm familiar with thiamine's beneficial effects on mycotoxin production. Have you read this article? Effects of thiamine on growth, aflatoxin production, and aflr gene expression in A.parasiticus https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5490319/ Quoting the conclusion in part... "Based on the obtained...
  10. knitty kitty
    @movietime Hydroxychloroquine is one of many pharmaceuticals that shuts down thiamine transporters on cell surfaces, thus causing a functional thiamine deficiency despite normal blood levels of thiamine. Thiamine, Vitamin C and steroids have been used to help Covid patients. This study finds that thiamine and pyridoxine can bind to the...
  11. knitty kitty
    @SargeMaximus Keep us posted on your results! 😸
  12. knitty kitty
    Yes, they'll be fine. How are you doing?
  13. knitty kitty
    @Elwinfrost, I took copper supplements and my iron came up. 9 Signs and Symptoms of Copper Deficiency https://www.healthline.com/nutrition/copper-deficiency-symptoms Maybe you could talk to your doctor about supplementing copper.
  14. knitty kitty
    @Glutton3, These articles are very informative... Nutritional inadequacies of the gluten-free diet in both recently-diagnosed and long-term patients with coeliac disease https://pubmed.ncbi.nlm.nih.gov/23198728/ And... Gluten-Free Diet: Gaps and Needs for a Healthier Diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6357014/ ...
  15. knitty kitty
    @Arietti, I still miss "a proper cuppa" but my immune system recognizes dairy as gluten. The milk protein casein is similarly shaped the same as gluten, so anti-gluten antigens attack. I have oat milk ice cream and gluten free waffle cones by JOY for my "goodies". Another favorite is dates with dark chocolate. Check out @Maddie6332's...
  16. knitty kitty
    Eating a clove of garlic a day is good for other reasons, but there's not enough Allithiamine in one or several cloves to work like the Allithiamine and Benfotiamine supplements.
  17. knitty kitty
    @SargeMaximus, Only fresh pineapple has Betaine Hydrochloride. But Betaine Hydrochloride capsules are available over the counter. Betaine Hydrochloride is a digestive enzyme that is helpful for those with low stomach acid. Gerd is a symptom of low stomach acid.
  18. knitty kitty
    @Liquid lunch, It's a blessing to me that you and your family are going to try Thiamine! I'm glad you found a link to the Allithiamine. Do be aware that Allithiamine is made from garlic, a member of the Allium family of plants. Sometimes there's an essence of garlic if one takes a very high dose. It's not bothersome to me. It fades away as...
  19. knitty kitty
    Breads are a source of vitamins that may have helped your brain function. But the inflammation and long term damage it causes in Celiacs isn't worth it. That's why taking essential vitamins and minerals when you go gluten free is important, especially while healing. Even people who have been on the gluten free diet for a long time can develop...
  20. knitty kitty
    @SargeMaximus, In a way, yes. Thiamine and other vitamins are needed to make digestive enzymes, enzymes that break down complex carbohydrates into simple sugars like glucose. The heavier the carbohydrate load, the more Thiamine is required. Glucose can go through the intestinal wall and get into the blood stream. In the brain, glucose stimulates...
  21. knitty kitty
    @SargeMaximus, I'm glad you found it! Yes, any thiamine will help heal. Benfotiamine has been studied and shown to heal the intestinal tract. Benfotiamine can enter cells easily without going through the Thiamine transporters (doorways). Thiamine Hydrochloride has to go through the transporters to get into the cells. If there's a high...
  22. knitty kitty
    Hi, @Maddie6332! These are my favorite cookies right now...they have oats, so beware if you are sensitive to oats. https://partakefoods.com/products/birthday-cake-cookies P.S. Unfortunately, I haven't had time to try your recipe for Chocolate Chip Pumpkin Muffins yet. But I have all the ingredients waiting! I'm looking forward to making...
  23. knitty kitty
    @Glutton3, I like this article, written by a doctor with Hashimoto's, explaining how Thiamine (Vitamin B 1) can manifest as Hashimoto's. Thiamine is the vitamin that we can run out of quickly because we don't eat enough, can't absorb enough, or use up quickly like when we're stressed emotionally or physically. https://thyroidpharmacist.com...
  24. knitty kitty
    @Jackland79, I don't want to contradict your doctor's orders. I think clarification from the specialist doing the endoscopy is needed. If your doctor has let the specialist know it was recommended that you immediately start the gluten free diet, the specialist should take into account the amount of healing done in the gluten free time period. Your...
  25. knitty kitty
    @Xsmama, I understand how frustrating the diagnosis process is. Your doctors are correct in telling you to continue the gluten containing diet until the endoscopy. Healing in the small intestine can take place rapidly once gluten is removed. While some damage is visible without a microscope, the doctors need to take samples of the small intestine...
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