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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Charliexxx, Yes, I'm reading Dr. Lonsdale and Dr. Marrs' book "Thiamine Deficiency Disease, Disautonomia, and High Calorie Malnutrition". I got so ill so quickly from a gluten challenge, I opted for genetic testing. Hippocrates said "first do no harm" which is counterintuitive to doing a gluten challenge. He also said "let food be your...
  2. knitty kitty
    @Ida Oldford, Costochondritis can be caused by a deficiency in Thiamine Vitamin B 1. Weight loss, no appetite (anorexia), constipation, fatigue and pain are all classic symptoms of Thiamine deficiency. These are all symptoms I had when I was Thiamine deficient prior to my Celiac diagnosis. Since Thiamine deficiency is usually seen in alcoholics...
  3. knitty kitty
    @Rogol72, Yes, in some cases blepharitis can be caused by bacteria or even mites! Thiamine helps our bodies fight infections, including bacteria and mites. Benfotiamine has been shown to help with dry eyes and iritis, too. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2685466/
  4. knitty kitty
    @LaLeoLoca, Thiamine deficiency can manifest as Gerd. Gerd isn't a overproduction of digestive juices, Gerd is caused by an underproduction of digestive juices. Thiamine is needed to make digestive enzymes and for secretion of digestive juices. POTS is connected to thiamine deficiency. Many sufferers of long Covid are deficient in thiamine...
  5. knitty kitty
    @moleface, Have you been tested for any of the genes that code for Celiac Disease? Having a genetic test showing genes for Celiac is something doctors cannot argue with. Having the genes for Celiac and your symptoms on and off gluten are confirmation you have it. That's what I had to do because I had doctors of comparable abilities as your...
  6. knitty kitty
    Studies show low levels of Thiamine promote cancer cell growth. But High Dose Thiamine reduces the number of cancer cells. High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963161/ And... B-cell lymphoma, thiamine deficiency, and lactic acidosis ...
  7. knitty kitty
    There's some evidence that colonic polyps are produced in Thiamine deficiency. Haven't found any studies done yet on gallbladder polyps.
  8. knitty kitty
    @LaLeoLoca, Welcome to the forum! Thanks for joining us! I was in really sad shape prior to my Celiac diagnosis. I had lots of vitamin and mineral deficiencies. It took some time to get foods and supplements sorted. The diet that made the biggest difference to me is the Autoimmune Protocol Diet. Developed by Dr. Sarah Ballantyne, a Celiac...
  9. knitty kitty
    @Moomooandme13, I've had Gastrointestinal Beriberi. Gastrointestinal Beriberi causes the same symptoms you've described. Gastrointestinal Beriberi is a manifestation of Thiamine deficiency. The gallbladder gets sludgy and doesn't work well, the stomach doesn't produce enough acid (often misdiagnosed as too much acid hence your doctor prescribed...
  10. knitty kitty
    @Charliexxx, Hope you are feeling better. Gastroparesis or slowed transit time can be a symptom of Thiamine insufficiency, as can constipation. Thiamine helps keep SIBO in check. Tryptophan and Pyridoxine B6 are needed to make serotonin. Some people need methylcobalamine instead of regular B12. Having the MTHFR genetic variation...
  11. knitty kitty
    @Elwinfrost, Have you been checked for vitamin and mineral deficiencies? Checking for deficiencies are part of proper follow up care. Supplementing with vitamins and minerals while you are healing can be beneficial. Talk to your nuts to give you pointers on eating a nutrient dense diet. I had gallbladder problems before my Celiac diagnosis. ...
  12. knitty kitty
    @SargeMaximus, I eat Autoimmune Protocol Diet, shown scientifically to help heal the gastrointestinal tract. https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet Because the AIP diet can be deficient in certain micronutrients (as any gluten free diet can be), I take B vitamins, other vitamins and minerals. I take high...
  13. knitty kitty
    Thiamine, Vitamin B1, can help with your swollen lymph nodes. Thiamine and Niacin are partners. Niacin does helps with the Dermatitis Herpetiformis rash. Thiamine can help with swollen lymph nodes. Lymph glands use lots of Thiamine. Here's an article by Dr. Lonsdale who advocates high dose Thiamine. http://www.hormonesmatter...
  14. knitty kitty
    @Evan0529, I'm doing great now. Thanks for asking. I have taken a B 100 Complex. There's different brands and prices, so pick one that fits you. Make sure the vitamins are free from gluten. I have taken the eight B vitamins individually. It's just really what fits in with you. I personally don't like multivitamins because they...
  15. knitty kitty
    @AnyBunny94, Hello. Yes, it is difficult to make that mental adjustment to eating gluten free, as @itarachiu said. Keep in mind that gluten containing products are enriched with vitamins and minerals. Our bodies can crave foods for those vitamins and minerals. Most gluten free facsimile foods are not enriched with vitamins and minerals. ...
  16. knitty kitty
    @SargeMaximus, I hope you read this article. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ It explains how eating a diet with lots of carbohydrates requires more thiamine than is being consumed. Thiamine is needed to turn carbohydrates into energy. Without sufficient thiamine, our bodies burn fat and muscle for fuel for energy...
  17. knitty kitty
    Here's an article you can share with your doctor... Identification of Non-HLA Genes Associated with Celiac Disease and Country-Specific Differences in a Large, International Pediatric Cohort https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4807782/
  18. knitty kitty
    @Onemoreceliac, Was the genetic panel testing only for the presence of DQ 2 and/or DQ8 genes? Some genetic tests look for the presence or absence of these, the most common Celiac genes. But, there are other less common DQ genes that code for Celiac. You may want to have another genetic test to look for any of the variations for Celiac. The...
  19. knitty kitty
    @Dawn s D I agree with @Maddie6332. I believe you will feel much better once you go gluten free. I followed the Autoimmune Protocol Diet which has been scientifically shown to help reduce inflammation and promote healing in the gastrointestinal tract. This study shows how well the AIP diet works for Celiac, Crohns, and colitis. Efficacy...
  20. knitty kitty
    @Moomooandme13, Hi! I'm sorry you're feeling so poorly now. I developed thiamine deficiency before my diagnosis. Symptoms of thiamine deficiency include unintentional weight loss, loss of appetite, abdominal pain, constipation and diarrhea. I followed Dr. Lonsdale's high dose Thiamine supplementation for correcting thiamine deficiency. I had...
  21. knitty kitty
    @Fairy92, We're right there with you! Everything will be fine. Many people go through the stages of grief around the time of their diagnosis, so what you're feeling is normal. {{{HUGS!}}}
  22. knitty kitty
    @Beverage, Thanks for sharing! This is really interesting! I had to satisfy my curiosity and learn more, and found this... Lactobacilli Supplemented with Larch Arabinogalactan and Colostrum Stimulates an Immune Response towards Peripheral NK Activation and Gut Tolerance https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7352398/ I don't do...
  23. knitty kitty
    Hello! I have had skin problems caused by Celiac. I have dermatitis herpetiformis. I've also had hives and eczema. Hives can be caused by deficiencies in Vitamin B12 or iron. Even though you're gluten free, that doesn't mean you are eating and absorbing enough micronutrients. Eating a nutrient dense diet and supplementing with vitamins and...
  24. knitty kitty
    @Ronald Corrigall, Welcome to the forum! I was prescribed high blood pressure medications, but they made me very ill because I had developed Hypersensitivity Type Four to sulfa drugs. Blood pressure medications are frequently sulfa drugs, as are medications for diabetes, and diuretics. My Hypersensitivity Type Four causes an immune system...
  25. knitty kitty
    @Marissa221, Our bodies can handle a certain amount of histamine. We break it down with enzymes made from vitamins and minerals. But we can reach a point where our cup runs over, where we can't keep up. Like Lucy Ricardo in the chocolate factory. Once we reach the limit of our tolerance (a full cup), that's when digestive symptoms can start...
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