Worried

[Voltage]

Hello. I just had a pack of gluten free kievs. The packaging fell on the floor. Should be fine if i wipe the packaging down right?

[knitty kitty]

Yes, they'll be fine.  

How are you doing? 

Edited January 10, 2023 by knitty kitty
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[Voltage]

Not too great

[knitty kitty]

Do you want to talk about it?  

Sometimes a bear hug makes me feel better.  Just having someone acknowledge that you're going through a tough time.  With a bit of encouragement.

So I'm sending a bear hug.  

[Voltage]

12 hours ago, knitty kitty said:

Do you want to talk about it?  

Sometimes a bear hug makes me feel better.  Just having someone acknowledge that you're going through a tough time.  With a bit of encouragement.

So I'm sending a bear hug.  

What it is is that i was always holding my stomach ever since i was a kid and i never enjoyed food. I thought that maybe i was nervous and anxious and could never put on weight. I never had any gluten symptoms so my vili must have been completely damaged and was always breathing wrong. In 2019 one day after work my body gave up and i fell on the floor losing consciousness. Eventually lying in bed whilst curled up holding my stomach My heart rate went crazy to 200 per second. I had blood tests and doctors couldnt find anything wrong with why i wasn't breathing correctly i actually thought my life was coming to an end i thought i was going to die. So i guessed it might have been food as i was always holding my stomach how i wasn't diagnosed as a child with this ill never know. Since my panic attacks i tried all sorts of diets but i had to guess which ones. Ive been doing a gluten free diet since 2019 and have vastly improved. Im putting on weight heart rate back to somewhat normal and can get back on with my life somewhat. I used to still get panic attacks at night usually because ive eaten too much or too late and my villi cannot handle it. I can eat food again and i enjoy it but i still touch my stomach every now and then and am sweaty palms in the morning and after i eat. 

[knitty kitty]

@Voltage,

You have had a difficult journey!  My heart goes out to you.  I understand having something wrong and not being able to find a solution.  

I went through similar symptoms that are now called POTS (Postural Orthostatic Tachycardia Syndrome).  Symptoms include fainting and tachycardia, and anxiety in spades, too.  

What helped my POTS was making sure I was getting all the vitamins and minerals I needed.  Those damaged villi don't absorb nutrients very well, so I supplemented B Complex, Vitamin D, magnesium and extra Thiamine Vitamin B1.  I included nutrient dense foods like liver and grass fed beef.  

I'm leaving some articles about POTS and Thiamine.  

https://www.nhs.uk/conditions/postural-tachycardia-syndrome/

And...

https://www.hormonesmatter.com/thiamine-deficiency-causes-problems/

And...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

And...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/

 

I'm not a doctor, but this information has been helpful to me and I hope you will find it helpful, too.  Maybe this can give you a place to start a discussion with your doctor.  

Well done, @Voltage.  You've made such good progress!

[Voltage]

On 1/12/2023 at 5:55 PM, knitty kitty said:

@Voltage,

You have had a difficult journey!  My heart goes out to you.  I understand having something wrong and not being able to find a solution.  

I went through similar symptoms that are now called POTS (Postural Orthostatic Tachycardia Syndrome).  Symptoms include fainting and tachycardia, and anxiety in spades, too.  

What helped my POTS was making sure I was getting all the vitamins and minerals I needed.  Those damaged villi don't absorb nutrients very well, so I supplemented B Complex, Vitamin D, magnesium and extra Thiamine Vitamin B1.  I included nutrient dense foods like liver and grass fed beef.  

I'm leaving some articles about POTS and Thiamine.  

https://www.nhs.uk/conditions/postural-tachycardia-syndrome/

And...

https://www.hormonesmatter.com/thiamine-deficiency-causes-problems/

And...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

And...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/

 

I'm not a doctor, but this information has been helpful to me and I hope you will find it helpful, too.  Maybe this can give you a place to start a discussion with your doctor.  

Well done, @Voltage.  You've made such good progress!

One thing i struggle with is preparing my food while other people are about. Is it even possible for my food to be contaminated by people walking past my food. Stupid question i know.

[knitty kitty]

@Voltage,

No, it's not a stupid question. 

It's doubtful that people walking by would contaminate your food.  

What sort of situation is it?  Shared break room at work? Shared household?  

 

[Voltage]

On 1/21/2023 at 8:10 AM, knitty kitty said:

@Voltage,

No, it's not a stupid question. 

It's doubtful that people walking by would contaminate your food.  

What sort of situation is it?  Shared break room at work? Shared household?  

 

What if someone was to dust pan and brush the floor and i were to walk out a minute later. Should i wait for it to settle can i even breathe in gluten that way.

[Russ H]

2 hours ago, Voltage said:

What if someone was to dust pan and brush the floor and i were to walk out a minute later. Should i wait for it to settle can i even breathe in gluten that way.

I doubt you would ingest much that way unless someone had dropped a bag of flour and the air was full of it. The generally accepted safe level for most people is 10 mg of gluten per day for regular exposure. This is equivalent to 100 mg of wheat flour, or a piece of bread the size of a small pea. Most people start to show a reaction when regularly ingesting 3 to 5 times this amount.