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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @John117, Do you have a problem with soy? Some do. It's in your vitamin supplement. Seems fine. Still, you might try high dose Thiamine (Benfotiamine 100 mg with each meal) and see if it helps. Thiamine is nontoxic and water soluble, so no harm to try. Yes, Thiamine insufficiency can wax and wane for years. Symptoms fluctuate with dietary...
  2. knitty kitty
    Hi! @T burd, I found this article that says antihistone antibodies are found in Celiac Disease. Are there different or specific ones for Celiac and Lupus? High Frequency of Extractable Nuclear Autoantibodies in Wheat-Related Disorders https://pubmed.ncbi.nlm.nih.gov/29977112/ HCQ, hydroxychloroquine, causes thiamine deficiency...
  3. knitty kitty
    What is in your 3x day multivitamin? I'm curious about the ingredients and the forms of the vitamins in there and the amounts. Can you post a picture of the label or a link? Which antidepressants are you taking? Any other meds? Supplements? Can you ask your doctor about Gastrointestinal Beriberi? Thiamine deficiency can cause gastrointestinal...
  4. knitty kitty
    Which meds are you on that cause no appetite? Some medications can interfere with vitamin absorption. Check out Mast Cell Activation Syndrome. In Celiac disease mast cells multiply and become hypersensitive and degranulate easily. Thiamine supplementation can help with mast cell regulation. Celiac people can become vitamin deficient easily...
  5. knitty kitty
    @Cramper, I do wish you would give another thought to thiamine deficiency as Gastrointestinal Beriberi, and as a means to help your liver. see... Impact of thiamine supplementation in the reversal of ethanol induced toxicity in rats https://pubmed.ncbi.nlm.nih.gov/24968580/ And... The effects of thiamine and thiamine pyrophosphate...
  6. knitty kitty
    Welcome to the forum, @Meg80! Would you give us an idea of what type of foods you eat? Do you eat processed gluten free facsimile foods? Whole foods? What type of exercise do you do? How often? Intensity? When was the last time you got glutened? What do you think was cross contaminated that made you sick?
  7. knitty kitty
    The itchy rash may be Dermatitis Herpetiformis. If you have DH, you have Celiac Disease. A dermatologist can take a biopsy NEXT TO an ACTIVE spot. A dermatologist experienced with DH would be great. DH has been helped by Niacin Vitamin B 3. I have DH, but it's not active. A genetic test looks at your DNA for Celiac genes. Celiac Disease is hereditary...
  8. knitty kitty
    Keep us posted on your progress!
  9. knitty kitty
    @Gamma, I've taken gabapentin prior to vitamin supplementation and it didn't give me much relief. I was given gabapentin after a painful injury while supplementing with B Complex vitamins and Thiamine, and gabapentin worked much better. There's evidence supplementing with vitamins while taking gabapentin is better at nerve pain relief....
  10. knitty kitty
    Some Celiacs react to rice and corn as though it were gluten. The Autoimmune Paleo Protocol diet is scientifically proven to help with healing. This diet cuts out all grains, dairy, legumes and nightshades for several weeks. When feeling better, check for reactions after adding one item back to diet. Keeping a food/mood/poo'd journal can help...
  11. knitty kitty
    Yes, I'm very familiar with physicians' attitudes when they are baffled. You may do better getting a referral to a nutritionist or dietician who is familiar with Celiac Disease. That's like a needle in a haystack, though. Or educate yourself here at the forum. Experience is the best teacher. Keep us posted on your progress!
  12. knitty kitty
    @Gamma, Doctors are trained in medical learning institutions that are funded by pharmaceutical companies. Doctors are trained to prescribe pharmaceuticals. One doctor told me he could not make money prescribing vitamins so refused to test for vitamin and mineral deficiencies even though my Vitamin D level was in the single digits. And he only...
  13. knitty kitty
    Ask your doctor about Mast Cell Activation Syndrome. Coeliac Disease and Mast Cells https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6678566/#!po=40.1515
  14. knitty kitty
    @Ginger38, Look into Mast Cell Activation Syndrome. Mast cells are part of the immune system that goes haywire in Celiac Disease. Mast cells multiply out of control and react to more and more things in Celiac Disease. Mast Cells release histamine which is inflammatory. Your mast cells are releasing histamine in response to any stimulation....
  15. knitty kitty
    Hello, @Gamma, Athletes need more Thiamine, magnesium and other B vitamins to recover from exercise. Thiamine is needed to break down and clear lactic acid build up after exercise. Due to your Celiac Disease, you may not be absorbing sufficient amounts of vitamins and minerals. Blood tests levels don't accurately reflect vitamin status as most...
  16. knitty kitty
    Good to hear from you, @Laoshi. This article explains how different varieties of wheat can have differing inflammation effects. Bread and Other Edible Agents of Mental Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4809873/#!po=18.0556
  17. knitty kitty
    @Mapampmfp, Would your doctor do a genetic test for the most common Celiac genes? Your rash could be Dermatitis Herpetiformis. A biopsy positive for DH would confirm Celiac Disease. Have you been checked for Mast Cell Activation Syndrome? Vitamin deficiencies? Deficiency in Vitamin C can cause dermatographia. Deficiency in B12 can...
  18. knitty kitty
    Recent research has found that Ttg6 antibodies are present in ataxia. Ttg6 antibodies are produced when gluten is present. Ttg2 is tested for Celiac Disease. Some people make both Ttg2 and Ttg6. Further reading..... Neurological manifestation of coeliac disease with particular emphasis on gluten ataxia and immunological injury:...
  19. knitty kitty
    Just checking. You do know that Celiac is not an allergy, right? You can have Celiac and a wheat/grass allergy both, but they are two different reactions.
  20. knitty kitty
    @Brent22, You said in a previous post... "...although the immunologist was able to help get my digestion under control, interesting that the gastro couldn't..." Could you explain more about this? What did the gastro do? What did the immunologist do? You said you tested negative on Celiac tests. Which tests were run. Thiamine deficiency...
  21. knitty kitty
    What did the rest of the test say? @frieze is correct. It's apples and oranges. IgE is for allergic reactions. Celiac Disease causes different antibodies to be produced, IgG, IgA, Dgp.
  22. knitty kitty
    It's simply that the levels of antibodies against gluten have dropped because you were on a gluten free diet. Some of the cells that produce the antibodies have died off. Continued exposure to gluten will cause more antibody producing cells to mature and start producing massive amounts of antibodies again. It does take the body a little while to launch...
  23. knitty kitty
    B12 can be stored in the liver for a couple of years. B12 deficiency symptoms can occur before there's a change in blood levels. If B12 is ok, that doesn't mean that you are not low in the other B vitamins. There are eight B vitamins. They all work together. In Thiamine deficiency, the Thiamine transporters are switched off. To get Thiamine...
  24. knitty kitty
    It is Celiac related. It vitamin and mineral deficiencies from malabsorption due to Celiac. Deficiencies in Thiamine and magnesium and B12 can cause urgency and frequency problems with the bladder. Constipation (or diarrhea) can be a symptom of Thiamine deficiency.
  25. knitty kitty
    Thiamine deficiency can cause hypotonia! Purkinje cells in the cerebellum are affected by thiamine deficiency. Thiamine Deficiency Increases Intrinsic Excitability of Mouse Cerebellar Purkinje Cells https://pubmed.ncbi.nlm.nih.gov/33098550/ "We conclude that thiamine deficiency causes significant but reversible changes to the electrophysiology...
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