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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Nausea and fatigue almost all day
knitty kitty replied to itarachiu's topic in Related Issues & Disorders
@itarachiu, You can set a good example for him. He will notice how your health improves as you heal while eating a healthy diet. Look into the Autoimmune Protocol Diet (AIP diet). https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet I followed this diet and it has really helped. You'll feel better soon. Choose low... -
Loss of Appetite, Tiredness & Anxiety
knitty kitty replied to Kristin441's topic in Related Issues & Disorders
Best@Kristin441, Welcome to the forum! I experienced the no appetite, fatigue, anxiety and nausea. These are all symptoms of thiamine (Vitamin B1) deficiency. Blood tests for Thiamine are not always accurate. Gluten containing flours are required to be enriched with vitamins and minerals, however gluten free facsimile foods are not required... -
NEW TO CELIAC DISEASE
knitty kitty replied to Slayxbella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@Slayxbella, Welcome to the forum! Here's a link to Gliadin X. https://www.gliadinx.com/?ref=gFe06sbd2VHY It's available on Amazon. -
@ACEed, Welcome to the forum! My heart goes out to you. I do believe you. I've had the same struggle. And I know how painful not being believed can be. {{{Hugs}}} We believe you here. What helped me was learning that gluten products are enriched with the vitamins and minerals that my body was craving. Celiacs have trouble absorbing...
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Nausea and fatigue almost all day
knitty kitty replied to itarachiu's topic in Related Issues & Disorders
@itarachiu, I understand. My parents were stuck in their ways, too. I was prescribed Metformin for my diabetes. Metformin causes thiamine and folate deficiencies because Metformin blocks the transporters that carry thiamine and folate into the cells. Do encourage your father talk to his doctor about supplementing with a B Complex and Thiamine... -
Home testing help - new here!
knitty kitty replied to DC98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @DC98! You may be deficient in all eight B vitamins. Celiac Disease damages the small intestine where most of the vitamins are absorbed. The rash under your nose is indicative of Riboflavin B2 deficiency. I had this myself. Thiamine B1 in the form Benfotiamine will help you feel less fatigued and help with your... -
Bluebonnet MultiOne
knitty kitty replied to Lotte18's topic in Gluten-Free Foods, Products, Shopping & Medications
It has soybeans. Do you have a problem with soybeans? Some Celiacs have to avoid them. It also has thiamine mononitrate which is not a bioavailable form of thiamine. Get additional thiamine as Benfotiamine. It helps heal the digestive tract. -
@Chance, Welcome to the forum! Have you been checked for vitamin and mineral deficiencies? Since Celiac Disease affects the absorption of micronutrients (vitamins and minerals), correcting deficiencies is a priority. Discuss with your doctor or nutritionist the benefits of the Autoimmune Protocol Diet. The AIP diet has been shown...
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Is Coffee Gluten-Free?
knitty kitty commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
Well, this was decades ago, before the new nutritional and ingredient information labeling requirements.- 7 comments
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- celiac disease
- coffee
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Nausea and fatigue almost all day
knitty kitty replied to itarachiu's topic in Related Issues & Disorders
Covid can deplete your Thiamine stores and cause a deficiency. Be well: A potential role for vitamin B in COVID-19 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/ And... https://www.hormonesmatter.com/recovering-from-long-covid-with-thiamine/ Another symptom of low Thiamine is constipation, IBS, leaky gut... https... -
Years of exhaustion/stomach pain
knitty kitty replied to Brightstar101's topic in Coping with Celiac Disease
Yes, your body can crave foods that contain the micronutrients your body is low in. This can be a problem with some Celiacs because their bodies can crave gluten containing products. Remember that wheat and other gluten containing grains are Required by law to be enriched with vitamins and minerals lost in processing. Bread manufacturers have... -
Nausea and fatigue almost all day
knitty kitty replied to itarachiu's topic in Related Issues & Disorders
Great! If at all possible, try a form of thiamine called Benfotiamine or Thiamax. https://www.objectivenutrients.com/products/thiamax/ Keep us posted on your progress! -
Alt and ast levels?
knitty kitty replied to Conner's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You may want to talk to your doctor about supplementing with thiamine. My non alcoholic fatty liver disease resolved after I supplemented with high dose thiamine. Thiamine is essential for making liver enzymes. High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://www.ncbi.nlm... -
Is Coffee Gluten-Free?
knitty kitty commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
In instant coffee, especially flavored ones, sometimes wheat is added along with the flavorings. Same as spices having added wheat as a filler and to prevent clumping. I had to quit buying International flavored coffees because of this. Plain unflavored coffees should be fine.- 7 comments
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Nausea and fatigue almost all day
knitty kitty replied to itarachiu's topic in Related Issues & Disorders
Try the Autoimmune Protocol diet. Following this diet helps intestines heal. Read more about it here... https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet Please consider supplementing with Benfotiamine. The problems with your glucose and your blood pressure dropping suddenly so you faint, and the problem with spinach... -
Nausea and fatigue almost all day
knitty kitty replied to itarachiu's topic in Related Issues & Disorders
@itarachiu, Have you been checked for diabetes? Your reactions after eating are similar to my reaction of high blood glucose. Panic attacks can occur if blood glucose levels stay high for too long. Are you keeping a food journal? Writing down what you eat and the quantity could help a nutritionist evaluate your diet. Vitamin deficiencies can... -
Niacin B3 helps calm the outbreaks, too. You may want to discuss with your doctor the benefits of supplementing with a B Complex, Vitamin C and minerals while you are healing. Avoid high iodine foods like dairy, crustaceans and seafood, and iodized salt and sea salt. Use pink Himalayan salt instead. I have two cats that I changed to grain free...
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@marcel g, How are you doing? I must apologize. I have somehow missed reading your last post until now. You said "Weirdly, I did feel like I had a bit more physical energy..." This is a positive response to thiamine supplementation! I do hope you will reconsider supplementing with thiamine for a longer period of time. Some people...
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Scott Adams' Story of His Diagnosis of Celiac Disease
knitty kitty commented on Scott Adams's article in Diagnosis, Testing & Treatment
Thiamine. Nausea is another symptom of thiamine insufficiency. Try 100 mg with meals.- 173 comments
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Years of exhaustion/stomach pain
knitty kitty replied to Brightstar101's topic in Coping with Celiac Disease
@Brightstar101, Are you taking any other vitamins? B12 needs the other B vitamins to work properly. There's eight water soluble B vitamins. B12 needs folate B9, pyridoxine B6, riboflavin B2, niacin B3 and thiamine B1. Taking just one B vitamin can throw the others out of whack. Taking a B Complex supplement along with B12 shots would... -
Lab results
knitty kitty replied to cnazrael89's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm saying you need to talk to your GI. You said he was going to check for deficiencies after your EGD. Ask him about Wet Beriberi. Read the symptoms and more about Wet Beriberi, page 7 https://www.ncbi.nlm.nih.gov/books/NBK537204/ If your symptoms are similar to the description, you make the decision of what you want to do next. I... -
Lab results
knitty kitty replied to cnazrael89's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@cnazrael89, I'm concerned about the edema. That can be a sign of thiamine insufficiency. It's so high up your leg! Since you have increased your gluten consumption, your body may be running out of thiamine. Dr. Derek Lonsdale has researched thiamine and says that the body's requirement for Thiamine increases with the amount of carbohydrates... -
Hello, @Jimmy123, There's been a few discussions on other threads about shared kitchens and cross contamination. NonCeliacs putting the knife they've used to smear mayo on their gluteny bread back in the jar, thus contaminating the whole jar? Has something happened to you that prompted the question? Can you elaborate?
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Top Brands of Gluten-Free Refried Beans
knitty kitty commented on Scott Adams's article in Gluten-Free Foods & Beverages
I haven't had a problem with Kroger store brand.- 9 comments
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I believe I have this! Serology tests all negative
knitty kitty replied to Hb333's topic in Dermatitis Herpetiformis
@Hb333, I have DH, negative serology and type two diabetes. Diabetes, anemia and vitamin deficiencies can cause negative serology. DH is pressure sensitive. It often forms under bra straps, under elastic bands (underwear, waistband), where seams of clothing presses on skin. Elbows and knees can get lots of pressure, but DH can occur anywhere...