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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Blood tests can be false negatives if not enough gluten was eaten for a long enough duration prior to testing. Damage typically seen in Celiac Disease can easily be missed due to the size of the small intestine (the size of a tennis court if laid out flat) and the patchiness of the damage. Some damage is out of the reach of endoscope. Some damage can...
  2. knitty kitty
    I have had my gallbladder removed. I have autoimmune gastritis. I have Type Two Diabetes. I have hashimotos thyroiditis. I lost sixty pounds in six weeks due to my GI issues. I'm not harassing. I'm educating. Show us the results of your tests for Celiac Disease testing.
  3. knitty kitty
    I had genetic testing for Celiac Disease because I got so ill consuming gluten. Many doctors are capable of doing genetic testing. There's genetic test kits done through the mail. I do have brain health issues. I was so deficient in certain vitamins and minerals I developed ataxia and Wernicke's Encephalopathy. Yes, my vitamin deficiency...
  4. knitty kitty
    I was saying in my post that you're in denial about having Celiac Disease.
  5. knitty kitty
    @EileenB1022, If you were tested three times this year and were not consuming enough gluten to produce antibodies, the tests would have shown False Negatives.
  6. knitty kitty
    @EileenB1022, How do you know you don't have Celiac Disease? Have you had genetic testing done? Have you had antibody tests done? Help me understand why you are certain you don't have Celiac Disease.
  7. knitty kitty
    Mucosal reactivity to cow's milk protein in coeliac disease https://pubmed.ncbi.nlm.nih.gov/17302893/
  8. knitty kitty
    @EileenB1022, Welcome to the forum! We're very familiar with Celiac Disease and the various health conditions that can occur with it. It takes ten years or longer for some of us to be properly diagnosed because Celiac Disease can cause so many effects on different organs and body systems. We Celiacs have wasted precious years of our lives...
  9. knitty kitty
    @Termite, Welcome to the forum! If you can't tolerate the eight weeks of gluten challenge for testing of antibodies against gluten in the blood as @trents mentioned, testing for any genes for Celiac Disease and positive response on a gluten free diet may be taken as a diagnosis for Celiac Disease by some doctors. Keep us posted on your progress...
  10. knitty kitty
    @itarachiu, Welcome to the forum! I have a problem with nightshades, a group of plants that contains glycoalkaloids that can cause inflammation and promote autoimmune responses. Whether I eat them or smoke tobacco, nightshades cause symptoms like you describe. I've had to cut out all nightshades from my diet and quit smoking. Like @Wheatwacked said...
  11. knitty kitty
    I take Thiamine at the beginning of meals and magnesium after the meal. And I do take Magnesium at bedtime with tryptophan (a form of Niacin Vitamin B3 that is required for those feel good neurotransmitters serotonin and dopamine, and helps heal the intestines) and Pyridoxine Vitamin B6 which works with Thiamine to heal the nerves and helps with relaxation...
  12. knitty kitty
    Have you tried a magnesium citrate supplement? Magnesium helps muscles relax. And magnesium is a catalyst for Thiamine. As you may have noted in the studies I posted, higher than RDA amounts of Thiamine are needed to help in an insufficiency or deficiency of Thiamine (500 mg or more). Thiamine Hydrochloride, Allithiamine and Benfotiamine are beneficial...
  13. knitty kitty
    @Chris91, It would be a good idea to get proper Celiac testing done, like @trents suggests. You could be doing serious damage to your long term health. Some scientific studies are suggesting that NCGS symptoms may be preliminary to Celiac Disease in some people. Genetic testing or antibody testing after gluten challenge would be beneficial. Malabsorption...
  14. knitty kitty
    Remember that processed gluten free facsimile foods are not required to be enriched with vitamins and minerals like their gluten containing counterparts. We need the Eight Essential B Vitamins to turn our carbs and fats into energy and enzymes so our bodies work properly. Consider supplementing with a gluten free B Complex and magnesium citrate. ...
  15. knitty kitty
    @Rogol72, So happy to hear the Thiamine HCL is working for you! 🐱 Isn't is amazing how quickly the benefits appear! Benfotiamine will have amazing results, too! Life Extension, Dr.'s Best and Country Life are brands that are available here in the U.S.. I hope you can find one of those. Be sure to check the amount of Benfotiamine in...
  16. knitty kitty
    Arsenic binds with Thiamine Vitamin B1. Arsenic binds with Thiamine making that thiamine unavailable for the body to use. Arsenic can bind so much Thiamine that Arsenic can precipitate a Thiamine deficiency. If you eat rice, make sure you take thiamine, whether from food sources like meat and liver or from supplements like thiamine hydrochloride...
  17. knitty kitty
    @FunShine, Celiac Disease damages the small intestine where vitamins and minerals are absorbed. This leads to malnutrition and vitamin and mineral deficiencies. It's rare to have a deficiency in just one vitamin or mineral. There's usually deficiencies across the board. One of the first vitamins to become deficient is Thiamine Vitamin B1 because...
  18. knitty kitty
    Thiamine deficiency can result in Non-Alcoholic Fatty Liver Disease! High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7988776/
  19. knitty kitty
    @nimzabo, I thought you might be interested in these articles.... Seems your medicine might be causing side effects... https://medlineplus.gov/druginfo/meds/a600014.html And... Asthma Medication’s Horrific Side Effects: Montelukast, Depression and Psychosis https://www.hormonesmatter.com/asthma-medications-horrific-side-effects-m...
  20. knitty kitty
    @Rogol72, Yes! Mast Cell Activation Syndrome is found in Celiac Disease! Coeliac Disease and Mast Cells https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6678566/ And... Mast cells are associated with the onset and progression of celiac disease https://pubmed.ncbi.nlm.nih.gov/27619824/ And... Thiamine has been scientifically...
  21. knitty kitty
    Niacin in the form of nicotinic acid will cause vasodilation. Vasodilation is when your blood vessels expand allowing for more blood flow. Histamine is released as part of the vasodilation process. It's a normal body process to release histamine as a signal for certain things to happen. Our bodies make and break down histamine constantly. We can...
  22. knitty kitty
    Welcome back, @Ellawells, Calcium often causes constipation. Some over the counter calcium supplements have propylene glycol (Fleet - the stuff taken before colonoscopy to flush out the bowels) added in. When Calcium is supplemented, magnesium should be supplemented as well. They should be taken in a 2:1 ratio, twice as much calcium as magnesium...
  23. knitty kitty
    @UncleBen, @trents is on the right track. Some people are highly sensitive to the least amount of gluten contamination on the inside. Not so much on the outside (on the skin). Throwing away the doll was probably a bit over the top. If you feel so badly for its loss, ask a local quilters group or a sewist on Etsy to recreate one for your niece...
  24. knitty kitty
    @Sergey I believe the amino acid L-tryptophan is far more beneficial for intestinal healing. Tryptophan (along with B6 Pyridoxine and magnesium citrate) help down regulate inflammation and promote healing. Glutamine, found in meat in the diet and recycled from what glutamine the body already contains, can be made into glutamate in the body. Glutamate...
  25. knitty kitty
    Keep a journal of what you eat and the time you eat, what kind of bowel movements you have and when, and how you feel emotionally. Dairy makes me terribly depressed. And I get diarrhea with dairy. A day or two later I get dermatitis. Keeping my food/mood/poo'd journal helped me become aware of the connection. The Autoimmune Protocol Diet ...
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