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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Myki, Have you looked into Small Intestinal Bacterial Overgrowth (SIBO)? Besides dairy and PPI's, SIBO can cause continuing symptoms. I adopted the AutoImmune Protocol Diet (AIP diet), and after a few days my symptoms began to improve. I also lost weight which was water weight from bloated intestines. Do get checked for vitamin and...
  2. knitty kitty
    Welcome to the forum, @Nickkk! Yes, yes, and yes. Genetic testing can determine whether you carry any of the genes that code for Celiac Disease. Your genes don't change, so no gluten challenge is needed. The most common genes for Celiac are DQ 2 and DQ 8, although there are other less common ones out there. Swollen lymph nodes in the neck...
  3. knitty kitty
    The high iron levels could be connected to hemachromatosis. Perhaps discuss this possibility with your doctor. Here's an article... Hope this helps.
  4. knitty kitty
    @Meghan255, Welcome to the forum! Could you please tell us what you include in your diet? Do you include dairy? Do you eat Gluten free facsimile foods (cookies, bread, processed packaged foods)? Do you eat nightshades (tomatoes, potatoes, eggplant, and peppers)? Are you vegetarian? Thanks!
  5. knitty kitty
    Get a genetic test. You can't have Celiac Disease without having the genes. Genes don't change and you don't have to eat gluten. The most common Celiac genes are DQ 2 and DQ 8. There are others that occur less frequently. I've often wondered what happened to that part of the Hippocratic oath that says "first do no harm."
  6. knitty kitty
    @Conniem, Welcome to the forum! The rash may flare again if gluten is consumed. Iodine (as in salt, dairy, and shellfish) can cause DH flares. Yes, the DH can fade and flare for weeks after an exposure to gluten. Genetic testing for Celiac genes might be more conclusive. People who have DH can test negative on Celiac blood tests...
  7. knitty kitty
    @Gillianannpansan, Welcome to the forum! Our bodies make antibodies against gluten (and casein the protein in dairy) as long as we are consuming it. Where we stop consuming gluten, our bodies stop making the antibodies. So having a blood test for gluten antibodies after you stopped eating gluten will more than likely be negative. You...
  8. knitty kitty
    @Tracy414, Welcome! I have DH and I've had serionegative test results. I found this article in my researching and thought you would be interested. It's from 2019. Dermatitis Herpetiformis: Novel Perspectives https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6579917/ "...recent evidence suggested that DH is changing. Firstly, some studies...
  9. knitty kitty
    @Brook-lyn, I decided to use unscented laundry detergent, no dryer sheets or fabric softeners that leave scents on clothes, no perfumed body washes or hand soap. I used to get so sick to my stomach (and a migraine) walking by the perfume and cosmetics counters in stores. Some people's homes I've visited have been intolerable because the air ...
  10. knitty kitty
    @Brook-lyn, Welcome to the forum! Do any of these homes visited use automatic scent dispensers? I have gotten sick from plug in air fresheners, heavy perfumes, some deodorants, scented candles, etc. It has to do with a hypersensitivity to Sulfites which are used in perfumes and scents, and some medications. Some Celiacs develop this hypersensitivity...
  11. knitty kitty
    Not eating enough gluten prior to antibody testing will not give accurate results. Hyperplasia is found in Celiac Disease. Autoimmune gastritis is a common finding in Celiac Disease.
  12. knitty kitty
    Just wanted to add for future reference that anemia, like pernicious anemia, iron deficiency anemia, B12 deficiency anemia, affects not only red blood cell production but also affects white blood cell production. White blood cells include antibodies like antibodies against gluten. So having anemia can result in false negatives on blood tests for Celiac...
  13. knitty kitty
    It's recommended that gluten be included in the diet for a minimum of two weeks before endoscopy, and eight weeks before blood antibody tests for Celiac Disease. Yes, a few weeks off of gluten can cause false negatives on testing.
  14. knitty kitty
    This is a site for Celiac Disease and related problems. We are trying to educate others about how Celiac can overlap and affect other autoimmune diseases and overall health. If you want to close your mind to the facts, that's your choice and you get to deal with the consequences. Name calling is not necessary.
  15. knitty kitty
    Blood tests can be false negatives if not enough gluten was eaten for a long enough duration prior to testing. Damage typically seen in Celiac Disease can easily be missed due to the size of the small intestine (the size of a tennis court if laid out flat) and the patchiness of the damage. Some damage is out of the reach of endoscope. Some damage can...
  16. knitty kitty
    I have had my gallbladder removed. I have autoimmune gastritis. I have Type Two Diabetes. I have hashimotos thyroiditis. I lost sixty pounds in six weeks due to my GI issues. I'm not harassing. I'm educating. Show us the results of your tests for Celiac Disease testing.
  17. knitty kitty
    I had genetic testing for Celiac Disease because I got so ill consuming gluten. Many doctors are capable of doing genetic testing. There's genetic test kits done through the mail. I do have brain health issues. I was so deficient in certain vitamins and minerals I developed ataxia and Wernicke's Encephalopathy. Yes, my vitamin deficiency...
  18. knitty kitty
    I was saying in my post that you're in denial about having Celiac Disease.
  19. knitty kitty
    @EileenB1022, If you were tested three times this year and were not consuming enough gluten to produce antibodies, the tests would have shown False Negatives.
  20. knitty kitty
    @EileenB1022, How do you know you don't have Celiac Disease? Have you had genetic testing done? Have you had antibody tests done? Help me understand why you are certain you don't have Celiac Disease.
  21. knitty kitty
    Mucosal reactivity to cow's milk protein in coeliac disease https://pubmed.ncbi.nlm.nih.gov/17302893/
  22. knitty kitty
    @EileenB1022, Welcome to the forum! We're very familiar with Celiac Disease and the various health conditions that can occur with it. It takes ten years or longer for some of us to be properly diagnosed because Celiac Disease can cause so many effects on different organs and body systems. We Celiacs have wasted precious years of our lives...
  23. knitty kitty
    @Termite, Welcome to the forum! If you can't tolerate the eight weeks of gluten challenge for testing of antibodies against gluten in the blood as @trents mentioned, testing for any genes for Celiac Disease and positive response on a gluten free diet may be taken as a diagnosis for Celiac Disease by some doctors. Keep us posted on your progress...
  24. knitty kitty
    @itarachiu, Welcome to the forum! I have a problem with nightshades, a group of plants that contains glycoalkaloids that can cause inflammation and promote autoimmune responses. Whether I eat them or smoke tobacco, nightshades cause symptoms like you describe. I've had to cut out all nightshades from my diet and quit smoking. Like @Wheatwacked said...
  25. knitty kitty
    I take Thiamine at the beginning of meals and magnesium after the meal. And I do take Magnesium at bedtime with tryptophan (a form of Niacin Vitamin B3 that is required for those feel good neurotransmitters serotonin and dopamine, and helps heal the intestines) and Pyridoxine Vitamin B6 which works with Thiamine to heal the nerves and helps with relaxation...
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