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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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looking to go gluten and dairy free
knitty kitty replied to EileenB1022's topic in Related Issues & Disorders
I was saying in my post that you're in denial about having Celiac Disease. -
looking to go gluten and dairy free
knitty kitty replied to EileenB1022's topic in Related Issues & Disorders
@EileenB1022, If you were tested three times this year and were not consuming enough gluten to produce antibodies, the tests would have shown False Negatives. -
looking to go gluten and dairy free
knitty kitty replied to EileenB1022's topic in Related Issues & Disorders
@EileenB1022, How do you know you don't have Celiac Disease? Have you had genetic testing done? Have you had antibody tests done? Help me understand why you are certain you don't have Celiac Disease. -
Mucosal reactivity to cow's milk protein in coeliac disease https://pubmed.ncbi.nlm.nih.gov/17302893/
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- advice needed
- test results interpretation
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looking to go gluten and dairy free
knitty kitty replied to EileenB1022's topic in Related Issues & Disorders
@EileenB1022, Welcome to the forum! We're very familiar with Celiac Disease and the various health conditions that can occur with it. It takes ten years or longer for some of us to be properly diagnosed because Celiac Disease can cause so many effects on different organs and body systems. We Celiacs have wasted precious years of our lives... -
@Termite, Welcome to the forum! If you can't tolerate the eight weeks of gluten challenge for testing of antibodies against gluten in the blood as @trents mentioned, testing for any genes for Celiac Disease and positive response on a gluten free diet may be taken as a diagnosis for Celiac Disease by some doctors. Keep us posted on your progress...
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Cigarettes have gluten?
knitty kitty replied to itarachiu's topic in Gluten-Free Foods, Products, Shopping & Medications
@itarachiu, Welcome to the forum! I have a problem with nightshades, a group of plants that contains glycoalkaloids that can cause inflammation and promote autoimmune responses. Whether I eat them or smoke tobacco, nightshades cause symptoms like you describe. I've had to cut out all nightshades from my diet and quit smoking. Like @Wheatwacked said... -
Histamine Intolerance after Gluten Challenge
knitty kitty replied to BushbabyLou's topic in Related Issues & Disorders
I take Thiamine at the beginning of meals and magnesium after the meal. And I do take Magnesium at bedtime with tryptophan (a form of Niacin Vitamin B3 that is required for those feel good neurotransmitters serotonin and dopamine, and helps heal the intestines) and Pyridoxine Vitamin B6 which works with Thiamine to heal the nerves and helps with relaxation...- 37 replies
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Have you tried a magnesium citrate supplement? Magnesium helps muscles relax. And magnesium is a catalyst for Thiamine. As you may have noted in the studies I posted, higher than RDA amounts of Thiamine are needed to help in an insufficiency or deficiency of Thiamine (500 mg or more). Thiamine Hydrochloride, Allithiamine and Benfotiamine are beneficial...
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@Chris91, It would be a good idea to get proper Celiac testing done, like @trents suggests. You could be doing serious damage to your long term health. Some scientific studies are suggesting that NCGS symptoms may be preliminary to Celiac Disease in some people. Genetic testing or antibody testing after gluten challenge would be beneficial. Malabsorption...
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Remember that processed gluten free facsimile foods are not required to be enriched with vitamins and minerals like their gluten containing counterparts. We need the Eight Essential B Vitamins to turn our carbs and fats into energy and enzymes so our bodies work properly. Consider supplementing with a gluten free B Complex and magnesium citrate. ...
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Histamine Intolerance after Gluten Challenge
knitty kitty replied to BushbabyLou's topic in Related Issues & Disorders
@Rogol72, So happy to hear the Thiamine HCL is working for you! 🐱 Isn't is amazing how quickly the benefits appear! Benfotiamine will have amazing results, too! Life Extension, Dr.'s Best and Country Life are brands that are available here in the U.S.. I hope you can find one of those. Be sure to check the amount of Benfotiamine in...- 37 replies
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Arsenic binds with Thiamine Vitamin B1. Arsenic binds with Thiamine making that thiamine unavailable for the body to use. Arsenic can bind so much Thiamine that Arsenic can precipitate a Thiamine deficiency. If you eat rice, make sure you take thiamine, whether from food sources like meat and liver or from supplements like thiamine hydrochloride...
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Are tics a symptom of Celiacs?
knitty kitty replied to FunShine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@FunShine, Celiac Disease damages the small intestine where vitamins and minerals are absorbed. This leads to malnutrition and vitamin and mineral deficiencies. It's rare to have a deficiency in just one vitamin or mineral. There's usually deficiencies across the board. One of the first vitamins to become deficient is Thiamine Vitamin B1 because... -
Thiamine deficiency can result in Non-Alcoholic Fatty Liver Disease! High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7988776/
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@nimzabo, I thought you might be interested in these articles.... Seems your medicine might be causing side effects... https://medlineplus.gov/druginfo/meds/a600014.html And... Asthma Medication’s Horrific Side Effects: Montelukast, Depression and Psychosis https://www.hormonesmatter.com/asthma-medications-horrific-side-effects-m...
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Histamine Intolerance after Gluten Challenge
knitty kitty replied to BushbabyLou's topic in Related Issues & Disorders
@Rogol72, Yes! Mast Cell Activation Syndrome is found in Celiac Disease! Coeliac Disease and Mast Cells https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6678566/ And... Mast cells are associated with the onset and progression of celiac disease https://pubmed.ncbi.nlm.nih.gov/27619824/ And... Thiamine has been scientifically...- 37 replies
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- dao
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Histamine Intolerance after Gluten Challenge
knitty kitty replied to BushbabyLou's topic in Related Issues & Disorders
Niacin in the form of nicotinic acid will cause vasodilation. Vasodilation is when your blood vessels expand allowing for more blood flow. Histamine is released as part of the vasodilation process. It's a normal body process to release histamine as a signal for certain things to happen. Our bodies make and break down histamine constantly. We can...- 37 replies
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Advice please
knitty kitty replied to Ellawells's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome back, @Ellawells, Calcium often causes constipation. Some over the counter calcium supplements have propylene glycol (Fleet - the stuff taken before colonoscopy to flush out the bowels) added in. When Calcium is supplemented, magnesium should be supplemented as well. They should be taken in a 2:1 ratio, twice as much calcium as magnesium... -
@UncleBen, @trents is on the right track. Some people are highly sensitive to the least amount of gluten contamination on the inside. Not so much on the outside (on the skin). Throwing away the doll was probably a bit over the top. If you feel so badly for its loss, ask a local quilters group or a sewist on Etsy to recreate one for your niece...
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I feel so bad
knitty kitty replied to Sergey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Sergey I believe the amino acid L-tryptophan is far more beneficial for intestinal healing. Tryptophan (along with B6 Pyridoxine and magnesium citrate) help down regulate inflammation and promote healing. Glutamine, found in meat in the diet and recycled from what glutamine the body already contains, can be made into glutamate in the body. Glutamate... -
Bloating and Other Issues
knitty kitty replied to Ginger38's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Keep a journal of what you eat and the time you eat, what kind of bowel movements you have and when, and how you feel emotionally. Dairy makes me terribly depressed. And I get diarrhea with dairy. A day or two later I get dermatitis. Keeping my food/mood/poo'd journal helped me become aware of the connection. The Autoimmune Protocol Diet ... -
Be aware that blood tests for vitamin deficiencies will reflect the vitamins supplements you are taking. You may want to wait your doctor visit before taking the supplements. Yes, I'm feeling much better now. It's still heart rending to see others suffer for lack of basic vitamins. Keep us posted on your progress!
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I feel so bad
knitty kitty replied to Sergey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sergey, Take your prescribed B vitamins! They are VITal-AMINes, amino acids that our bodies cannot make. We must get them from what we consume. Take them with food to lessen stomach rumblings. The rumbling will get better with a little time. Take extra Vitamin B1 Thiamine in the form thiamine hydrochloride, Allithiamine and Benfotiamine. ... -
These are all symptoms of Thiamine deficiency. Thiamine can only be stored for three weeks. We can experience thiamine deficiency in as little as nine days. Our bodies need more thiamine when we are ill (like with Covid) or pregnant, are under emotional stress, or are outdoors in hot weather. Vitamin D deficiency and deficiency in Omega Threes...