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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Yes, it can occur there, too. Riboflavin deficiency is bad to cause a rash in the nether regions, as well. If you get tested for vitamin deficiencies, you need to be off of supplements for six to eight weeks. Otherwise, you'll just be measuring the supplements you've been taking. Blood tests are not really an accurate measurement of vitamin deficiencies...
  2. knitty kitty
    Yes, I suffered vertigo. I found Vitamin D resolved it within a few weeks, but Thiamine Vitamin B1 and B12 helps as well. Reducing caffeine helps, too. Are you keeping a food diary? It can help pinpoint symptoms with certain foods. I found high histamine foods would trigger reactions, but avoiding them for a while was helpful in calming my...
  3. knitty kitty
    For Reference... The one thing that made the biggest difference for me was taking high dose Thiamine Vitamin B1. Yes, I was taking a multivitamin and still had symptoms. Blood tests for vitamin levels are not an accurate measurement of the level of vitamins inside the tissues, organs and muscles of the body where the vitamins are actually utilized...
  4. knitty kitty
    @Kate333, My heart goes out to you. I've dealt with the same symptoms. The one thing that made the biggest difference for me was taking high dose Thiamine Vitamin B1. Yes, I was taking a multivitamin and still had symptoms. Blood tests for vitamin levels are not an accurate measurement of the level of vitamins inside the tissues, organs and muscles...
  5. knitty kitty
    This article explains how dairy can cause increased tTg results. Cream can contain casein.
  6. knitty kitty
    Welcome to the forum! Do keep in mind that Celiac Disease results in malnutrition because the damage to the small intestine prevents absorption of vitamins and minerals. Do discuss with your doctor or nutritionist the benefits of supplementing with a B Complex vitamin. Gluten containing products are required by law to be enriched with vitamins...
  7. knitty kitty
    That rash around your neck could be Casal's Necklace caused by a deficiency in Niacin Vitamin B3. I had experienced the explosive uncontrollable diarrhea. And I had Casal's Necklace. I had Pellagra. Niacin deficiency causes the deficiency disease Pellagra. The four stages of Pellagra are Diarrhea, Dermatitis, Dementia and Death. Casal's Necklace...
  8. knitty kitty
    Glad to hear you're trying thiamine! You may want to pick up a magnesium citrate supplement, too. Magnesium works as a cofactor with thiamine. And consider a B Complex supplement, as well, to make sure you get all eight B vitamins. Thiamine and the other B vitamins all need each other to function properly. Yes, the doctors' ignorance of the symptoms...
  9. knitty kitty
    @VictoriaSmith and all, I've experienced Gastrointestinal Beriberi and Wernicke's Encephalopathy due to Thiamine deficiency. The symptoms I've had and the symptoms you are describing sound very similar. See for yourselves. Here are some scientific studies done on Thiamine deficiency. Starvation-induced diplopia and weakness: a case of beriberi...
  10. knitty kitty
    @dani nero, You said you added a new smoked fish to your diet? I'm curious to know the ingredients, if there's glutamate in it.
  11. knitty kitty
    Yes, the AIP diet and Benfotiamine helped me lose weight. I take one 100 mg capsule with each meal. I take a B Complex once a day. And a magnesium citrate supplement which is needed for Thiamine (Benfotiamine) to function properly. The B vitamins need each other to function properly. Taking just one of the B vitamins can throw some of the other B...
  12. knitty kitty
    @Ginger38, Have you looked into the Autoimmune Protocol Diet? The AIP diet has really helped me. I have Type Two Diabetes in addition to Celiac. The AIP diet excludes dairy, grains, nightshades, and legumes which gives the intestines time to heal. It's basically meat and vegetables. For fast dinners, I throw a ground beef patty and some frozen...
  13. knitty kitty
    @Marina F, Welcome to the forum! So sorry you're not feeling well. I have had to deal with vitamin and mineral deficiencies caused Celiac Disease. Celiac damages the small intestine (duodenum) making absorption of vitamins and minerals difficult. Changing from a gluten containing diet to a gluten free diet can cause nutritional deficiencies...
  14. knitty kitty
    Welcome to the forum! This article might help explain your tests... https://www.niddk.nih.gov/health-information/professionals/clinical-tools-patient-management/digestive-diseases/celiac-disease-health-care-professionals Sure looks positive for Celiac to me.
  15. knitty kitty
    Anemia can cause negative antibody test results. So can diabetes.
  16. knitty kitty
    You may want to wait until after your doctor appointment to start taking vitamins. Your doctor may want to do blood tests for deficiencies. Taking a vitamin supplement before the test may mask any deficiencies you actually have. The blood tests for vitamin deficiencies would reflect the increased levels in your blood from the vitamin supplements...
  17. knitty kitty
    This is great article from the National Institute of Health explaining different antibody tests for Celiac, genetic testing, and endoscopy. https://www.niddk.nih.gov/health-information/professionals/clinical-tools-patient-management/digestive-diseases/celiac-disease-health-care-professionals Do note that there are other genes for Celiac...
  18. knitty kitty
    You could try taking a B Complex supplement. You can have symptoms of vitamin deficiencies before the deficiency shows up in a blood test. The eight essential B vitamins are water soluble. If your body doesn't need them, they are easily excreted in urine. If you have a subclinical deficiency, taking a B Complex should help. Several of the B vitamins...
  19. knitty kitty
    I'm sorry you're not feeling as much improved as you would like to be by now. I do think that you would have better results if you took the B vitamins every day. The B vitamins would help you with your symptoms, but they need to be taken consistently. When we take them every day, the B vitamins will improve the body's functions and repair the nerves...
  20. knitty kitty
    You can discuss with your doctor the benefits of supplementing with a B Complex while you're healing. Did your doctor test all the vitamins or just B12 and Vitamin D? B12 and Vitamin D are stored in the liver for a couple years. By the time deficiency is seen in these, the stores have been depleted. Blood tests aren't always an accurate reflection...
  21. knitty kitty
    @NataLee, Have you been checked for B12 deficiency or anemia?
  22. knitty kitty
    You may want to try the Autoimmune Protocol diet until your intestines heal more and can absorb nutrients better.
  23. knitty kitty
    @C4Celiac Are you supplementing with vitamins and minerals?
  24. knitty kitty
    @LindzeLindz, Welcome to the forum! You said you've had gallbladder dysfunction, hypothyroidism and Hashimoto's, weight loss, liver function low, PTSD, bloating, constipation, metformin use. Gastrointestinal beriberi is an insufficiency of Thiamine (Vitamin B1) which can cause gastrointestinal symptoms like you've described. Thiamine is needed...
  25. knitty kitty
    @jeriM, Getting an endoscopy now would give your doctor a baseline with which to compare future endoscopies to track healing. However, "the first do no harm" part seems to get lost with Celiac Disease because doctors don't realize how debilitated we can get when exposed to gluten. Some doctors will make a diagnosis of Celiac based on high blood tests...
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