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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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@trents, This article discusses the differences found in grass fed versus grain fed cattle. Grass fed cattle have better meat and healthier fat ratios and less stress hormone, cortisol, than grain fed cattle. Integrated metabolomic and transcriptome analyses reveal finishing forage affects metabolic pathways related to beef quality...
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Genetic Testing for Celiac
knitty kitty replied to JD-FLA's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
HLA-DQA1 and HLA-DQB1 Genetic Markers and Clinical Presentation in Celiac Disease https://journals.lww.com/jpgn/Fulltext/2002/05000/Further_Studies_of_Anti_Endomysium_and.14.aspx -
@OWYN and @jenford244 There are a LOT of carbohydrates and proteins in that pea protein product. There is not enough Thiamine in it to properly convert the amount of carbohydrates and proteins into energy. Increasing carbohydrate intake demands more Thiamine. The thiamine status of adult humans depends on carbohydrate intake ...
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I get Life Extension and Ecological Formulas from Amazon. I take a B Complex and Allithiamine and Benfotiamine, magnesium citrate glycinate. Benfotiamine promotes gastrointestinal healing. I take Benfotiamine with every meal. Theanine, an amino acid supplement, and Tryptophan are beneficial for healing as well. Keep us posted on your progress...
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Neurological Symptoms
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One Benfotiamine a day may not be enough. In thiamine deficiency, the transporters that pull thiamine into cells quit working. To get thiamine into the cells and turn the transporters back on we need to take more Thiamine so it will flood the system (like storming the capital). Take Benfotiamine with every meal. Your reaction -feeling so much... -
Welcome to the forum, @jenford244! I've adopted the AutoImmune Protocol Diet, which is fresh veggies and lean meat, grass fed beef. Dr. Sarah Ballantyne developed it for her-Celiac-self and her Celiac children. The AIP diet is scientifically shown to promote intestinal healing. It has really helped me. https://www.thepaleomom.com/start-here...
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Voice problems/ tremors
knitty kitty replied to ellen101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here's a scientific study that you might find interesting.... High-dose thiamine and essential tremor https://read.qxmd.com/read/29602891/high-dose-thiamine-and-essential-tremor -
Night Sweats?
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Vitamin D helped me get over my night sweats. Vitamin D helps regulate the immune system and calms the inflammation down. -
@adhdgi, welcome to the forum! Thiamine deficiency can cause anorexia and also bulimia. I've struggled with both of these due to Thiamine Deficiency. You said you had anxiety and depression, heartburn, constant fatigue, irritability and joint pain. These are all symptoms Thiamine deficiency. And the surreal feeling... "i don’t even k...
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Welcome, @Chickennugget88! Being checked for nutritional deficiencies is part of proper follow up care for Celiac people. Our bodies need B12 Cobalamine, B2 Riboflavin, B6 Pyridoxine, and B9 Folate to make red blood cells. Iron is absorbed better if taken with Vitamin C. Thiamine B1 and Niacin B3 are also needed. So a good B Complex supplement...
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Voice problems/ tremors
knitty kitty replied to ellen101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's great you've decided to try Thiamine! Let us know your results! I also take Allithiamine and Benfotiamine, both are fat soluble forms of Thiamine that help immensely because they can get into cells easily. You may prefer one of them to the thiamine hydrochloride. The WHO uses thiamine hydrochloride because it is cheaper and readily available... -
Voice problems/ tremors
knitty kitty replied to ellen101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@ellen101, Welcome to the forum! I have had problems with my voice, stuttering, voice cracking and not being able to get words out when I was deficient in Thiamine Vitamin B1. Thiamine deficiency can happen in Celiac Disease because of malabsorption, but thiamine deficiency can occur without Celiac Disease if a person eats a diet lacking... -
Neurological Symptoms
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@itarachiu, and dear readers, These are symptoms I have experienced while deficient in B vitamins, especially Thiamine. There's eight B vitamins. The eight B vitamins work together, so if we're deficient in one, we're probably low in the others as well. So it's best to supplement all eight. Thiamine can become deficient quickest because... -
Update- Saw Gastro Doc Today
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since you have had positive antibody tests and symptoms, it may be wise to have further genetic testing done to look for other Celiac variants. Are you including dairy in your diet? Any medications? -
Histamine Intolerance after Gluten Challenge
knitty kitty replied to BushbabyLou's topic in Related Issues & Disorders
Benfotiamine helps with intestinal healing along with tryptophan and Theanine. Benfotiamine helps with insulin production and sensitivity in Diabetes. The pancreas uses lots of Thiamine. Most Diabetics are deficient in Thiamine. (One of those chicken/egg questions is ... which comes first, thiamine deficiency or diabetes?) The common pharmaceutical...- 37 replies
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Update- Saw Gastro Doc Today
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As I understand, some genetic tests search only for the most common Celiac genes HLA DQ 2 and 8. There are other Celiac genes, though less common. A different genetic testing may uncover other genes for Celiac Disease. It may be a good idea to get a copy of the test results. -
Update- Saw Gastro Doc Today
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Do you have the results? -
@Ginger38, I had to make a mental adjustment with Celiac Disease. I had to learn how to eat to live, not live to eat. Hippocrates: “Let food be thy medicine and medicine be thy food." The AIP diet is a bit sparse without carbohydrates from grains and starchy vegetables, but removing those gives the digestive system a rest from dealing w...
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Off topic
knitty kitty replied to Bill1991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Bill1991, I had nerve pain, peripheral neuropathy. What works for me is Benfotiamine, B Complex, B12 Cobalamine, B6 Pyridoxine, Tryptophan, and Vitamin C. I was surprised to find Vitamin C has a link to CRPS. "Other rare clinical signs of scurvy include skeletal muscle degeneration, complex regional pain syndrome (CRPS), cardiac hypertrophy... -
Vitamin D by itself does not prevent fractures, but when taken with Calcium supplements, Vitamin D and Calcium have been shown to prevent fractures. "Ca/D reduces the risk of hip and any fracture in analyses combining institutionalized and community-dwelling individuals." Vitamin D Supplementation and Fractures in Adults: A Systematic Umbrella Review...