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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Supplementing with Benfotiamine, a form of thiamine proven to help heal the digestive tract, helps with constipation. Here's more information.... https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/
  2. knitty kitty
    I found this interesting article that discusses how one specific kind of IEL in Celiac disease disappears completely. "Intraepithelial lymphocytes subsets in different forms of celiac disease" https://autoimmunhighlights.biomedcentral.com/articles/10.1007/s13317-016-0085-y "On the other hand, CD3− IELs are present in healthy duodenal mucosa a...
  3. knitty kitty
    Thanks, @Maddie6332, I can't wait to try this recipe! Sounds so good!
  4. knitty kitty
    I like Life Extension Benfotiamine. Thiamax is a brand of TTFD (thiamine tetrahydrofurfuryl disulfide), that is wonderful for brain fog and anxiety. Both are available at Amazon.
  5. knitty kitty
    Thiamine insufficiency will cause these symptoms. Thiamine is needed for energy production and digestion of meats as well as carbohydrates. Intense training will use up lots of Thiamine. Supplementing with Benfotiamine, a form of thiamine that helps intestinal healing and working out. Here's some interesting articles.... Effect of physical...
  6. knitty kitty
    I'm leaning towards your son just hasn't developed IEL infiltration yet. The damage gets worse as uncontrolled Celiac continues. Maybe you will find this article helpful... "Progression of pediatric celiac disease from potential celiac disease to celiac disease: a retrospective cohort study" https://www.ncbi.nlm.nih.gov/pmc/articles...
  7. knitty kitty
    Start with 100 mg of benfotiamine with each meal. You can increase the amount. Everyone is different and has differing degrees of Thiamine insufficiency. You have to find what works best for you. I take 100 mg Thiamax and 200mg benfotiamine with breakfast and lunch. I found taking more after 5 pm can make me wide awake at bedtime. Lol! ...
  8. knitty kitty
    @honeycomb4, Welcome to the forum! Your "completely flat" intestine is probably having difficulty absorbing enough vitamins and minerals. Supplementing with vitamins and minerals is a good idea while you are healing. Our bodies need vitamins and minerals to repair and heal our bodies. Nausea can be caused by an insufficiency of Thiamine...
  9. knitty kitty
    I know how you feel. Thiamine will help with the anxiety and brain fog, too. You can also try Thiamax, another form of thiamine that is great for neurological symptoms like anxiety and brain fog. Be sure to take Magnesium Glycinate or magnesium taurate with Thiamine. Magnesium helps thiamine to work properly. Keep us posted on your progress...
  10. knitty kitty
    Yes, I've experienced this. It's called "sailors' asthma" which is another symptom of Thiamine insufficiency. I've experienced this, too. Thiamine is needed to carry oxygen in the blood. Without enough thiamine, we get "air hunger" like you describe. You just can't get a deep enough breath. Try Benfotiamine, a form of thiamine that gets into...
  11. knitty kitty
    No. Smoke does not contain gluten. What problems are you having?
  12. knitty kitty
    @Evan0529, Welcome to the forum! The eye droop, anxiety, shakiness and brain fog will be helped by taking Thiamine. I had the same symptoms which improved when I took high dose Thiamine and a B Complex supplement. Celiac Disease damages the small intestine where vitamins are absorbed, so supplementing with vitamins and minerals helps our...
  13. knitty kitty
    Hello, @Hypo, I had color changes in my stools before my gallbladder was removed prior to my Celiac diagnosis. I later learned that color changes in stools can be due to how much bile (digestive enzymes) is released by the gallbladder. Gallbladder dysfunction can be helped by taking Thiamine Vitamin B 1. Thiamine is a water soluble, nontoxic vitamin...
  14. knitty kitty
    @Sabaarya, Are you taking Thiamine? https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/
  15. knitty kitty
    @itarachiu, Can you order Thiamax where you are? https://www.amazon.com/Objective-Nutrients-Thiamax-Thiamine-Capsules/dp/B0898T6NX3/ref=sr_1_2?crid=186Z8F43JPU9K&keywords=Thiamax&qid=1668374818&sprefix=thiamax%2Caps%2C221&sr=8-2 https://www.objectivenutrients.com/products/thiamax/ This is the kind I use.
  16. knitty kitty
    @paxmom, Here's an article from National Institute of Health that says positive DGP tests in children two and under are an accurate diagnosis of Celiac Disease. Children this young haven't quite developed their immune systems and don't have a Ttg immune response yet. "The correct way Celiac Disease diagnosis passes through DGP IgG levels in children...
  17. knitty kitty
    @LisaSan111 I've been a big fan of the Autoimmune Protocol Diet (AIP diet). It was designed by a Celiac doctor (Dr. Sarah Ballantyne) for herself and her Celiac family. The AIP diet has been scientifically proven to improve intestinal healing. The AIP diet is strict at first, but this is in order to reduce inflammation and calm the immune system...
  18. knitty kitty
    Thanks, @Maddie6332!
  19. knitty kitty
    I went through very similar symptoms, being misdiagnosed and told it was all in my head for most of my life. It's not all in our head. It's what's NOT in doctors' heads. Doctors don't think of vitamin deficiencies as causes of symptoms like we have. Doctors are trained to prescribe pharmaceuticals in medical institutions funded by pharmaceutical companies...
  20. knitty kitty
    Mast cells release histamine. Mast cell activation syndrome is common in Celiac Disease. Histamine is broken down by B12, Pyridoxine B6, and Vitamin C. Vitamin D helps regulate the immune response and make mast cells calm down. Thiamine deficiency causes mast cells to release histamine easily. Blueberries contain "thiaminase", a chemical...
  21. knitty kitty
    @Celiac-in-AZ, I'm a big fan of Dr. Derek Lonsdale. He and Dr. Chandler Marrs have written a book "Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition" Here's one of his published articles... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ Other articles are on Dr. Marrs' website... https://www.hormonesmatter...
  22. knitty kitty
    Make chicken stock. Preferably from chicken and veggies at home. Those flavor packets frequently contain yeast which may cause a gluten-like reaction, plus all those weird chemicals. Boxed chicken stock may be a bit better, but read the label!
  23. knitty kitty
    My grandmother always said to light a match. There was frequently a candle burning in her bathroom.
  24. knitty kitty
    @Celiac-in-AZ, Have you been to a nutritionist? You may be low in other vitamins and minerals. If you are low in one or two, you are probably low across the board. There are reliable tests for B12 and Vitamin D, but no really reliable tests for other B vitamins. There's eight B vitamins. They all work together. Taking just one B vitamin...
  25. knitty kitty
    Ask your doctor to refer you to a nutritionist. Here's a high histamine diet explanation... https://www.healthline.com/health/low-histamine-diet If you are losing weight, fats are not going to give you the protein you need to maintain and rebuild muscle. It's your choice which type of protein you want to eat. Smoked meats, sausages...
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