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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @SargeMaximus, Here's the kind I bought...looks like the price went up... https://www.nowfoods.com/products/supplements/vitamin-b-1-100-mg-tablets Thiamine Mononitrate is not bioavailable. Thiamine Mononitrate is put into foods and vitamins because it has a long shelf life. It has a long shelf life because it doesn't react with other...
  2. knitty kitty
    @Seethefacts, If you were taking vitamins at the time you had your vitamin levels checked, your blood tests would not be accurate. Your blood tests would have picked up on the vitamins you were taking. Blood levels for vitamins are not an accurate measurement of the amount of vitamins stored inside cells. Blood levels can reflect how much of that...
  3. knitty kitty
    @SargeMaximus, Salting, smoking or curing can inactivate thiamine. So if you're eating sausages, bacon and hams, you're not getting enough thiamine. Caffeine in soda pop, coffee and black tea will also inactivate thiamine. Sweet potatoes contain thiaminase, an enzyme that breaks thiamine down so it doesn't work. If you've got Small...
  4. knitty kitty
    Hypoallergenic and Physicochemical Properties of the A2 β-Casein Fractionof Goat Milk https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5932946/ Comparative Analysis of the Protein Composition of Goat Milk from French Alpine, Nubian, and Creole Breeds and Holstein Friesian Cow Milk: Implications for Early Infant Nutrition https://www.ncbi....
  5. knitty kitty
    @LaLeoLoca, Do keep us posted on your progress! I'm so glad you're feeling better!
  6. knitty kitty
    @SargeMaximus, Have you tried adding Thiamine (thiamine hydrochloride, benfotiamine, Allithiamine) to your diet? Constipation is an early symptom of Thiamine insufficiency. Thiamine is needed to turn carbohydrates into energy. The more carbohydrates you include in your diet, the more Thiamine is needed. https://www.ncbi.nlm...
  7. knitty kitty
    @Rogol72, You're right! All kinds of milk have them! I found this interesting.... Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8345738/
  8. knitty kitty
    @Jnapier, How about doing a genetic test to see if you have any genes for Celiac Disease? It's noninvasive, and you don't have to consume gluten. Having genes for Celiac Disease does not mean that you have active Celiac Disease. Having Celiac genes means that you have the potential to develop Celiac Disease. If you do have Celiac...
  9. knitty kitty
    High dose Thiamine is 500 - 2000mg per day for several months. Thiamine Hydrochloride, Benfotiamine, Allithiamine and Thiamax (TTFD forms) can be used in high dose Thiamine supplementation. There can be a "normal level" in blood work, but that level may reflect how much thiamine recently consumed in meals in the previous twenty-four hours. ...
  10. knitty kitty
    @VeronicaTheCeliac, How are you doing? I hope you're feeling better. How disappointing to realize you've been glutened halfway through! We've all realised a smidge too late.... Things I do to help when I get glutened.... Stay hydrated! Try not to drink sodas, coffee and black teas. These have caffeine and can act as diuretics and may...
  11. knitty kitty
    @Jenniferxgfx, Why are you in such need for electrolytes? You mentioned in another post you are on medication for tachycardia? How long have you been on this medication? How long have you been using these electrolyte products? You mentioned fibromyalgia, too. Any other symptoms?
  12. knitty kitty
    @Ida Oldford, I have environmental sensitivity like you describe. I can't tolerate perfume counters or heavily scented cleaning supplies, scented fabric softeners and soap. Most perfumes and scents contain Sulfites. Some foods are high in Sulfites, too. Sulfite HyperSensitivity prevents me from taking pharmaceuticals containing sulfite compounds...
  13. knitty kitty
    Happy New Year 2023!
  14. knitty kitty
    I thought this article would be of interest. It discusses vitamin and mineral deficiencies that can impact hair growth. The Role of Vitamins and Minerals in Hair Loss: A Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6380979/
  15. knitty kitty
    @Matty007, Yes, I had side pain, extreme bloating. I had Small Intestinal Bacterial Overgrowth (SIBO). That's where bacteria normally living in the colon spread into the small intestine where they are not supposed to be. SIBO bacteria like to eat simple carbohydrates like rice and potatoes. SIBO bacteria produce lots of gas as a result, hence...
  16. knitty kitty
    Hi, @Matty007, I found the Autoimmune Protocol Diet very helpful in healing. The AIP diet removes all grains and nightshades. Potatoes, tomatoes, eggplant and peppers are all nightshades. Nightshades contain alkaloids that promote leaky gut syndrome. Leaky gut syndrome allows big molecules from the digestive tract to get into bloodstream and...
  17. knitty kitty
    @Charliexxx, Yes, I'm reading Dr. Lonsdale and Dr. Marrs' book "Thiamine Deficiency Disease, Disautonomia, and High Calorie Malnutrition". I got so ill so quickly from a gluten challenge, I opted for genetic testing. Hippocrates said "first do no harm" which is counterintuitive to doing a gluten challenge. He also said "let food be your...
  18. knitty kitty
    @Ida Oldford, Costochondritis can be caused by a deficiency in Thiamine Vitamin B 1. Weight loss, no appetite (anorexia), constipation, fatigue and pain are all classic symptoms of Thiamine deficiency. These are all symptoms I had when I was Thiamine deficient prior to my Celiac diagnosis. Since Thiamine deficiency is usually seen in alcoholics...
  19. knitty kitty
    @Rogol72, Yes, in some cases blepharitis can be caused by bacteria or even mites! Thiamine helps our bodies fight infections, including bacteria and mites. Benfotiamine has been shown to help with dry eyes and iritis, too. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2685466/
  20. knitty kitty
    @LaLeoLoca, Thiamine deficiency can manifest as Gerd. Gerd isn't a overproduction of digestive juices, Gerd is caused by an underproduction of digestive juices. Thiamine is needed to make digestive enzymes and for secretion of digestive juices. POTS is connected to thiamine deficiency. Many sufferers of long Covid are deficient in thiamine...
  21. knitty kitty
    @moleface, Have you been tested for any of the genes that code for Celiac Disease? Having a genetic test showing genes for Celiac is something doctors cannot argue with. Having the genes for Celiac and your symptoms on and off gluten are confirmation you have it. That's what I had to do because I had doctors of comparable abilities as your...
  22. knitty kitty
    Studies show low levels of Thiamine promote cancer cell growth. But High Dose Thiamine reduces the number of cancer cells. High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963161/ And... B-cell lymphoma, thiamine deficiency, and lactic acidosis ...
  23. knitty kitty
    There's some evidence that colonic polyps are produced in Thiamine deficiency. Haven't found any studies done yet on gallbladder polyps.
  24. knitty kitty
    @LaLeoLoca, Welcome to the forum! Thanks for joining us! I was in really sad shape prior to my Celiac diagnosis. I had lots of vitamin and mineral deficiencies. It took some time to get foods and supplements sorted. The diet that made the biggest difference to me is the Autoimmune Protocol Diet. Developed by Dr. Sarah Ballantyne, a Celiac...
  25. knitty kitty
    @Moomooandme13, I've had Gastrointestinal Beriberi. Gastrointestinal Beriberi causes the same symptoms you've described. Gastrointestinal Beriberi is a manifestation of Thiamine deficiency. The gallbladder gets sludgy and doesn't work well, the stomach doesn't produce enough acid (often misdiagnosed as too much acid hence your doctor prescribed...
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