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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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Constant low back, abdominal and pelvic pain!
knitty kitty replied to Aussienae's topic in Coping with Celiac Disease
Thiamine Vitamin B 1 deficiency and Pyridoxine Vitamin B 6 deficiency can increase oxalate uptake. Absorption of glyoxylate and oxalate in thiamine and pyridoxine deficient rat intestine https://pubmed.ncbi.nlm.nih.gov/3947375/ "Dietary deficiency of thiamine or pyridoxine has been shown to produce hyperoxaluria and renal stone formation in...- 65 replies
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@KatrinaMindy, I've had hearing loss related to untreated Celiac Disease. I've had almost all those symptoms you listed. (No resection.) Please, please, please, get checked for nutritional deficiencies, especially Thiamine Vitamin B1, as soon as possible. Vitamin deficiencies need to be corrected as quickly as possible so the damage does not...
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Malignant Cancers are a Hidden Danger for Celiacs
knitty kitty commented on Jefferson Adams's article in Cancer, Lymphoma and Celiac Disease
@ravenwoodglass, I do hope it's not come to that! My heart goes out to you! There is a mounting body of evidence that high dose Thiamine (esp. Benfotiamine) can have anticancer effects. High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963161/ ...- 29 comments
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- adenocarcinoma
- adenocarcinomas
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Transverse Myelitis from Celiacs
knitty kitty replied to theParaplegicCeliac's topic in Related Issues & Disorders
Welcome to the forum! I agree that current medical training leaves a lot to be desired. Doctors are trained in medical training institutions funded by pharmaceutical companies to dispense pharmaceuticals. Doctors are given about fifteen minutes of education about vitamins and nutrition in seven years of med school. How are they correcting... -
Discomfort After Gluten-free Meals
knitty kitty replied to Seethefacts's topic in Related Issues & Disorders
@Seethefacts, If you have not been diagnosed with Celiac Disease, know that you will have to consume regular amounts of gluten (10 grams/day) for up to eight to twelve weeks ( a gluten challenge) in order to test for antibodies to gluten in your blood. A minimum of two weeks of gluten consumption is required before an endoscopy to biopsy the small intestine... -
Are you taking a B Complex supplement? Several of the eight essential B vitamins can help reduce anxiety, Cobalamine B12, Thiamine B1, and Pyridoxine B 6. But all eight are needed for them to function properly. Magnesium and Vitamin D help, too. Anxiety and depression are early symptoms that you may have insufficiency in vitamins and minerals...
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Yes, I understand. Your son should use some pain he has experienced as a reference to describe his pain from stomach cramps. I'm concerned as to why he wants to use that particular comparison. He may get laughed at or bullied. Perhaps this may help.... "How can I describe my pain to my health care provider?" https://www.nichd...
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@PrismagicMushroom, Yes, Celiac Disease can be precipitated after an infection. During an infection, our bodies can run short on Vitamin B1, Thiamine. High dose Thiamine can help recovery. Vitamin D deficiency can cause symptoms of arthritis. Celiac Disease damages the small intestine where vitamins and minerals are absorbed. Supplementing...
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Yes, I avoid the bakery section, too. Some highly sensitive people can have a reaction to inhaled gluten. We smell "stuff" because little molecules of that "stuff" get airborne and finds its way to our nose, triggering smell receptors. The "stuff" gets stuck in the mucus produced by the mucus membranes in the nose which drains down the back...
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@Sarah8527, That's like comparing apples and oranges. I discourage the use of that comparison. It's two different organs that function in two different ways, hence different kinds of pain. Instead use some injury your son is more familiar with. If your son ever got a Charlie horse, stubbed his toe, or sprained his ankle. Or better yet, say...
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Gluten and rice causing neurological issues
knitty kitty replied to bechari's topic in Food Intolerance & Leaky Gut
White rice is easily broken down into glucose. Our brains like to run on glucose. Unfortunately, white rice is usually enriched with thiamine mononitrate, which is shelf stable, but not a bioavailable form our bodies can use. Benfotiamine is a form of thiamine that helps promote healing in the small intestine. Hiding in Plain Sight:... -
Gluten and rice causing neurological issues
knitty kitty replied to bechari's topic in Food Intolerance & Leaky Gut
Exactly! Not staying on gluten until all testing is completed is a huge problem! Many doctors don't understand that antibodies go away if one goes off gluten. We have many members who have questionable blood tests for the reason they tried a gluten free diet at home, felt better, then went to the doctor and asked for Celiac tests. Their antibodies... -
@Rogol72, Just a few weeks, if even that. I had improvement in digestive symptoms within the first few days which kept improving. It wasn't long before my bloated (ten months pregnant looking) abdomen began to flatten and I could find my hip bones again. Six to eight weeks maybe. No, I did not take probiotics nor antimicrobials. The microbiome...
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@Lizi, I encourage you to eliminate dairy, too. The protein in dairy, casein, resembles the gluten molecule (molecular mimicry), so dairy can cause continuing inflammation. Dairy is debilitating for me. I get dizzy, depressed and demented when I consume dairy. Dairy and gluten are sources of exogenous opioids. We have opioid receptors...
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It's possible. People can be so messy and get crumbs everywhere! If the towel is dry, I would think giving it a good shake outside would get most crumbs off. If the towel is damp or wet, more crumbs might stick to it, so I would throw that towel in the laundry and give it a good wash. You're doing so well. You are impeccable about cross contamination...
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@Stacey grint, Iron deficiency is a common symptom of Celiac Disease, especially in the early stages. I'm so glad doctors are recognising the connection now. Here's a science-y article about it... Anemia in Celiac Disease: Prevalence, Associated Clinical and Laboratory Features, and Persistence after Gluten-Free Diet https://www...
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
My favorite AIP diet book is "The Paleo Approach" by Dr. Sarah Ballantyne. https://www.thepaleomom.com/autoimmune-protocol-clinical-trials-and-studies/ Dr. Ballantyne is Celiac herself, and developed the AIP diet for herself and her Celiac kids. The AIP diet has been scientifically proven to promote intestinal healing. Hope this helps! -
Someone else confused...
knitty kitty replied to Maxipoo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Maxipoo, I'm a curious kitty. What are your strange medical symptoms? Why did you go to a neurologist? I had subclinical vitamin and mineral deficiencies for years. An illness like Covid (any physical or emotional stressor) can push the body into a serious deficiency as the body's vitamin stores run out. Unfortunately, my doctors did not... -
@Lizi, Yes, a diet that eliminates all grains, pseudo grains, legumes, seeds and nuts is the Autoimmune Protocol Diet. Our gastrointestinal symptoms get a chance to rest, recuperate, and repair itself if we eliminate those foods for several months. The AIP diet has really helped me. A benefit has been that my SIBO is gone. SIBO is the overgrowth...
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@Dianasolvei, You could go ahead and get an endoscopy now WITHOUT a gluten challenge. Have lots of samples taken. This way you would get a baseline with which to compare future endoscopies to check for healing and if other problems arise. Some people who have really severe reactions and nutritional deficiencies may have flattened or absent villi...
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@Russ H, Thiamine, Vitamin B 1, chelates heavy metals like arsenic, lead, and cadmium, which the body can then easily excrete. Chelation makes the heavy metals nonreactive, harmless. Thiamine also protects DNA from mutation when exposed to radiation. I remember hearing about Thiamine tablets being distributed in Ukraine when the nuclear...