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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Russ H, Thiamine, Vitamin B 1, chelates heavy metals like arsenic, lead, and cadmium, which the body can then easily excrete. Chelation makes the heavy metals nonreactive, harmless. Thiamine also protects DNA from mutation when exposed to radiation. I remember hearing about Thiamine tablets being distributed in Ukraine when the nuclear...
  2. knitty kitty
    @HannahLaF, The doctor saw your daughter's improvement after the virus and gluten free. Yes, some severe norovirus infections in young children can cause damage to the intestines. A gluten challenge for six weeks is necessary in order to test for antigliadin antibodies again. If your daughter's antibodies are high again, it's likely Celiac and...
  3. knitty kitty
    Oh, no, @MBjim. You might not have been eating enough gluten. On the forum, we've been saying at least two slices of bread a day. "You will need to eat a three to 10 grams of gluten per day, and two grams is roughly equivalent to a slice of bread." https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ Different types...
  4. knitty kitty
    Welcome to the forum, @MBjim! The damage done to the small intestine can vary. Are you familiar with Marsh scores? Marsh scores describe the severity of damage in the small intestine. Not eating sufficient gluten daily for at least two weeks prior to an endoscopy can affect how badly damaged and inflamed the small intestine becomes. ...
  5. knitty kitty
    @ac5858, After being on the gluten free diet for such a long time, it is more likely you have developed nutritional deficiencies. These are all symptoms of Thiamine deficiency. I know from experience, thiamine deficiency will cause Depression, extreme fatigue, headaches and brain fog, and canker sores and acne. Nutritional deficiencies...
  6. knitty kitty
    Nutritional deficiencies can play a part in pelvic pain...Since Celiac Disease can lead to nutritional deficiencies even on a gluten free diet, trial supplementation may be helpful. "Nutritional deficiencies and metabolic disorders are not uncommon among women with MFPP but may be overlooked by medical practitioners as an underlying contributor to CPP...
  7. knitty kitty
    @bechari, Do you wash your rice before you cook it? Washing rice can wash away the the vitamins in enriched white rice. Your symptoms sound like mine when I was deficient in vitamins, especially thiamine deficiency. Vitamin D deficiency can cause vertigo, but in thiamine deficiency, vertigo, peripheral neuropathy, and muscle spasms...
  8. knitty kitty
    Neuropathy is a classic symptom of Thiamine deficiency. Doctors do not recognize Thiamine Deficiency Diseases yet. I had improvement in my peripheral neuropathy, in my feet and hands within an hour of taking Thiamine Hydrochloride. @trents, Naltrexone can be used to help with pain... The use of low-dose naltrexone (LDN) as a novel anti...
  9. knitty kitty
    @Bettyvan, Swelling of the extremities (hands, feet, ankles, calves) is a symptom of Thiamin deficiency. Thiamin deficiency is a serious medical condition. Thiamin deficiency can worsen quickly and cause heart problems, ataxia, and brain dysfunction. It can result in death. You should talk to your doctor about supplementing with thiamin. Your...
  10. knitty kitty
    Don't give up on getting a diagnosis of Celiac Disease. Wait until you get your endoscopy (continue with gluten in your diet) before you start looking for other causes. Metformin can cause vitamin deficiencies in Thiamine B 1 and Folate B9 by blocking their absorption. Without Folate B9, Cobalamine B12 can't be used effectively. These deficiencies...
  11. knitty kitty
    Yes, anti-DGP testing is valid in adults. Antibodies against deamidated gliadin peptides identify adult coeliac disease patients negative for antibodies against endomysium and tissue transglutaminase https://pubmed.ncbi.nlm.nih.gov/20456302/ "In this study of patients...IgA/IgG-DGP identified adult coeliac disease patients negative for antibodies...
  12. knitty kitty
    B12 deficiency can cause anhidrosis (not sweating) and hypohidrosis (very little sweating). B12 deficiency is common in both Celiac Disease and scleroderma as well as Sjogren's syndrome. Celiac Disease can cause problems with absorption of Vitamin B12 Cobalamine. B12 needs to bind with an intrinsic factor produced in the stomach in order to be...
  13. knitty kitty
    UBOs can be found in Thiamine deficiency. Cerebellar spots... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2854955/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9945014/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9402833/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4728174/ Thiamine deficiency...
  14. knitty kitty
    @Vicrob, Thiamine deficiency can occur outside of alcoholism. Thiamine deficiency can occur in malabsorption syndromes like Celiac Disease. Elevated liver enzymes are frequently seen in alcoholism because alcohol interferes with the absorption of Thiamine (Vitamin B1) resulting in Thiamine deficiency. Alcoholism damages the small intestine where...
  15. knitty kitty
    @Dtoc and all, Just a little side note... That "daily skin dust" on your calves sounds similar to the dust I had on my feet and calves when I had deficiency in Vitamin B 3, Niacin. It starts with"dust', but it can get worse. Rough, scale-y and bumpy skin appears on hands, feet, and neck (called boots and gloves of pellagra). A reddening...
  16. knitty kitty
    @lyndze, Celiac Disease destroys the lining of the small intestine preventing the absorption of essential vitamins and minerals. You should be checked for vitamin and mineral deficiencies as part of proper follow up care for Celiac people. Anemia and Diabetes (both types) can affect blood tests for Celiac Disease, resulting in false negatives...
  17. knitty kitty
    You could try taking Benfotiamine, a form of Vitamin B 1 that has been shown to promote healing in the intestines.
  18. knitty kitty
    @Michael Swanson, Some Celiacs react to the protein casein in dairy products as though it were gluten because the casein molecules resemble gluten molecules. Some Celiacs develop lactose intolerance because they can't produce the enzyme lactase that digests the milk sugar lactose. In either case, intestinal bacteria ferment the undigested...
  19. knitty kitty
    Yes, in some cases, people with CSF leaks have the fluid leak out the nose or down the throat. Others have tears in the membrane that is supposed to keep the fluid in. Thiamine contributes to the integrity of the membrane and in regulation of CSF pressure.
  20. knitty kitty
    @Joan Bundtzen, Have you done any investigation into Thiamine deficiency as a cause of cerebral spinal fluid leakage? https://pubmed.ncbi.nlm.nih.gov/6182272/
  21. knitty kitty
    There are studies showing high dose Thiamine supplementation can have a detrimental effect on cancer cells, working as well as some anticancer drugs. B Vitamins and Their Role in Immune Regulation and Cancer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7693142/
  22. knitty kitty
    @plumbago, I'm thrilled to hear you have tried thiamine! Unfortunately, yes, thiamine testing is a bit inaccurate because thiamine gets turned into enzymes that are used within cells and tissues which is not measurable by blood testing. Even a thiamine rich meal preceding testing can skew blood tests for thiamine. The Erythrocyte Transketalase...
  23. knitty kitty
    @plumbago, Hope you're feeling better. I had an eye problem several years ago. My left eye had swelling and hemorrhaging. My ophthalmologist sent me to see specialists at the Helen Keller Institute for the Blind Hospital. They couldn't figure out what was going on. I was prescribed a dozen eye drops to take around the clock and some medications...
  24. knitty kitty
    https://www.niams.nih.gov/health-topics/autoimmune-diseases
  25. knitty kitty
    Doctors tell you to continue eating gluten until they can see the damage for themselves in the endoscopy and biopsies. They must all be from Missouri. Some doctors will make a diagnosis of Celiac if the blood tests for antibodies are extremely high and if Celiac genes are present.
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