Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten freee for 17 years-no instant reaction from accidential large amount of gluten


Susan F.

Recommended Posts

Susan F. Newbie

Hi, I have been 100% gluten free since 2006 when I was diagnosed with Celiac. Any time ive had a cross contamination exactly 3 hours from eating I would vomit for 2 hours! Last week by accident I bought regular raviols instead of gluten-free. I had about 10 of them I would say. 2 hrs later felt nausea, I looked in the garbage at the ravioli bag and realized I had been posioned withgluten. I was prepared for hours of vomiting but it never happened. Over week later I still feel sick to my stomach ,nauseous , couldnt go to bathroom,  finally had  abowel movement after a week of nothing.

Is this a common immune response? Feeling awful

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

@Susan F., welcome to the forum!

You've done such a good job avoiding gluten, your immune system has calmed down.  If you continue to eat gluten, your immune system will rev up again and make your intestinal symptoms worse.

The immune cells that produce anti-gluten antibodies (these are the same antibodies that also attack our bodies), those immune cells die off (if not triggered by gluten) in about two years.  

If exposed to gluten after that, the immune system has to gear up antibody production again.  This can take a while.   Remember that a gluten challenge is trying to get those antibody levels high enough to register on a blood test and requires weeks of consistent gluten consumption. 

People that react violently to small gluten exposures still have an actively prepared immune system.  The antibody producing cells are still functioning and readily prepared to produce antibodies.  

Your lingering symptoms suggest nutritional deficiencies.  Low magnesium and B Complex vitamins and Vitamin D are frequently low in long-term gluten free diets.  

Do you supplement any vitamins or minerals currently? 

Scott Adams Grand Master

I agree, many people with celiac disease who are gluten-free for years go into something like remission, and have few, if any, symptoms when they accidently eat gluten. If you continue to eat gluten your symptoms will likely return pretty quickly, but it might take time for the damage to occur, just like it takes time for it to heal.

Elliemae7395 Apprentice

I'm curious about the effects of gluten poisoning. Is it unusual after a year of 100% no gluten that when I ate gluten again I was vomiting etc for several days not hours? Is it relative to the length of time gluten free or the amount of gluten consumed? Is it different for everyone? Susan, you felt awful for a week. Is there any way  to know the damage done?

knitty kitty Grand Master
25 minutes ago, Elliemae7395 said:

I'm curious about the effects of gluten poisoning. Is it unusual after a year of 100% no gluten that when I ate gluten again I was vomiting etc for several days not hours? Is it relative to the length of time gluten free or the amount of gluten consumed? Is it different for everyone? Susan, you felt awful for a week. Is there any way  to know the damage done?

 

 

The immune cells that produce anti-gluten antibodies (these are the same antibodies that also attack our bodies), those immune cells die off (if not triggered by gluten) in about two years.  

If exposed to gluten after that, the immune system has to gear up antibody production again.  This can take a while.   Remember that a gluten challenge is trying to get those antibody levels high enough to register on a blood test and requires weeks of consistent gluten consumption. 

People that react violently to small gluten exposures still have an actively prepared immune system.  The antibody producing cells are still functioning and readily prepared to produce antibodies.  

Susan F. Newbie

Ugh, still not feeling great, its day 10 of the poisoning (I call it..lol) . I do take vitamins, and suppliments, started balanc eof nature few months ago, take D, B and slow mag for leg cramps.

My upper stomach is hurting, have not been eating much as i feel nauseous......did eat some dinner, doing fruit otherwise. I dont know if there is or will be damage from this epidsode, so crazy I AM so careful and did this to myself by mistake!

knitty kitty Grand Master

I like Oolong tea.  It's very soothing on the tummy.  One can take some extra magnesium, too.  Take more B vitamins.  They are water soluble and become depleted quickly in diarrhea and vomiting.  Thiamine can help relieve the nausea.  

I think we've all had those moments when we're scrambling and re-reading the package label!  You're in good company.   

It'll get better.  With such a brief exposure, probably little damage was done.  

Best wishes!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Elliemae7395 Apprentice

For me when I got beyond sips of water I had tea and then Stony field organic whole milk probiotics yogurt. It was recommended to me. We had the vanilla already. I figured getting active cultures in my tummy might help. I took it slow. But it did help. I hope you feel better soon🤗

Scott Adams Grand Master
17 hours ago, Susan F. said:

Ugh, still not feeling great, its day 10 of the poisoning (I call it..lol) . I do take vitamins, and suppliments, started balanc eof nature few months ago, take D, B and slow mag for leg cramps.

My upper stomach is hurting, have not been eating much as i feel nauseous......did eat some dinner, doing fruit otherwise. I dont know if there is or will be damage from this epidsode, so crazy I AM so careful and did this to myself by mistake!

It's likely too late, but maybe bookmark this article should it ever happen again...the article comments are also worth a read:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kwinkle replied to Kwinkle's topic in Coping with Celiac Disease
      5

      I’m so confused…

    2. - Deanne jones replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      28

      Can food allergies like milk and soy flatten villi?

    3. - knitty kitty replied to DayaInTheSun's topic in Coping with Celiac Disease
      12

      Being a burden to family/friends

    4. - Celiacandme replied to Kwinkle's topic in Coping with Celiac Disease
      5

      I’m so confused…

    5. - lmemsm replied to jasoncrest's topic in Gluten-Free Recipes & Cooking Tips
      4

      Recipe Apps?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,307
    • Most Online (within 30 mins)
      7,748

    XC Dad
    Newest Member
    XC Dad
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kwinkle
      Thank you. I already cut out dairy and eggs because I found out I was having a problem with them. To be honest I’m just getting worn out 😂 
    • Deanne jones
      Hi Kitty, thank you for your e mail,  I have seen a nutritionist who seemed to be happy with the food diary I had been keeping and nothing was mentioned about extra vitamins, and I’m still using milk etc . The steroids seem to be working and everything is functioning as it should however,  the course of tablets finish at the end of February and I have an appointment with the consultant early April probably followed by another endoscopy, as far as I’m aware I have not been tested for vitamin B and will definitely discuss it with the doctor on my next visit.      
    • knitty kitty
      It might be understandable to say "friends or family weeded me or you out of their lives". Some people are fearful of getting out of their comfortable known lives and having to make changes to accommodate another.   If they are too uncomfortable to walk a mile with me, I shake the dust off my feet and journey on.  They're just not ready to learn that lesson.  But you confidently keep going on your journey.  They can catch up later.  
    • Celiacandme
      You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start feeling better soon. 
    • lmemsm
      Someone recently recommended Superfoods for looking up recipes free of allergens or intolerances.  It's a web site but there's also an app.
×
×
  • Create New...