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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. Dietary intake of thiamine and riboflavin in relation to severe headache or migraine: A cross-sectional survey https://pubmed.ncbi.nlm.nih.gov/36047917/ "Conclusions: We found that high intake of thiamine was significantly associated with lower odds of migraine, especially in females." Celiac Disease damages the intestinal lining so that nutrients...
  2. I've found some research articles that should be helpful.... Wernicke Encephalopathy Presenting with Dysphagia: A Case Report and Systematic Literature Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9788281/ And... Severe dysphagia as the presenting symptom of Wernicke-Korsakoff syndrome in a non-alcoholic man https://pubmed...
  3. Hello! I'm Type Two and I've found the Autoimmune Protocol diet works best for me. I could not take Metformin nor other similar medications because I have a hypersensitivity to sulfa drugs. Metformin actually blocks Thiamine Vitamin B 1 from entering cells in the body. The great thing about the AIP diet is that it allows me to maintain my 4...
  4. @Ben.D, Welcome to the forum! I'm going to ask about your diet. What did a typical day's food intake look like prior to symptoms 6-7 years ago? What does your diet include now? What foods are problematic for you? Are you a vegetarian?
  5. @GlutenbusterMama, Let's keep in mind that the digestive tract has a limited vocabulary. Not everything is caused by gluten. Yes, there's a connection between a diet high in sugar and insufficient Thiamine Vitamin B 1. Thiamine is needed to burn sugar for energy. If there is not enough thiamine to process sugar and turn it into energy, lactic...
  6. @KL443, Sorry to hear you are feeling so poorly. I was not able to take Omeprazole because it made my stomach and digestive tract hurt worse. There is scientific research that shows that proton pump inhibitors like omeprazole and antidepressants cause continuing inflammation and damage in the digestive tract. You may try discontinuing...
  7. Hi, Faye! What was the medication? Some medications themselves can cause worsening GI symptoms. Some medications can precipitate vitamin deficiencies which can manifest as the symptoms you've described.
  8. Thiamine Vitamin B 1 deficiency and Pyridoxine Vitamin B 6 deficiency can increase oxalate uptake. Absorption of glyoxylate and oxalate in thiamine and pyridoxine deficient rat intestine https://pubmed.ncbi.nlm.nih.gov/3947375/ "Dietary deficiency of thiamine or pyridoxine has been shown to produce hyperoxaluria and renal stone formation in...
  9. @KatrinaMindy, I've had hearing loss related to untreated Celiac Disease. I've had almost all those symptoms you listed. (No resection.) Please, please, please, get checked for nutritional deficiencies, especially Thiamine Vitamin B1, as soon as possible. Vitamin deficiencies need to be corrected as quickly as possible so the damage does not...
  10. @ravenwoodglass, I do hope it's not come to that! My heart goes out to you! There is a mounting body of evidence that high dose Thiamine (esp. Benfotiamine) can have anticancer effects. High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963161/ ...
  11. Welcome to the forum! I agree that current medical training leaves a lot to be desired. Doctors are trained in medical training institutions funded by pharmaceutical companies to dispense pharmaceuticals. Doctors are given about fifteen minutes of education about vitamins and nutrition in seven years of med school. How are they correcting...
  12. @Seethefacts, If you have not been diagnosed with Celiac Disease, know that you will have to consume regular amounts of gluten (10 grams/day) for up to eight to twelve weeks ( a gluten challenge) in order to test for antibodies to gluten in your blood. A minimum of two weeks of gluten consumption is required before an endoscopy to biopsy the small intestine...
  13. Are you taking a B Complex supplement? Several of the eight essential B vitamins can help reduce anxiety, Cobalamine B12, Thiamine B1, and Pyridoxine B 6. But all eight are needed for them to function properly. Magnesium and Vitamin D help, too. Anxiety and depression are early symptoms that you may have insufficiency in vitamins and minerals...
  14. Dermatitis Herpetiformis is a skin condition that occurs with Celiac Disease. DH can take different forms... Have you looked at the pictures in the photo bank in the Dermatitis Herpetiformis section of the forum? https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/
  15. Yes, I understand. Your son should use some pain he has experienced as a reference to describe his pain from stomach cramps. I'm concerned as to why he wants to use that particular comparison. He may get laughed at or bullied. Perhaps this may help.... "How can I describe my pain to my health care provider?" https://www.nichd...
  16. @PrismagicMushroom, Yes, Celiac Disease can be precipitated after an infection. During an infection, our bodies can run short on Vitamin B1, Thiamine. High dose Thiamine can help recovery. Vitamin D deficiency can cause symptoms of arthritis. Celiac Disease damages the small intestine where vitamins and minerals are absorbed. Supplementing...
  17. @PrismagicMushroom, What prompted you to go to the doctor? Maybe better said, what prompted the doctor to test for Celiac?
  18. Yes, I avoid the bakery section, too. Some highly sensitive people can have a reaction to inhaled gluten. We smell "stuff" because little molecules of that "stuff" get airborne and finds its way to our nose, triggering smell receptors. The "stuff" gets stuck in the mucus produced by the mucus membranes in the nose which drains down the back...
  19. @PrismagicMushroom, Welcome to the club! Looks like your DGP test is positive and you only need one positive test. Have you been eating gluten prior to the blood tests?
  20. @Sarah8527, That's like comparing apples and oranges. I discourage the use of that comparison. It's two different organs that function in two different ways, hence different kinds of pain. Instead use some injury your son is more familiar with. If your son ever got a Charlie horse, stubbed his toe, or sprained his ankle. Or better yet, say...
  21. White rice is easily broken down into glucose. Our brains like to run on glucose. Unfortunately, white rice is usually enriched with thiamine mononitrate, which is shelf stable, but not a bioavailable form our bodies can use. Benfotiamine is a form of thiamine that helps promote healing in the small intestine. Hiding in Plain Sight:...
  22. Exactly! Not staying on gluten until all testing is completed is a huge problem! Many doctors don't understand that antibodies go away if one goes off gluten. We have many members who have questionable blood tests for the reason they tried a gluten free diet at home, felt better, then went to the doctor and asked for Celiac tests. Their antibodies...
  23. @Rogol72, Just a few weeks, if even that. I had improvement in digestive symptoms within the first few days which kept improving. It wasn't long before my bloated (ten months pregnant looking) abdomen began to flatten and I could find my hip bones again. Six to eight weeks maybe. No, I did not take probiotics nor antimicrobials. The microbiome...
  24. @Lizi, I encourage you to eliminate dairy, too. The protein in dairy, casein, resembles the gluten molecule (molecular mimicry), so dairy can cause continuing inflammation. Dairy is debilitating for me. I get dizzy, depressed and demented when I consume dairy. Dairy and gluten are sources of exogenous opioids. We have opioid receptors...
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