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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Hope this helps!
  2. knitty kitty
    @Maxipoo, Getting checked for vitamin and mineral deficiencies is part of proper follow up care for Celiac people. It's common to have more than one deficiency in Celiac Disease. Unfortunately, medical professionals are not given much training in nutritional deficiency symptoms. Vitamin deficiencies need to be corrected quickly so that the damage...
  3. knitty kitty
    Have you eliminated dairy products from your diet? Do you eat lots of spinach? Peanuts? Soy? These are foods high in oxalates, which form kidney stones. Passing a kidney stone can cause pain in the lower abdomen, back, and groin. Here's an article with more information... https://www.iowaclinic.com/urology/early-signs-kidney-stones...
  4. knitty kitty
    I believe you that you're gluten free. But, what are you eating? Do you eat nuts? Legumes (aka beans)? Citrus fruit? Snails? Processed gluten free facsimile foods? Lollipops? Daisies? 😸
  5. knitty kitty
    What symptoms are you having? What do you include in your diet? Do you keep a food journal?
  6. knitty kitty
    @Emanon, How long have you been eating less than 400 calories? You may be suffering from malnutrition. You may be having a bad reaction to foods because you are so deficient in vitamins that your body can't process it. I'm familiar with your description of your brain function. I felt that way when I was not absorbing sufficient nutrients...
  7. knitty kitty
    Yes, that's the way to go! I make most of my food with very little processed foods. I limit my amount of carbohydrates (sugar and potatoes) because I have Type Two Diabetes. Yes, there is lots to learn! Asking questions is a good way to learn. How are you feeling? The B Complex vitamins should make the tingling in your fingers...
  8. knitty kitty
    It's nutritional deficiencies in Calcium and Vitamin D. Calcium can be reabsorbed from teeth as well as bones. As we age, we can have difficulty absorbing certain minerals like calcium from our foods. Excluding dairy, a great source of calcium, makes getting sufficient calcium from foods more difficult. Leafy green vegetables like kale...
  9. knitty kitty
    @Russ H, Some plain old horse sense would work wonders, too. Be aware of your heritage. My surname is a clue that I'm from Northern European descent which is one of the groups with the highest rate of Celiac Disease. I have an article for you on the search for better diagnostic testing... Evaluating Responses to Gluten...
  10. knitty kitty
    So is ten or more years of being misdiagnosed... loss of health, loss of quality of life, loss of employment.... ....while the doctors are enjoying their yachts.... Celiac disease isn't a disease of the past. May is Celiac Disease Awareness month!
  11. knitty kitty
    @LP023, Since Celiac Disease is genetic, a lot of the misdiagnosis runaround could be cut out if a DNA screening for Celiac genes is done early on in symptomatic people with family history of digestive problems or other health issues consistent with untreated Celiac Disease. While not all Celiac genes are known, and having the genes doesn't mean...
  12. knitty kitty
    @Nita hearn, Hello! Welcome to the forum! Age doesn't matter here. Since you've been recently diagnosed, you're a youngster. Talk with your doctor about supplementing with extra B Complex vitamins along with a multivitamin. In correcting vitamin insufficiency, we need more than the daily requirements because we have to replenish the depleted...
  13. knitty kitty
    @CareyOsborne, Do you have a Carbon Monoxide detector in your home? Carbon Monoxide poisoning can cause similar symptoms as Gluten Ataxia. A slow Carbon Monoxide leak can build up so subtly you don't notice the tell-tale rotten egg smell put in for safety. Try opening some windows or get outside and see if you feel better.
  14. knitty kitty
    I think consistency is important. If you are going to take B Complex vitamins and Benfotiamine, take them every day. There is what is called the thiamine paradox, where you if you start to feel worse or like you have the flu, cut back on the amount of Thiamine or Benfotiamine. If fatigue returns, increase your thiamine slowly. Take B...
  15. knitty kitty
    Hello, @Emma84, One statement you made on another thread... "I’ve been gluten free for 2 years, then ate for 5 weeks prior to bloodwork and it will be 6 weeks for endoscopy. Should that be accurate?" During a Gluten Challenge recommendations vary about the amount of gluten to consume... from 3-10 gm of gluten a day, (equivalent to approximately 4...
  16. knitty kitty
    A couple of articles for you... Epileptic manifestations and vitamin B1 deficiency https://pubmed.ncbi.nlm.nih.gov/2044623 "Sixteen of 50 consecutive neurological patients with a diagnosis of thiamine deficiency showed epileptic or epileptiform manifestations. A survey of the literature revealed only few reports on a possible relationship...
  17. knitty kitty
    Do you eat other veggies besides those in your green smoothie? Some vegetables must be cooked in order for the nutrients to be available for absorption in the digestive tract. Neurological symptoms can be caused by B12 deficiency, but also we need Thiamine B1, Riboflavin B2, Niacin B3, Pyridoxine B6, and Folate B9 to help Cobalamine B12 and...
  18. knitty kitty
    @CareyOsborne Hi, I'm sorry you're having such problems. In Celiac Disease, malabsorption affects all the essential vitamins and minerals across the board. I had severe vitamin deficiencies in several vitamins, but the one vitamin deficiency that caused severe ataxia was Thiamine. Anxiety, panic attacks, slurred speech, deep dark depression...
  19. knitty kitty
    @Moogle39, Take the test for deficiency before you start supplementing, otherwise a blood test will just reflect the vitamin supplement. You might want to add more Vitamin C foods to your diet, too. Keep us posted on the results! Best wishes!
  20. knitty kitty
    @heyitsmissa, Did you ever get an endoscopy with several biopsy samples taken from the small intestine? Have you been eating gluten all this time???!!!??? Why didn't they diagnose Celiac based on your previous tests? Are you taking any medications? I'm thinking vitamin deficiencies. Vitamin D deficiency Vitamin D...
  21. knitty kitty
    Hi, @Moogle39, Do you have diabetes or pre-diabetes? Have you been getting enough Vitamin C? What sorts of food are you eating?
  22. knitty kitty
    @Raquel2021, Sorry to hear you're still having some problems. I suggest you try the Autoimmune Protocol Diet, designed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. The AIP diet has been scientifically studied and shows the diet helps reduce inflammation and helps in healing the digestive tract. The AIP diet doesn't include...
  23. knitty kitty
    @herminia, Celiac Disease is not "a gluten allergy". Celiac Disease is an autoimmune disease. An allergy is a different type of immune response. One can have Celiac and also have an allergy to wheat. Let's get on the same page with our terminology. 😸
  24. knitty kitty
    Looks awful. It only has Vitamins A and C. All the rest of the list are amino acids. Not vitamins. Amino acids are like building blocks. You need vitamins to stick them together to make proteins that build muscles.
  25. knitty kitty
    I just wanted to add that you only need one gene for Celiac Disease to potentially develop. You can inherit one Celiac gene from your mom and develop Celiac Disease.
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