knitty kitty
-
Posts
3,669 -
Joined
-
Last visited
-
Days Won
178
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by knitty kitty
-
Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis. Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food. With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins...
- 17 replies
-
- 1
-
-
- advice
- diagnostic
- (and 3 more)
-
Yes, I, too, have osteoporosis from years of malabsorption, too. Thiamine and magnesium are what keep the calcium in place in the bones. If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer. We need more than just calcium and Vitamin D for strong bones. Riboflavin B 2, Folate B 9 and Pyridoxine...
-
Yes, I agree, most doctors miss the subtleties of Celiac disease. The AIP diet was designed by a doctor who has Celiac herself, Dr. Sarah Ballantyne. Her book The Paleo Approach is most helpful. The AIP diet eliminates all grains and other pseudo grains like rice,corn and quinoa because they can be irritating to the digestive track. It eliminates...
-
Welcome to the forum, @petitojou! I lost a lot of weight, too. I found that I was low in the B vitamins and other essential nutrients. Vitamin B 1, Thiamine, is not usually tested, because blood tests are so inaccurate. Doctors are not familiar with vitamin deficiency symptoms any more. Low thiamine can cause fatigue, muscle weakness, nausea...
-
Aveeno products
knitty kitty replied to NicoleSR's topic in Gluten-Free Foods, Products, Shopping & Medications
I used Aveeno products for years and had to stop using it because my skin problems got worse. I do have Dermatitis Herpetiformis. Not all people with Celiac react to oats. I use tallow balm. People have been using it for thousands of years. Tallow balm is better absorbed that plant fats. There's also tallow balm soap. My favorite brand... -
Having a RAVENOUS appetite (or conversely no appetite at all - anorexia) and unintended weight loss are symptoms of early thiamine deficiency. People who are physically active, athletes, physical laborers, those who exercise outside regularly have a higher metabolic need for thiamine. Exercising outside regularly can cause more thiamine loss because...
-
@Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K. Vitamin A toxicity does not cause Celiac disease. Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation. Fish contains...
-
Neanderthals were pushed out of their hunting and gathering areas by humans clearing the land for growing grains. Since early Celiac disease processes may have few or no overt symptoms, and considering life span was much shorter back then, Celiac disease may not have been so detrimental to their health. Other indigenous peoples who developed...
-
@JForman, Did you know that Celiac disease genes can be traced back to the Neanderthals? At times I have found it amusingly distracting to think that we're eating according to our ancestors who had eaten gluten-free for thousands of years, before those homo sapiens started growing grasses all over the place. (Yes, grains evolved from grasses...
-
Draft gluten-free ciders… can they be trusted ?
knitty kitty replied to Rejoicephd's topic in Coping with Celiac Disease
@Rejoicephd Getting glutened and gastrointestinal Beriberi have very similar symptoms! Drinking alcohol cleaves thiamine in half making it useless. A twenty percent increase in dietary thiamine produces an eighty percent increase in brain function. Symptoms seem to wax and wane mysteriously, depending on how much thiamine you absorb from... -
This article explains how thyroid problems and Celiac are connected... Celiac Disease and Autoimmune Thyroid Disease: The Two Peas in a Pod https://pmc.ncbi.nlm.nih.gov/articles/PMC9312543/
-
@lehum, I found great improvement by following the low histamine version of the Autoimmune Protocol Diet (Dr. Sarah Ballantyne, a Celiac herself designed it; her book, the Paleo Approach, is very helpful!) Following the low histamine AIP diet, I cut out all nuts, all dairy, all grains and rice, all processed gluten free foods, Eggs, and all nightshades...
-
Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
knitty kitty commented on Scott Adams's article in Autumn 2025 Issue
There's a study from PubMed NIH that found that thiamine deficiency gets relayed to the DNA inside cells' mitochondria which in turn switches on autoimmune genes. Vaccines or any infection can precipitate a thiamine deficiency in folks who are already low in thiamine (like from poor absorption or a high carbohydrate diet or drinking alcohol). There... -
@FayeBr, Yes, blood tests for thiamine are notoriously inaccurate. Thiamine works inside cells. The blood stream is a transport system, not an accurate measure of the amount of usable thiamine inside cells. The best way to see if you're in need of thiamine, according to the World Health Organization, is to take thiamine for a while and look for health...
-
@cristiana, Thiamine is found in meats, which you've cut down on recently. Liver is an excellent source of B vitamins, including thiamine and B12, and iron. Benfotiamine is a great thiamine supplement. It helps promote intestinal healing. Take a B Complex also, and magnesium. Thiamine and magnesium work together. Magnesium will also help relax...
-
Oh, @FayeBr, you poort thing! I've had episodes similar to yours, taking something that is supposed to help, but makes symptoms worse. You're not alone. Hold tight, we'll get you through this. Acid reflux can be caused by not enough digestive enzymes, contrary to the assumption that overproduction of digestive acids causes acid reflux. The cells...
-
I tried algae based calcium supplements, but because I have Dermatitis Herpetiformis I broke out with dermatitis herpetiformis blisters. Do be careful. Iodine, whether in iodized salt or seaweed or some types of fish, can stimulate dermatitis herpetiformis. I stick to cruciferous veggies (broccoli, kale and other green leafy veggies), but I avoid spinach...
-
So sorry to hear you are going through this! What OTC med did you take?
-
Yep,yep,yep, called it from experience. I've lived through SIBO and Candida myself. I get a different sorts of reactions to dairy, high sugar consumption, and gluten. I react to Casein, the protein in dairy. Try the AIP diet. Dr. Sarah Ballantyne designed it and is a Celiac herself. Her book, the Paleo Approach, has been most helpful.
-
Yes, I know. Without sufficient Folate, Cobalamine, and Pyridoxine, the body can't get rid of high homocysteine levels. High homocysteine levels make one restless, interferes with sleep and resembles ADHD symptoms. High homocysteine levels occur in Celiac Disease. Chronic high histamine levels lead to high homocysteine levels. Impact of supplementation...
-
@MMeade, People who get over-methylated are frequently low in Pyridoxine Vitamin B6. Pyridoxine helps regulate the methylation process so it doesn't run amok. P-5-P is the active form. All eight essential B vitamins work in concert together. Just taking one or two can throw the rest out of balance. If you have malabsorption as occurs in Celiac...
-
@Rejoicephd, I took high dose Vitamin D to correct my severe deficiency quickly. It's safe to do this. I felt much better once my Vitamin D level was about eighty ng/mL. Vitamin D works as a hormone and helps calms the immune system between 80 - 100 ng/mL. High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee...
-
@cristiana, I'm glad your A1Cs have come back as normal! Penicillin based antibiotics like flucloxacillin can deplete thiamine, but low thiamine won't cause high mchc. But SIBO bacteria will take advantage of low thiamine and all those oats to become overgrown. SIBO bacteria can interfere with iron and B12 absorption and may cause high mchc...
-
Hi, @cristiana, @trents is correct. Red blood cell size is important. High blood glucose blood levels can affect red blood cells causing them to bloat, then shrink which causes the iron to become concentrated, thus higher mchc. Have you increased your carbs to compensate for reducing your meat? All those oats? Have you had an A1C test...
-
@RejoicephdRejoicephd, Glad you're continuing the vitamin supplementation. High dose Thiamine has been shown to improve fibromyalgia symptoms. Vitamin D also helps. Interesting Reading: High-dose thiamine improves the symptoms of fibromyalgia https://pmc.ncbi.nlm.nih.gov/articles/PMC3669831/ And... The Role of Nutrient Supplementation...
