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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Ocd making gluten fears unmanageable. Need advice
knitty kitty replied to Dora77's topic in Coping with Celiac Disease
@Dora77, You shouldn't worry about getting glutened through your skin. You would have to touch a gluten infested doorknob and then put your hand in your mouth. I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles. These methods cause particles of gluten to become airborne which would then enter...- 9 replies
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Ocd making gluten fears unmanageable. Need advice
knitty kitty replied to Dora77's topic in Coping with Celiac Disease
Hello, @Dora77, I agree with you that your doctors aren't very knowledgeable about Celiac Disease. My doctors didn't recognize nutritional deficiencies either. I became very deficient in vitamins before I was diagnosed, so having experienced similar, I understand what a difficult time you're having. Poor absorption of essential nutrients is...- 9 replies
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I'm fine as long as I stay away from gluten. My Celiac went undiagnosed for too long and I accumulated health problems. If I can help others on their journey, everything has been worthwhile.
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I take the essential vitamins and minerals all the time to ensure that I'm absorbing sufficient amounts because the gluten free diet can be lacking in some nutrients. I take the magnesium, tryptophan and passion flower when I can't sleep. I crushed three vertebrae (Osteopenia), so sometimes it's difficult to get comfortable. I avoid gluten...
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You have one gene for Celiac. You have a second autoimmune disease, Hashimoto's thyroiditis, which is frequently found at a higher rate with Celiac. HLA genes carry autoimmune disease genes like Celiac and Hashimoto's and diabetes and others. You have Celiac symptoms of reacting after gluten. You said "I am however still suffering from the effects...
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Histamine is released by mast cells as a part of the autoimmune response. Histamine also happens to be a neurotransmitter that causes alertness, hence the insomnia. You know that cup of coffee in the morning so you can wake up? Releases histamine. Diamine Oxidase (DAO) enzymes help break down histamine, as do Vitamin B12 Cobalamine and Vitamin C....
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@Zuma888, The antibodies produced in response to gluten are made in the intestines. When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream. Once in the blood stream, the antibodies can be measured with tTg IgA tests. Three grams of gluten per day for two weeks minimum is enough gluten to...
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I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin. The flushing is harmless and goes away the longer Niacin is taken. The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters. TTg 2 IgA antibodies are found in the blood and are...
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Meniers and celiac are they related
knitty kitty replied to nataliallano's topic in Related Issues & Disorders
Yes, Vitamin D is frequently low in Celiac Disease and Meniere's both. Ask for an Erythrocyte Transketolace test to check for thiamine insufficiency. Diuretics can cause excess thiamine loss. Benfotiamine is a form of thiamine that improves intestinal health. Thiamine in the form TTFD (Tetrahydrofurfuryl Disulfide) helped improve my Meniere's syndrome... -
Meniers and celiac are they related
knitty kitty replied to nataliallano's topic in Related Issues & Disorders
Welcome to the forum, @nataliallano, There's a dozen or so vitamins and about as many minerals that our bodies need to live and thrive. Our vitamins and minerals can become depleted in Celiac Disease due to malabsorption and inflammation, so we need to eat a nutritionally dense diet, and keep inflammation to a minimum. -
Inflammation and Menier’s disease link?
knitty kitty replied to MagsM's topic in Related Issues & Disorders
No, not if you've got an official diagnosis already. Let's continue our conversation on this thread... Thanks -
Meniers and celiac are they related
knitty kitty replied to nataliallano's topic in Related Issues & Disorders
Welcome to the forum, @nataliallano, What was done to correct your anemia??? Have you been tested for other nutritional deficiencies besides iron? You will want to get checked for nutritional deficiencies before starting supplementing essential vitamins and minerals. -
Inflammation and Menier’s disease link?
knitty kitty replied to MagsM's topic in Related Issues & Disorders
Welcome to the forum, @nataliallano, Have you been tested for Celiac Disease before going gluten free? You may want to continue with a diet containing gluten until all testing us done. At least get a genetic test to see if you have any of the common genes needed to develop Celiac Disease. Do you have any gastrointestinal symptoms? Some people... -
Inflammation and Menier’s disease link?
knitty kitty replied to MagsM's topic in Related Issues & Disorders
@MagsM, Try Elliott Overton's site in England... He has a lot of information on his site about Alzheimer's and thiamine and sells TTFD as Thiamax. (Good stuff!) https://www.eonutrition.co.uk/ -
It's not allergies. Segments of the protein in corn, yeast, and dairy resemble segments if the protein gluten. Our antibodies get triggered on the segments no matter where they are from. Then the antibodies get really confused and attack our own cells which have segments resembling the protein gluten in the cell membrane. Hence, Celiac is an autoimmune...
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@thejayland10, The fact that your tTg IgA is slightly elevated after ten years gluten free suggests there's something going on. We want all the antibodies to go away. As long as they are around, our body is in a state of inflammation that can have long term deleterious effects outside of the gastrointestinal tract. Have you had your thyroid checked...
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@lizzie42, I have dermatitis herpetiformis outbreaks when I am exposed to foods high in iodine. Iodine can cause dermatitis herpetiformis to flair up badly. So I avoid high iodine foods like dairy products, crustaceans (shrimp, crab, lobster, shellfish), Eggs, and iodized table salt. Spinach, potatoes, kale, and kelp are high in iodine, too. The...
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Hi, @thejayland10, Do you still consume dairy? Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten. You might try cutting out the processed gluten free foods. Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol...
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Can Celiac flares affect my eyes?
knitty kitty replied to jeriM's topic in Related Issues & Disorders
Hi, @jeriM, I can attest to Celiac and eye problems being connected! There's a higher rate of Sjogren's Syndrome in Celiac people than in those without celiac disease. Sjogren's Syndrome causes dry eyes and can even lead to dry mouth which can alter taste and smell. Have your doctor check for Sjogren's. Correct low Vitamin D, which regulates... -
I agree, low carb/no carb is the best way to go. I follow the Autoimmune Protocol Diet, a ketogenic Paleo diet, for my diabetes and celiac disease. I keep carbs low. The AIP diet helps immensely to keep my blood glucose levels in range. I supplement with Benfotiamine, a form of thiamine, because the pancreas uses lots of thiamine to make insulin and...
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@mytype1diabetes, Do keep in mind that Celiac Disease is genetic, so all first degree relatives (parents, siblings) should be checked for celiac disease as well. Thiamine deficiency is common in breastfeeding mothers and their babies, even in countries where people are well fed and eat healthy. A high carbohydrate diet requires more thiamine...
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Welcome to the forum, @mytype1diabetes, Your statement that your daughter has become itchy and has hair loss made me think of iron deficiency. Those were the same symptoms i had when I was iron deficient. Was she tested for iron deficiency anemia at the time of her diabetes diagnosis? Seems in the early stages of iron deficiency anemia, blood...
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Inflammation and Menier’s disease link?
knitty kitty replied to MagsM's topic in Related Issues & Disorders
@MagsM and @leenora, Thiamine improves Alzheimer's. Thiamine has anticancer effects in high doses. Thiamine helps improve Hashimoto's. I'm linking information you may find helpful. Evaluation of neuroprotective role of benfotiamine in Alzheimer's disease model: A randomized control study https://pubmed.ncbi.nlm.nih.gov/40176579/ Supplemental...