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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Dora77, You shouldn't worry about getting glutened through your skin. You would have to touch a gluten infested doorknob and then put your hand in your mouth. I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles. These methods cause particles of gluten to become airborne which would then enter...
  2. knitty kitty
    Hello, @Dora77, I agree with you that your doctors aren't very knowledgeable about Celiac Disease. My doctors didn't recognize nutritional deficiencies either. I became very deficient in vitamins before I was diagnosed, so having experienced similar, I understand what a difficult time you're having. Poor absorption of essential nutrients is...
  3. knitty kitty
    I'm fine as long as I stay away from gluten. My Celiac went undiagnosed for too long and I accumulated health problems. If I can help others on their journey, everything has been worthwhile.
  4. knitty kitty
    I take the essential vitamins and minerals all the time to ensure that I'm absorbing sufficient amounts because the gluten free diet can be lacking in some nutrients. I take the magnesium, tryptophan and passion flower when I can't sleep. I crushed three vertebrae (Osteopenia), so sometimes it's difficult to get comfortable. I avoid gluten...
  5. knitty kitty
    You have one gene for Celiac. You have a second autoimmune disease, Hashimoto's thyroiditis, which is frequently found at a higher rate with Celiac. HLA genes carry autoimmune disease genes like Celiac and Hashimoto's and diabetes and others. You have Celiac symptoms of reacting after gluten. You said "I am however still suffering from the effects...
  6. knitty kitty
    Histamine is released by mast cells as a part of the autoimmune response. Histamine also happens to be a neurotransmitter that causes alertness, hence the insomnia. You know that cup of coffee in the morning so you can wake up? Releases histamine. Diamine Oxidase (DAO) enzymes help break down histamine, as do Vitamin B12 Cobalamine and Vitamin C....
  7. knitty kitty
    @Zuma888, The antibodies produced in response to gluten are made in the intestines. When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream. Once in the blood stream, the antibodies can be measured with tTg IgA tests. Three grams of gluten per day for two weeks minimum is enough gluten to...
  8. knitty kitty
    I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin. The flushing is harmless and goes away the longer Niacin is taken. The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters. TTg 2 IgA antibodies are found in the blood and are...
  9. knitty kitty
    Yes, Vitamin D is frequently low in Celiac Disease and Meniere's both. Ask for an Erythrocyte Transketolace test to check for thiamine insufficiency. Diuretics can cause excess thiamine loss. Benfotiamine is a form of thiamine that improves intestinal health. Thiamine in the form TTFD (Tetrahydrofurfuryl Disulfide) helped improve my Meniere's syndrome...
  10. knitty kitty
    Welcome to the forum, @nataliallano, There's a dozen or so vitamins and about as many minerals that our bodies need to live and thrive. Our vitamins and minerals can become depleted in Celiac Disease due to malabsorption and inflammation, so we need to eat a nutritionally dense diet, and keep inflammation to a minimum.
  11. knitty kitty
    No, not if you've got an official diagnosis already. Let's continue our conversation on this thread... Thanks
  12. knitty kitty
    Welcome to the forum, @nataliallano, What was done to correct your anemia??? Have you been tested for other nutritional deficiencies besides iron? You will want to get checked for nutritional deficiencies before starting supplementing essential vitamins and minerals.
  13. knitty kitty
    Welcome to the forum, @nataliallano, Have you been tested for Celiac Disease before going gluten free? You may want to continue with a diet containing gluten until all testing us done. At least get a genetic test to see if you have any of the common genes needed to develop Celiac Disease. Do you have any gastrointestinal symptoms? Some people...
  14. knitty kitty
    @MagsM, Try Elliott Overton's site in England... He has a lot of information on his site about Alzheimer's and thiamine and sells TTFD as Thiamax. (Good stuff!) https://www.eonutrition.co.uk/
  15. knitty kitty
    It's not allergies. Segments of the protein in corn, yeast, and dairy resemble segments if the protein gluten. Our antibodies get triggered on the segments no matter where they are from. Then the antibodies get really confused and attack our own cells which have segments resembling the protein gluten in the cell membrane. Hence, Celiac is an autoimmune...
  16. knitty kitty
    @thejayland10, The fact that your tTg IgA is slightly elevated after ten years gluten free suggests there's something going on. We want all the antibodies to go away. As long as they are around, our body is in a state of inflammation that can have long term deleterious effects outside of the gastrointestinal tract. Have you had your thyroid checked...
  17. knitty kitty
    @lizzie42, I have dermatitis herpetiformis outbreaks when I am exposed to foods high in iodine. Iodine can cause dermatitis herpetiformis to flair up badly. So I avoid high iodine foods like dairy products, crustaceans (shrimp, crab, lobster, shellfish), Eggs, and iodized table salt. Spinach, potatoes, kale, and kelp are high in iodine, too. The...
  18. knitty kitty
    Hi, @thejayland10, Do you still consume dairy? Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten. You might try cutting out the processed gluten free foods. Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol...
  19. knitty kitty
    HypOthyrOidism is HashimOtO's thyrOiditis. HypeRthyRoidism is GRaves disease.
  20. knitty kitty
    Hi, @jeriM, I can attest to Celiac and eye problems being connected! There's a higher rate of Sjogren's Syndrome in Celiac people than in those without celiac disease. Sjogren's Syndrome causes dry eyes and can even lead to dry mouth which can alter taste and smell. Have your doctor check for Sjogren's. Correct low Vitamin D, which regulates...
  21. knitty kitty
    I agree, low carb/no carb is the best way to go. I follow the Autoimmune Protocol Diet, a ketogenic Paleo diet, for my diabetes and celiac disease. I keep carbs low. The AIP diet helps immensely to keep my blood glucose levels in range. I supplement with Benfotiamine, a form of thiamine, because the pancreas uses lots of thiamine to make insulin and...
  22. knitty kitty
    Hair loss is also a symptom of thiamine insufficiency. Peripheral neuropathy, another thiamine insufficiency symptom, can cause a feeling of itchiness on the skin without a rash.
  23. knitty kitty
    @mytype1diabetes, Do keep in mind that Celiac Disease is genetic, so all first degree relatives (parents, siblings) should be checked for celiac disease as well. Thiamine deficiency is common in breastfeeding mothers and their babies, even in countries where people are well fed and eat healthy. A high carbohydrate diet requires more thiamine...
  24. knitty kitty
    Welcome to the forum, @mytype1diabetes, Your statement that your daughter has become itchy and has hair loss made me think of iron deficiency. Those were the same symptoms i had when I was iron deficient. Was she tested for iron deficiency anemia at the time of her diabetes diagnosis? Seems in the early stages of iron deficiency anemia, blood...
  25. knitty kitty
    @MagsM and @leenora, Thiamine improves Alzheimer's. Thiamine has anticancer effects in high doses. Thiamine helps improve Hashimoto's. I'm linking information you may find helpful. Evaluation of neuroprotective role of benfotiamine in Alzheimer's disease model: A randomized control study https://pubmed.ncbi.nlm.nih.gov/40176579/ Supplemental...
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