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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back. The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction. Keep us posted on your...
  2. knitty kitty
    Hello, @Cat M, welcome to the forum! I noticed you are low in ferritin and thiamine as well as other nutritional deficiencies already. Deficiencies in iron and thiamine affect your body's ability to make antibodies. Since you do have symptoms, nutritional deficiencies evidence of malabsorption, MTHFR and one celiac gene, I'm suspecting you do have...
  3. knitty kitty
    Welcome to the forum, @kopiq, Have you been checked for nutritional deficiencies? Nutritional deficiencies may account for many of your symptoms. Celiac damages the intestines which lowers our ability to absorb essential vitamins and minerals. Have you been referred to a dietician to discuss a nutritionally dense gluten free diet? You are eating...
  4. knitty kitty
    @DebJ14, Yes, Celiac Disease causes malabsorption of all the essential vitamins and minerals, not just thiamine. All the B vitamins work together and many minerals are needed as well. If one is missing, the rest can't work well without it. Thiamine is used at the beginning of the energy production cycle and interacts with each of the other B...
  5. knitty kitty
    @MagsM Did your doctor do the DGP IgG and DGP IgA tests or the tTg IgG test. It looks like he just tested total IgG. Were you taking any medications or over the counter stuff before the test? Some can suppress the immune system and cause false negatives.
  6. knitty kitty
    Migraines can be caused by Thiamine deficiency. Thiamine is a B vitamin that becomes depleted quickly because it can't be stored long. All the B vitamins work together to make energy, ATP, which is used to fuel all the cell activity. Without Thiamine, the energy production cycle doesn't even get started. There's studies done on mice showing thiamine...
  7. knitty kitty
    Thiamine can help protect the brain from damage. White spots in the brain can be caused by Thiamine deficiency. Correcting nutrient deficiencies in Celiac Disease and boosting our absorption of vitamins and minerals by taking supplements can help repair and improve our health.
  8. knitty kitty
    Thank you, @Oldturdle, I greatly appreciate that. I've always been a curious kitty. I wanted to figure out why I didn't feel well because I knew it wasn't all in my head like they told me. It pleases me to be able to help others in the same boat. Yes, alcohol prevents the absorption of thiamine and stops thiamine from working properly. This...
  9. knitty kitty
    @Rebeccaj, You may choose to get tested to see if you have an allergy to wheat. That's a different type of immune response to wheat than Celiac Disease. It's possible to have both. You may need an Epipen. A histamine release in the sinuses upon being exposed to wheat in wheat allergy can cause a headache. Talk to your doctor about wheat...
  10. knitty kitty
    Yes, except for the most sensitive, cross contamination from airborne gluten should be minimal. Highly sensitive people may have nutritional deficiencies. Many times their bodies are in a highly inflamed state from Celiac, with high levels of histamine and homocysteine. Vitamins are needed to break down histamine released from immune cells like mast...
  11. knitty kitty
    Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure. These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract. Joints can ache, thyroid problems or the pancreas can develop. Ataxia is just one of over two hundred...
  12. knitty kitty
    @Rebeccaj, When you smell toast or pasta cooking, that means that particles of that food are floating around in the air. Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract. If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies...
  13. knitty kitty
    Do discuss this recent article with your doctors. Thiamine Vitamin B 1 is important to intestinal health. Thiamine deficiency can occur in Celiac Disease due to malabsorption. Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms. Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming...
  14. knitty kitty
    Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do. Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins...
  15. knitty kitty
    Do be sure to talk to your doctors and dieticians about supplementing with a B Complex and extra Thiamine (Benfotiamine, TTFD, thiamine hydrochloride) and other nutrients one might be low in due to malabsorption of nutrients in Celiac Disease. This study shows that Thiamine deficiency and Vitamin C deficiency is frequently found in Hashimoto's. From...
  16. knitty kitty
    Hi, @Rebeccaj, Those Villa that get damaged by eating gluten are the same villi that absorb nutrients from our food. Damaged villa can't absorb nutrients, vitamins and minerals well. If we don't get sufficient nutrients, our body can't function properly. We can get brain fog, pins and needles or neuropathy, feeling off balance, and even worsening...
  17. knitty kitty
    Thiamine interacts with all the other B vitamins. Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of. The body can control which vitamins to absorb or not. You're absorbing more and it's being transported through the blood. ...
  18. knitty kitty
    Have you tried lip balm made from tallow? It's been used for thousands of years and works better than those with waxes. I prefer Vintage Traditions brand tallow balm products.
  19. knitty kitty
    Are you taking a B 6 supplement or a supplement containing B 6 like a B Complex? Do you have pins and needles in your toes? Don't worry about the thiamine being high. The blood is a transport system that carries thiamine to the cells so they can store it. It's fine.
  20. knitty kitty
    I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up. I know what a struggle it is. You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies...
  21. knitty kitty
    @Ginger38, I'm with you! I could not take Metformin. I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting. Just horrible. Metformin is known to block thiamine absorption. Talk to your doctor about thiamine deficiency. It's called Gastrointestinal Beriberi. My doctor didn...
  22. knitty kitty
    Welcome to the forum, @Jmartes71, Wow! 31 years! That's great! You can get a DNA test to show genes specifically for Celiac. Your genes don't change whether you eat gluten or not. Have you been checked for nutritional deficiencies? The gluten free diet can be low in essential nutrients. You may have become a bit deficient after such...
  23. knitty kitty
    Lysine is helpful for "cold sores" (oral herpes).
  24. knitty kitty
    @Wheatwacked, Are you aware of the interaction of potassium iodide and losartan ? https://www.drugs.com/drug-interactions/iodine-potassium-iodide-with-losartan-1368-0-1489-0.html#:~:text=Talk to your doctor before,to safely use both medications.
  25. knitty kitty
    @bold-95, welcome to the forum. Rib pain can be caused by Chondritis, an inflammation of the cartilage in the ribcage or breastbone. Vitamin D deficiency causes this condition and Osteopenia. Celiac disease damages the lining of the small intestine, making absorption of nutrients like vitamins difficult. Nutritional deficiencies result. Diseases...
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