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trents

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Everything posted by trents

  1. trents
    Ditto to what the others have said. All the evidence suggest you have celiac disease. But @Lizie, why are you asking this question at this point in time? There are some implicit questions raised by what you have told us so far. 1. Were you given a diagnosis of celiac disease back in the fall of 2023? 2. If you were given a diagnosis of celiac...
  2. trents
    @Ben Cohen, make sure you ask your physician to order a test called "Immunoglobulin A (IgA)" (aka, "total IGA"), which tests for IGA deficiency, along with the tTG-IgA. The tTG-IgA is the primary test used these days to check for celiac disease but if you are IGA deficient, the tTG-IgA will not be accurate. Some physicians neglect to check for IGA deficiency...
  3. trents
    Typical, I suppose.
  4. trents
    @jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread)...
  5. trents
    Yes, that might work as well.
  6. trents
    @Ben Cohen, it's pretty common to react more strongly when reintroducing gluten after having been off of it for some time. Before withdrawing it, when we are eating it everyday, we force our bodies to develop some modicum of tolerance, even though it is doing us harm. If you find that consuming 10g of gluten now makes you intolerably ill, you might start...
  7. trents
    @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
  8. trents
    Welcome to the celiac.com community, @Ben Cohen! Recently updated guidelines for the "gluten challenge" call for the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least 2 weeks. To ensure valid testing, I would certainly give it longer than two weeks.
  9. trents
    @Healthierbody2026, so you say here that you were diagnosed a few years back but in your first post you say you were recently diagnosed. I am totally confused!
  10. trents
    But you haven't yet answered my question about how sensitive to you are to minor amounts of gluten.
  11. trents
    @Healthierbody2026, as I said above, there is not a separate forum within this community for NCGS people and I do not know of one anywhere else. You sound uncertain whether your physician ordered blood tests for celiac disease or for diabetes. Do you have access online to your medical records and test results?
  12. trents
    There is not a distinct section in this particular online resource and community devoted to those with NCGS. And I cannot say with any certainty whether or not such a thing exists elsewhere online. But your question makes me think celiac.com might entertain the idea of starting a forum within our community for that purpose. I should explain that celiac.com...
  13. trents
    @Healthierbody2026, how sensitive to minor amounts of gluten are you? Do you react to cross contamination exposures or just to larger exposures, like when wheat, barley or rye (or their derivatives) are listed as an ingredient? Do have a read on this yet?
  14. trents
    @Healthierbody2026, yes, I got your PM. And thanks for the clarification. Do you have any particular questions about NCGS for the celiac.com community?
  15. trents
    I would think the fact that it happens even when you aren't concerned about a gluten exposure doesn't rule out the possibility of there being a subconscious root to this phenomenon. I would draw a parallel to those with PTSD who might have dreams about the trauma at any time, not just in connection to obvious triggering events. Your vigilance against getting...
  16. trents
    @Ping22, do you find these dreams usually happen after you have been in a situation where you fear you may have been exposed to gluten? Are you often in situations where you can't be sure whether or not you have been been exposed to gluten? I ask this because when I was still in my working years I found myself in those situations fairly frequently because...
  17. trents
    It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated.
  18. trents
    Welcome to the celaic.com community, @anya22! It is possible that the positive tTG-IGA result is being caused by something besides celiac disease but it is not likely, especially in view of your symptoms. By the way, you are confusing the terms "negative" and "positive" as they are used in medical testing. "Negative" means the test resulted in no...
  19. trents
    What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population...
  20. trents
    Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten...
  21. trents
    Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated...
  22. trents
    Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the...
  23. trents
    Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
  24. trents

    Help!!

    trents commented on Amiah's blog entry in Amiah

    Welcome to the celiac.com community, @Amiah! First of all, you would do well to post your question in one of the appropriate community forums rather than in a blog. It will get more attention that way. Now as to your question, there are some other things that can cause elevated igg antibodies besides celiac disease. Various infections, mostly. For...
  25. trents
    Yes, that is the suggestion.
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