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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- trents replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Elimination diet think I may be Gluten tolerant next steps to get tested? Questions
Technically speaking, the blood test is not required before the endoscopy/biopsy but you may have a hard time finding a physician willing to do an endoscopy/biopsy without it having been preceded by positive celiac blood antibody test scores. Positive antibody test scores provide the justification for going forward with an invasive, expensive procedure that... -
- trents replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
UK Member Looking For Help - Recent Test
@LeeRoy83, what RMJ is referring to is the test for IGA deficiency, often called "total IGA". It is not a celiac diagnostic test per se. However, if this test score is low (i.e., you are IGA deficient), the celiac IGA test scores cannot be trusted as they will be artificially low which may include false negatives. Possibly, RMJ is correct. But I'm looking... -
- Scott Adams replied to Deb67's topic in Gluten-Free Foods, Products, Shopping & Medications6
is Kirkland Imported French Brie gluten free?
In general, and I've visited many boutique cheese manufacturing facilities here in Sonoma County, CA, there is no wheat anywhere near them. Dairies generally don't process wheat products, and in cheese making cleanliness is next to godliness--they tend to keep things very clean to the point of sterile so their cheeses won't get contaminated with bacteria... -
- xxnonamexx replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Elimination diet think I may be Gluten tolerant next steps to get tested? Questions
Is the blood test required before endoscopy? Can it just go to endoscopy to test. Or would you need to be in gluten diet either way. Can you also be gluten sensitive but not sensitive to cross contamination? Thanks -
- RMJ replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
UK Member Looking For Help - Recent Test
Based on the units (g/L) and the normal range having both upper and lower limits, I would think this result is total IgA, not the celiac-specific tissue transglutaminase IgA. Is there another result for that?
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