Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

  • Record is Archived

    This article is now archived and is closed to further replies.

    Scott Adams
    Scott Adams

    By Scott Adams •

    Call to Unite All Celiac Support Groups in the United States of America

    Reviewed and edited by a celiac disease expert.

    The University Of Maryland Center For Celiac Research (CFCR) was established as an impartial, non-profit organization to improve the lifestyle of Celiacs through scientific research. As many of you know, we are presently conducting a nationwide six center serological study to determine the prevalence of Celiac Disease in the United States.

    Celiac.com Sponsor (A12):
    Scott Adams’ call for "... a conference among the different Celiac organizations to reach an agreement on what is safe and what is not?" sound like a reasonable approach to at least beginning the discussions essential to resolving this very difficult problem. Ann Whelan, in her May-June issue of "Gluten-free Living" enclosed an insert entitled "Time to Act...Unite Now". Maybe this single issue is a good place to start.

    We at the CFCR would like to offer our impartial auspices in putting together such a "Celiac Food Forum". Inviting food scientists, dieticians, nutritionists, support group leaders and interested Celiacs from the United States, Canada and other countries to discuss in open forum these very important issues.

    Please let us know if you think we may be of service by responding to Bob Levy, CFCR Volunteer, via his e-mail address "Open Original Shared Link" or by calling him at 410-486-0292.

    Dr. Alessio Fasano and Dr. Karoly Horvath, Co-Medical Directors - University Of Maryland Center For Celiac Research.


     Share
    Go to articles

    User Feedback

    Recommended Comments

    There are no comments to display.



    Guest
    This is now closed for further comments

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • About Me

    Scott Adams

    Scott Adams was diagnosed with celiac disease in 1994. Faced with a critical lack of resources, he dedicated himself to becoming an expert on the condition to achieve his own recovery.

    In 1995, he founded Celiac.com with a clear mission: to ensure no one would have to navigate celiac disease alone. The site has since grown into one of the oldest and most trusted patient-focused resources for celiac disease and the gluten-free lifestyle.

    His work to advance awareness and support includes:

    Today, Celiac.com remains his primary focus. To ensure unbiased information, the site does not sell products and is 100% advertiser supported.

    Scott Adams

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Related Articles

    Scott Adams
    Nutritionist Melissa Diane Smith, author of Going Against the Grain, has written a new book, Gluten Free Throughout the Year: A Two-Year, Month-to-Month Guide for Healthy Eating. I’m happy that today we at Celiac.com have the exclusive first interview with Melissa about her book.
    Scott: Hi Melissa, thank you for stopping by to answer my questions about your new book. I think this is a book that will interest many Celiac.com readers and we’re delighted to have you here.
    Melissa: I am delighted to be here. I really admire the work you do on this site and I’m thrilled to have Celiac.com be the first place to begin spreading the word about my new book.
    Q: Let’s start with this question: What was your primary goal in writing Gluten Free Throughout the Year?
    A: My primary goal wa...
    Jefferson Adams
    Celiac.com 11/04/2011 - For many folks, fall means changing leaves, crisp weather, football, and beer. Or just crisp weather and beer. Fortunately, for those with gluten sensitivities, the explosion of diagnoses for celiac disease and gluten-intolerance has given rise to an explosion of gluten-free products, including a number of gluten-free beers.
    "People are becoming more knowledgeable of the symptoms in which gluten can cause on one's health," said New Planet Beer Marketing Director Danielle Quatrochi, "so people are being diagnosed sooner and more often than before. There's also been a lot of press around the benefits of a gluten-free diet, opening the door for companies to add gluten-free options to their product mix."
    Gluten-free beers have often lacked depth compared to their...
    Miranda Jade
    Raise Awareness for Celiac Disease
    Celiac.com 04/13/2012 - There is a disease that affects one in every hundred Americans and causes physical and mental agony yet once it’s diagnosed, it can be easily treated with a change in diet and without the administration of drugs. You maybe haven’t even heard of it. You would think that the sufferers of this disease would be rather lucky to have such an easy treatment option available to them, right? As a matter of fact, it turns out that this disease—celiac, or coeliac, disease—may be easy to treat, but it’s very difficult for doctors to diagnose, and for the very reason that doctors haven’t heard of it either. It’s estimated that three out of every hundred of the people with celiac disease has been diagnosed. Only three out of every hundred!
    So why is it that most celiacs suffe...
    Miranda Jade
    Introducing Gluten to Your Infant
    This article originally appeared in the Autumn 2012 edition of Celiac.com's Journal of Gluten-Sensitivity.
    Celiac.com 11/25/2014 - As a celiac patient or relative of a celiac patient, many have come to understand the mental and physical symptoms of celiac disease directly or indirectly. Now the time has come for your infant to delve into the world of eating solid foods, most of which happen to contain gluten, especially the first baby cereals. If you’re like most mothers, it’s understandable that you would be nervous. In my gluten-free advocacy work and as a child of a celiac mother, I understand these concerns and am pleased to inform others of the fruits of celiac disease research regarding infants at risk for the disease, introducing gluten, and breastfeeding. These studies indi...

  • Recent Activity

    1. trents
      - trents replied to Judy M's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      New (possible) celiac diagnosis

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer. Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential...
    2. Judy M
      - Judy M posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      New (possible) celiac diagnosis

      My husband has had lactose intolerance for his entire life (he's 68 yo). So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours. He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect. He is scheduled for an endoscopy and...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Patiently Waiting to See Results

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative...
    4. Scott Adams
      - Scott Adams replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Gluten free beer ?

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    5. trents
      - trents replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Patiently Waiting to See Results

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748
    tessycork47
    Newest Member
    tessycork47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Popular Now

    • slkrav
      4
      Gluten free beer ?

      By slkrav
      Started

    • Jillian83
      4
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83
      Started

    • Francis M
      8
      The Happy Tart review

      By Francis M
      Started

    • Colleen H
      16
      Ibuprofen

      By Colleen H
      Started

    • Leeloff
      75
      How Come Gluten Didnt Bother Me In Italy

      By Leeloff
      Started

  • Popular Articles

    • Scott Adams
      144
      What Are the Symptoms of Celiac Disease?

      By Scott Adams

    • Scott Adams
      66
      Safe Gluten-Free Food List (Safe Ingredients)

      By Scott Adams

    • Scott Adams
      78
      Forbidden Gluten Food List (Unsafe Ingredients)

      By Scott Adams

    • Scott Adams
      60
      The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free

      By Scott Adams

    • Scott Adams
      72
      Gluten-Free Alcoholic Beverages

      By Scott Adams

  • Upcoming Events

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.