Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Swollen Tongue

Leis

Recommended Posts

Leis Rookie
Leis
Posted

Hello

I started a gluten free diet 3 weeks ago.  I have been bedbound for 11 years witha diagnosis of cfs.  I have been feeling a bit more clear headed but the last week ive started to slur my words.  Ive never had this before.  Today people cant understand me at all.  Its really got me quite scared.  I think my tongue is swollen.  Why is this happening?  I know i havent accidently eaten any gluten.  Would really appreciate some help, thanks. Leis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Do you have nursing care? If its a swollen tongue, that's usually an allergy and could be serious if it impedes breathing. And you know slurring could be a sign of a stroke. I think you need immediate medical care.

Leis Rookie
Leis
Posted
  • Author

Do you have nursing care? If its a swollen tongue, that's usually an allergy and could be serious if it impedes breathing. And you know slurring could be a sign of a stroke. I think you need immediate medical care.

Thanks Kareng

My boyfriend looks after me.  I dont think its a stroke as it came on gradually over the week.  I thought it might be an allergy but ive been eating quite simple food and nothing that ive never had before. Its not hugely swollen, just feels big in my mouth and is over my teeth instead of inbetween them.  I think its just too swollen to form words properly.  I hope it goes away, its embarrassing!  

kareng Grand Master
kareng
Posted

Thanks Kareng

My boyfriend looks after me.  I dont think its a stroke as it came on gradually over the week.  I thought it might be an allergy but ive been eating quite simple food and nothing that ive never had before. Its not hugely swollen, just feels big in my mouth and is over my teeth instead of inbetween them.  I think its just too swollen to form words properly.  I hope it goes away, its embarrassing!  

 

 

Ok....

 

Maybe you should call your doctor and run it by him/her.

anonymous-123 Rookie
anonymous-123
Posted

the tongue swelling happens to me usually a day or two after i eat pasta, bread, or beer.  but i'm not sure if that's your cause b/c you said you went gluten free.  it could be a different food that isn't agreeing with you.  when i tell my dr's about my swollen tongue they look at me like i'm crazy and i'm making it up and i've told the emergency room at the hospital, my allergy dr. and my primary dr. and no one can explain it, so i just pay attention to what i've eatin that was different that may have caused it.  it usually doesn't happen immediately after eating. sometimes it happens the day after eating pasta or bread or a new food that i haven't eaten before or in a while.  stress also makes me flare up.  i take zyrtec daily and I find that drinking peppermint tea and eating a tums before bed helps my swollen tongue come down a bit.   i think it has to do with my stomach.  not sure if that's same for you, but just try to pay attention when it happens and what you ate prior to it happening even what you ate the day before it happens.  i would also say you should contact your dr. just to get a checkup just in case it gets worse.  my dr. did give me an epipen just in case it were to ever get really bad.  good luck to you and hope your symptoms improve.

shadowicewolf Proficient
shadowicewolf
Posted

Allergies randomly come on. I never knew i had a tomato allergy until after i went gluten free.

Leis Rookie
Leis
Posted
  • Author

Thanks for your replies. I was thinking maybe an allergy was showing up.  Think it might be milk, i drink the lactose free stuff as im lactose intolerant.  Boo, i hope not.  The inside of my cheeks are swollen too, i hope this isnt going to happen all the time. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anonymous-123 Rookie
anonymous-123
Posted

Thanks for your replies. I was thinking maybe an allergy was showing up.  Think it might be milk, i drink the lactose free stuff as im lactose intolerant.  Boo, i hope not.  The inside of my cheeks are swollen too, i hope this isnt going to happen all the time. 

wow that definitely does sound like an allergy.  make sure to keep benedryl on hand just in case it gets worse.  hope you figure it out.  good luck and hope you feel better soon.

Leis Rookie
Leis
Posted
  • Author

Well its still swollen today but my inner cheeks seem to be more of a problem.  Theyve swelled up quite alot in the night!  Quite sore too as my teeth are cutting them and my tongue.  I tried an anti histamine last night but it didnt make much difference.  Im going to stay away from milk today and see if that helps! Thanks Leis x

anonymous-123 Rookie
anonymous-123
Posted

i was told by my dr that if i ingested something that caused my allergic reaction, to take pepcid as it also works like an antihistamine in the gut.  but i'm not sure if pepcid is gluten free or not.  i only took it when i had my huge hive breakout and stopped taking it after that. 

 

now if i have gut issues i just drink peppermint tea and tums or lemon water. i always take a daily antihistamine such as zyrtec. and when zyrtec doesn't work i take a benedryl on top of that. 

 

if you are not on antihistamines, maybe you should have allergy testing done.  that will tell you if you have any food allergies.

1desperateladysaved Proficient
1desperateladysaved
Posted

I just heard Dr. David Hilden on WCCO radio, Twin Cities, MN.   He felt If you had a swollen tongue you may have Celiac Disease.  He felt that could cause mal-absorption of vitamin B 12.  I was intensly interested since my tongue feels too big for my mouth sometimes.  I am on B 12.  I am not sure I am absorbing it.

 

Date today.  Sunday March 10,2013.  Perhaps one could find information if they asked WCCO.

 

I was truly amazed a doctor thought of the Celiac possibility right away.  I believe canker sores were mentioned in the same case as the swollen tongue.

 

Now, I will add my own thoughts.  I think even with supplements that mal absorption is an issue sometimes, so B 12 might be short.  What makes it better sometimes than others is what one might have to figure out to gain control.

cavernio Enthusiast
cavernio
Posted

My tongue never feels right, dry or swollen or sores on the sides. My b12 tests in a safe range, but I still take 1000ug every few days since it's never been too high. Dairy makes my tongue really dry. Never so bad as you're describing it though, it's a little extreme and warrants someone looking at it.

A lot of people seem to report feeling worse at around a 1 month mark, before they get better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
      1

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

      Dang. I had a moment of hope that I could change my BP med and get off the gluten-free diet. Nope. More seriously, I hadn't seen this articles about this phenomenon before. This is one of the possible answers for people who post here about having celiac symptoms (including biopsy) but normal IgA levels, especially if they are saying that diet isn't helping...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    3. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

      I love Middle Eastern food and eggplant, and here is another version we shared some time back:
    4. Scott Adams
      - Scott Adams replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      I was diagnosed with celiac 15 years ago.

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product...
    5. Scott Adams
      - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      357

      Terrible Neurological Symptoms

      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Zaalouk moroccan eggplant salad

      By Aretaeus Cappadocia · Posted

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      Zaalouk moroccan eggplant salad

      By Scott Adams · Posted

      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      I was diagnosed with celiac 15 years ago.

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Scott Adams
      Terrible Neurological Symptoms

      By Scott Adams · Posted

      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, that time period was a shingles pre-cursor, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
    • trents
      I was diagnosed with celiac 15 years ago.

      By trents · Posted

      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye.  Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as symptoms go, but they still may be causing some inflammation in the gut. Products derived from gluten-containing grains should also be avoided, for instance malt and malt flavoring. 
×
×
  • Create New...