Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

It All Makes Sense Now, If I Have Celiac Disease.

taynichaf

Recommended Posts

taynichaf Contributor
taynichaf
Posted

Sooo much to say...but after a year of trying to lose weight, I've come across celiac disease and the more I read about it, the more I thought I had it..

My symptoms now are depression, anxiety, irritability, bloating, tingling hands and feet, fatigue, muscle weakness, very gassy, frequent bowl moments and sometimes diarrhea..and very tired! Oh and I also have lost my period..

Does this sound like celiac to you?? Whenever I tried bringing it up to my mom she doesn't take it seriously, but I made a doctors appointment myself..

thus might be long, but if you keep reading I'll tell you about past celiac related issues.

The first one that I can remember was going to the doctor in about 4th grade because of reoccurring stomach pains.I got an x ray, and I think I was just really constipated or something, and then I was prescribed laxatives.. Now, in 6th grade I weighed about 75 pounds, and growing up I always thought I was fat, because my gut always seemed to sick out. By 8th grade I weighed around 115! And in 8th grade is when my anxiety seemed to get worse and I changed, and I wasn't the same person anymore..and after lunch,I would get terrible stomach pains! My stomach felt like it was popping,I would get support gassy, and my stomach made really loud noises (so embarrassing) somehow I came to the conclusion that I was lactose intolerant, and then I moved on. My depression and anxiety slowly got worse through the years and my bloating and gas seemed like a normal thing to me. By 11th grade, my depression worsened..this happened to be after my beer drinking phase!.. Then after awhile I quit drinking (and still don't) because it just makes me feel tired and I never feel "drunk". So, by the end of 11th grade I weighed almost 140! And I stopped having my periods too. Then I tried losing weight, eating very strict, over exercising, and eating very little.I lost weight but was still puffy, and it was sooo hard to keep losing, and I could gain very easily.. One time I ate 5 bread sticks (still within calorie goal) and I gained 5 pounds the next day.this want water weight, because I ate carbs daily. My breakfast every morning was whole wheat toast! Soon I became extremely fatigued, but I was determined to lose weight..so during summer I would sleep in, eat breakfast, workout for two hours, and then go home and go back to beddd.I had to sleep a lot! And my depression and anxiety slowly got even worse.then I quit restricting myself so much (but still ate really healthy) and I gained 15 pounds in two weeks...! So I gained all my weight back. The only tone I started losing again was when I didn't eat so much bread and oat meal (thus wasn't on purpose ) then I got into high fat dieting, which I mainly got carbs from veggies and fruits..then I got my period! And in two weeks,i like 8 pounds, aaand my bloating was gone just a little spotting though..then I was craving spaghetti so I aye a bunch of whole wheat pasta..the next week after that I would get random pains in my stomach..but I continued to eat wheat and got really tired and irritable again..oh and after I ate that pasta, the next morning I was 8 pounds heavier.. Now ik so exhausted all three tone that I can't even exercise..I'm sooo weak..my legs hurry and I get winded just by walking up stairs! When I run,I never get the endorphins anymore,I just feel even crappier when I'm done!

My dad knows that there has to be a reason for the ways I've changed..and I've accepted that it's just depression, but lately I don't think so...

My blood tests a few months ago..I showed low iron and low b12..normal thyroid..my doc put me on antidepressants that give you energy..and Heyyy..still no energy!

Sooo sorry about howww long this is! But if you read out, thank you!!! My doctors appointment is in a few days (I moved, so it's a brand new doctor) so how do I all to get tested for celiac?!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


taynichaf Contributor
taynichaf
Posted
  • Author

Another symptom I noticed is acid reflux..I always had it, but I was just so used to it I thoughtit was normal..after not eating gluten, and then reintroducing it,I felt it bad!

1desperateladysaved Proficient
1desperateladysaved
Posted

Yeah, get the list of tests before you go.  List the symptoms as you did above.  Hopefully, your doctor will be one that listens to their patient.  Don't give up even if they don't listen.  You have an important set of gripes, and I believe there is a reason for them.

 

Diana

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

Hi taynichaf,

 

I would bring the tests with you about low iron and B12, which are frequently associated with celiac.  check out this link:

 

Open Original Shared Link

 

Here is another link and paper I've found helpful:

 

Open Original Shared Link

 

ask for the complete celiac panel, which includes:

DGP igA/igG

ttg igA/igG

EMA

Total igA serum to make sure you aren't igA deficient because if you are that invalidates all the igA results

 

Keep eating gluten until ALL tests are done  :)

 

good luck!

 

Another symptom I noticed is acid reflux..I always had it, but I was just so used to it I thoughtit was normal..after not eating gluten, and then reintroducing it,I felt it bad!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,083
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...