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Dozey

Negative Blood Test

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Hi all, just saying hello. My doctor says my blood test was negative for Celiac but I am still waiting for the paperwork to see which tests were done. I was low on vit D and my thyroid had dropped too, so that along with the b12 deficiency makes it difficult to know what my symptoms are down to. I am slowly cutting gluten out of my diet. I am feeling slightly better than I have in the past, so maybe my problems have all been due to thyroid and vitamin issues.

Jo

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You're feeling slightly better from cutting out most of the gluten. Maybe you should do it completely.

 

Just recall that even if the test was negative it does not mean your health problems were all related to vitamin deficiencies. You could still have non-celiac gluten intolerance.

 

The question remains, how did those deficiencies occur?

 

Your B-12 and TSH would have to be pretty tanked for you to have the symptoms you described in previous posts.

Did he say if your were HYPOthyroid?  or HYPERthyroid. (that can cause anxiety and B-12 def)

 

And people can test negative on celiac panels and still be positive on endoscopic biopsies.

 

Typically, low B-12 occurs in people whose digestive systems do not adequately absorb the vitamin from the foods they eat. This can be caused by:

  • Pernicious anemia,
  • Atrophic gastritis, a thinning of the stomach lining that affects up to 30% of people aged 50 and older.
  • Surgery in which part of the stomach and/or small intestine is removed.
  • Conditions affecting the small intestine, such as Crohn's, celiac, bacterial growth, or a parasite.
  • Excessive alcohol consumption.
  • Autoimmune disorders, such as Graves disease or lupus
  • Long-term use of acid-reducing  meds.

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Hi IrishHeart, I am Hypothyroid, and don't absorb b12 as I have parietal cell antibodies. I was originally diagnosed with Pernicious anaemia by the Gastro but this new doc says my blood is ok now! I have muscle wastage, most noticably on my hands but arms and legs too.

Jo

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Hi IrishHeart, I am Hypothyroid, and don't absorb b12 as I have parietal cell antibodies. I was originally diagnosed with Pernicious anaemia by the Gastro but this new doc says my blood is ok now! I have muscle wastage, most noticably on my hands but arms and legs too.

Jo

pernicious anemia, Does, Not, go away....you will need supplements for the rest of your life.  You may get enough orally with large doses on an empty stomach, if not, shots will be nec.

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Thanks both. Well that's what I can't understand about the doc saying I don't have PA now. He said tablets are no good to me as I won't absorb them, and I know I have to have injections every three months for life. Or that's what I was told initially. Another doctor said that as my level is now high (after loading doses and two top ups) she would be looking at stopping them! That's why I changed docs. My level was only 83 when I was first diagnosed in November and it took two and a half months for the old surgery to tell me that. I am just waiting for my blood paper work to come so I can see what my level is now.

Jo

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Thanks both. Well that's what I can't understand about the doc saying I don't have PA now. He said tablets are no good to me as I won't absorb them, and I know I have to have injections every three months for life. Or that's what I was told initially. Another doctor said that as my level is now high (after loading doses and two top ups) she would be looking at stopping them! That's why I changed docs. My level was only 83 when I was first diagnosed in November and it took two and a half months for the old surgery to tell me that. I am just waiting for my blood paper work to come so I can see what my level is now.

Jo

arghhhh.....this is a life long condition!  will not go away, some docs...... as I said large doses, on an empty stomach....methyl-. if you can get it, instead of the cyano-.good luck.

(welcome, Irish; lol)

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arghhhh.....this is a life long condition!  will not go away, some docs...... as I said large doses, on an empty stomach....methyl-. if you can get it, instead of the cyano-.good luck.

(welcome, Irish; lol)

Thanks Frieze, I appreciate your advice.

Jo

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