Rice Allergy Too

[hayley3]

My doctor suspects I have celiac, although my blood test came back negative for celiac, the allergist now wants to do what is called aCeliac Plus test. 

 

Now however, the allergy testing showed I am allergic to rice. I was wondering if that was common thing with celiacs.  I know some celiacs never seem to feel well even after going gluten free, so that could be the reason, other allergies. 

 

Thanks,

Cheryl

 

 

[nvsmom]

Celiac disease is not an allergy. It is an autoimmune disease that damages the villi of the small intestine as well as causing a host of GI and non-gastro symptoms. Allergies are separate part of the immune system based on Immunoglobulin E (IgE) I think. Celiac tests use IgA and IgG.

 

Pages 11-12 of this report discusses celiac testing: Open Original Shared Link

 

Did you docor discuss Non-celiac Gluten sensitivy (NCGS) with you? Those with NCGS have all the same symptoms as celoacs but no villi damage. The AGA IgA and AGA IgG is thought by some to show gliadin sensitivities in non-celiacs but it is not a very reliable test. The best test for NCGS remains a positive response to the gluten-free diet.

 

Many celiacs do have other food sensitivities (like corn, dairy, or rice) or happen to have food allergies (like wheat, dairy, or strawberries).  Other food allergies or sensitivities could definitely make you feel poorly. I hope you feel better rice free.

[hayley3]

Thanks Nicole...I bought bags of rice flour, rice krisipies, rice spring roll wrappers only to find out now Im allergic to rice of all things, so for someone who can't eat wheat, it's a bit shocking.

[1desperateladysaved]

I make baked goods with ground nuts.  Almonds are a particular favorite.  My family even likes them.  I try to vary what I use daily, though.

 

My physicians assure me that not many have a problem with rice.  We don't know for sure that I do, but when I quit eating it, I had a similar withdrawal as with gluten.  I am planning to try rice.

 

One thought is that it is possible your rice is processed with wheat and that causes a problem for you.  It is possible I have that problem.  Only time and discernment can tell for sure.

 

D

[ravenwoodglass]

Did you come up allergic to a lot of other things also? I ask because before diagnosis I showed reactions to 98 of the 99 things for which I was tested. Within a few months gluten free all but 3 of those allergies were gone. My allergist said that because of the celiac my immune system was in 'hyperdrive' which caused me to react to so many things. Once the gluten issue was under control those other reactions abated. Hopefully that will be the case for you also. Once you have fully healed try adding rice back in a couple of times a day and watch for a reaction. Keeping a food and symptoms log can help as intolerance reactions can be delayed by up to a week.

[hayley3]

Thanks D!  I read also that tomato allergy is rare but I have it lol  I made some things with nuts and dates and was still having issues...So not sure what was going on there. 

[hayley3]

@ raven...I am allergic to rice, tomatoes, milk, carrots, fish (tuna, salmon, bass and catfish) and crab.

 

I'm not dx'd yet with a gluten problem.  He said I most likely had celiac although I was tested before and it came back negative, but he says the test is not accurate.  I can't eat much now, so I knew I had leaky gut of some sort.  I can't eat oats, bananas, etc..etc...and I follow a migraine list to try to stop the migraines and then I have the IBS list where I can't eat a lot of stuff there.  So I'm down to being able to eat lettuce and meat.  I have osteoporosis, hyperthyroid, migraines, liver problems, dry eyes, discoid lupus, IBS, sacroiliac arthritis...So with all that going on, it seems reasonable that I have celiac but after years of testing , I don't think I will ever get a dx of anything.  Lost the job and the whole mess because of being sick.  But it's good to know that diseases resolve when you stop eating gluten.  I did cut back on eating wheat just because of the Gerd.

 

But I assume even if I just had allergies, giving up what I'm allergic to will allow my stomach to heal.  I'm hopeful.

 

I haven't been to this forum in years...long ago I thought I had celiac.  :-) 

[ravenwoodglass]

@ raven...I am allergic to rice, tomatoes, milk, carrots, fish (tuna, salmon, bass and catfish) and crab.

 

 

I haven't been to this forum in years...long ago I thought I had celiac.  :-) 

Glad you came back. It sounds like you are in pretty rough shape right now. Do give the diet a strict try after your doctor does the test.  It sounds like that is what your doctor is planning to have you do so it sounds like he is a good doc. There are some of us who do test a false negative especially with some of the older tests. If they haven't recently done them you could have them do the newer DGP IGA and DGP IGG tests.

Meanwhile try to concentrate on what you can eat. You still have potatoes, peas, beans, chicken, beef, pork, nuts and much more from which you can choose.

 I think it likely you won't need the 'IBS' diet after you start the gluten free one. And hopefully you will also see your migraines resolve. I was lucky and haven't had one since a short time after I went gluten free. It can take a bit of time to heal but chances are you are going to feel much better in a couple months.

[1desperateladysaved]

Thanks D!  I read also that tomato allergy is rare but I have it lol  I made some things with nuts and dates and was still having issues...So not sure what was going on there. 

I have been using mango sauce for homemade pizza.  I use eggs instead of cheese also.  I hadn't had pizza in years, it's great.

 

I wash and scrub all nuts before eating.  I think it is going okay.

 

D

[hayley3]

@ raven....thanks so much!  I would do anything to stop the migraines.  And this doctor ordered 6 celiac tests...I never knew there was so many. 

I just always thought I was in that category of diseases that hadn't been discovered yet.  :-)   But I know there are alot of people who are sick and give up gluten and feel better and never get a diagnosis...Very sad that is.
 

[hayley3]

@D

And I was also reading about using red pepper paste as a base for pizza, never thought of mango sauce.  You like it?  I read about nomato sauce but it's made with carrots.

 

I bought my teenage daughter a pizza yesterday, she was so happy , poor thing...but she has issues already.  Low vitamin D, very thin, hair loss, joint pain, stomach cramping, but she also tested negative a few years back.  So I let her eat what she wants, although now I have started her on almond milk.  :-)

 

 

[ravenwoodglass]

 

@D

And I was also reading about using red pepper paste as a base for pizza, never thought of mango sauce.  You like it?  I read about nomato sauce but it's made with carrots.

 

I bought my teenage daughter a pizza yesterday, she was so happy , poor thing...but she has issues already.  Low vitamin D, very thin, hair loss, joint pain, stomach cramping, but she also tested negative a few years back.  So I let her eat what she wants, although now I have started her on almond milk.  :-)

 

 

 

Do keep in mind that with celiac just because someone showed up negative in past tests doesn't mean they will in a test done today. Doctors advise that in families with a celiac history children be screened every 3 years or so from what I understand. It wouldn't hurt to have her retested with her symptoms. A dietary trial after testing might benefit you both.

[Pegleg84]

Did you ever have a biopsy done?

Blood test are more likely to be false negatives than false positives. Mine all came back negative, but so did my sister's and her biopsy came back positive (I'm self-diagnosed. Couldn't wait for a biopsy).

If you haven't, you should have one done. You need to be eating gluten for at least the test to be accurate, but even if you're not willing to go back to eating gluten (if you're not now), you should get one done anyway. There could still be damage.

 

Other than that, go completely gluten-free. See what happens. You could have other intolerances/allergies, or your allergies could start clearing up. You might have trouble with rice because your guts are healing. I have a rough time with brown rice, but white is fine.

 

In any case, talk to your doctor about it, and if everything comes back negative, go gluten free anyway. Do what makes you get better

 

Cheers