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Hla Dq2 And Hla Dq8 Test

Ol-Mauri

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Ol-Mauri Newbie
Ol-Mauri
Posted

Good evening,

I'm Maurizio and I'm Italian.

At the moment I'm in England for study English.

Anyway, for 3 years I have had the typical symptoms of coeliac disease but my blood test was negative (I did the test in 2011) and also endoscopy was negative (2011)..

A few days ago I read some articles about HLA DQ2 and HLA DQ8 test.

Now I want to do these test but I don't know if is it possible in UK..is it?

Or, are there other possibilities? Do you know laboratories which I can do these exams (in USA are quickly?)?

 

Thanks for your answer..

 

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Ol-Mauri Newbie
Ol-Mauri
Posted
  • Author

nobody say nothing in UK...

answerseeker Enthusiast
answerseeker
Posted

There is an online lab, not sure if they ship to UK or not. They test the stool it's called enterolab

VeggieGal Contributor
VeggieGal
Posted

Hi Ol_Mauri, I'm in the uk and my gp arranged the general coeliac blood tests for me which tested positive. They then refe red me to a specialist at the hospital to arrange the biopsy but me being me I couldnt tolerate the procedure so they arranged hla typing tests as an extra confirmation that I had the disease.

You need to contact your normal gp first and ask to be referred to a specialist (I doubt your gp will do this test).

Bear in mind that I doubt they will diagnose you purely on positive hla typing results but it will rule you in or out of the possibility of you getting celiac disease.

Do they not automatically test children in Italy they for celiac by the age of 6 years old?

Good luck, helen

Just to add...as far as I'm aware, just because you might test negative on all celiac tests, it doesnt mean you arent classed as 'non celiac gluten sensitivity' so after all testing, maybe you could try eliminating gluten and see how you feel.

Ol-Mauri Newbie
Ol-Mauri
Posted
  • Author

Hi Ol_Mauri, I'm in the uk and my gp arranged the general coeliac blood tests for me which tested positive. They then refe red me to a specialist at the hospital to arrange the biopsy but me being me I couldnt tolerate the procedure so they arranged hla typing tests as an extra confirmation that I had the disease.

You need to contact your normal gp first and ask to be referred to a specialist (I doubt your gp will do this test).

Bear in mind that I doubt they will diagnose you purely on positive hla typing results but it will rule you in or out of the possibility of you getting celiac disease.

Do they not automatically test children in Italy they for celiac by the age of 6 years old?

Good luck, helen

Just to add...as far as I'm aware, just because you might test negative on all celiac tests, it doesnt mean you arent classed as 'non celiac gluten sensitivity' so after all testing, maybe you could try eliminating gluten and see how you feel.

 

Thank you very much..

In Italy the situation is very complicated and doctors haven't a good knowledge to gluten sensivity..

Anyway, next week I'm going to my GP for ask..do you know how long do you usually wait for the results of the test? (hla)

And also, how much does it cost?

 

Thank you very much

Ol-Mauri Newbie
Ol-Mauri
Posted
  • Author

There is an online lab, not sure if they ship to UK or not. They test the stool it's called enterolab

 

Thank you, unfortunately this test is avaible only in usa, not in UK..

VeggieGal Contributor
VeggieGal
Posted

Well on the nhs, its free and they had to send tests to london for results which took a couple of weeks.

I really don't know how successful you will be in trying to convince gp/hospital to test you for hla typing. I was lucky and had a particularly good specialist who was trying to support me.

If your gp isnt helpful, you could always ask if they can recommend a private practice who can do the tests, but obviously you'd have to pay for testing.

Good luck

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VeggieGal Contributor
VeggieGal
Posted

Open Original Shared Link

This links states that hla typing is not routinely used, so you may struggle to get tested thru the nhs (I think due to cost to the nhs and because on its own, it doesnt give a definitive diagnosis) but it won't hurt for you to ask.

Ol-Mauri Newbie
Ol-Mauri
Posted
  • Author

Well on the nhs, its free and they had to send tests to london for results which took a couple of weeks.

I really don't know how successful you will be in trying to convince gp/hospital to test you for hla typing. I was lucky and had a particularly good specialist who was trying to support me.

If your gp isnt helpful, you could always ask if they can recommend a private practice who can do the tests, but obviously you'd have to pay for testing.

Good luck

 

Ok, I think healt is very important...

If my GP won't, I can pay for this test, because I want to resolve this situation very quickly..

I can't continue in this manner, it's awful for me..

VeggieGal Contributor
VeggieGal
Posted

Ok, I think healt is very important...

If my GP won't, I can pay for this test, because I want to resolve this situation very quickly..

I can't continue in this manner, it's awful for me..

Well its important that you keep going to your doctor and explaining your symptoms and you don't give in until they do more tests and you get some answers.

Theres lots of knowledgeable people on here, so maybe you could start a new thread about any of your symptoms/concerns. All the best.

Ol-Mauri Newbie
Ol-Mauri
Posted
  • Author

Well its important that you keep going to your doctor and explaining your symptoms and you don't give in until they do more tests and you get some answers.

Theres lots of knowledgeable people on here, so maybe you could start a new thread about any of your symptoms/concerns.  All the best.

thank you..

 

I don't understand the last sentence " maybe you could start a new thread about any of your symptoms/concerns."

VeggieGal Contributor
VeggieGal
Posted

Sorry...

if you have any more concerns, then please keep asking questions on this site. There are lots of people who are happy to help :)

Ol-Mauri Newbie
Ol-Mauri
Posted
  • Author

Sorry...

if you have any more concerns, then please keep asking questions on this site. There are lots of people who are happy to help :)

Thank you very much..

 

I hope in the doctor but.. I think is difficult to convince he about whatever i want.. (genetic test and blood test for gluten)..

Monday I have an appointment and.. I hope!!

foam Apprentice
foam
Posted

I'm having my son tested at 6 month of age, he's only 2 month old now but he's been booked in for the test since before he was born :). It's the smart thing to do. Every child should have it done.

Ol-Mauri Newbie
Ol-Mauri
Posted
  • Author

and..what do you think about coeliac disease stool test?

 

I don't know if is better the genetic test or this stool test..

Noobette Apprentice
Noobette
Posted

You can do a Open Original Shared Link genetic test for $99, although the shipping to the UK might make it quite a bit more expensive than that. It takes some detective work, but you can figure out your HLA-DQ2/8 status using the 23andme results.

Ol-Mauri Newbie
Ol-Mauri
Posted
  • Author

You can do a Open Original Shared Link genetic test for $99, although the shipping to the UK might make it quite a bit more expensive than that. It takes some detective work, but you can figure out your HLA-DQ2/8 status using the 23andme results.

Thank you..

 

Unfortunately it's in USA and I prefear do the test in Uk because I want to have a quickly results..

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