Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Endoscopy And Colonoscopy Tomorrow

blckchr8

Recommended Posts

blckchr8 Newbie
blckchr8
Posted

So, just posting to get some things off my mind. I'm so worried that tomorrow's tests will find nothing and I'll end up diagnosed with IBS. All of my blood tests came back negative, so I don't have much hope. 

Not to mention it's a little unnerving to have both done for the first time...and my doctor never said anything about doing biopsies or continuing to look for celiac. (For all I know, he could be like many doctors and not even be looking for it since the blood tests were negative.)

Oy. Too much to think about for having to check in at 7 a.m. :| 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Doing both procedures at the same time is normal. The prep for the colonoscopy is more involved, so it you are prepped for that then there is no additional prep for the endoscopy. Sedation is the same for both. Before they sedate you, ask about biopsies of the small intestine to look for damage caused by celiac disease. They should take six or more samples.

blckchr8 Newbie
blckchr8
Posted
  • Author

Well had it done and all went well - as in, I don't remember anything. I did make sure that my doctor was going to take biopsies. Then I was put to sleep. The nurse who checked me out said he took biopsies in the duodenum. So hope that means he was in the right place. 

If those come back negative I don't know what I'm going to do. The doctor said everything looked normal (mind you, I DO realize that doesn't mean the biopsies could find something). My plan now is to start going gluten free I guess.

whitepine Apprentice
whitepine
Posted

I know how hard it is when everything is pointing to a negative diagnosis. But hang in there, even if things come back negative, it doesn't mean that there isn't something. My first colonoscopy came back inconclusive, that was almost 8 years ago. The doctor wasn't really the greatest and they did take biopsies too. My most recent doctor I am more confident in because she took the time to listen to everything I had to say. It's pretty important where they take the biopsy because things can  come back negative or inconclusive if they take a biopsy of healthy tissue or in the wrong spot.
You know your body better than everyone else, if a certain diet works for you then stick to it. It doesn't always really matter what the doctors paper says, although it is really really nice to have a word to put to your issues I still don't have an exact word to put to my symptoms but I stick with the diet because it lessens my issues.



 

freeme808 Apprentice
freeme808
Posted

blckchr8, I hope you find out soon! Im curious as to how long the biopsy report will take to come back myself. Tomorrow is my endo/colonoscopy, and as Im sitting here, drinking this awful gallon of prep stuff :( , I too have done this to get the final check to see if it could be Celiac. But, Im SOOO happy I can finally go gluten-free tomorrow, and be back on track with starting to feel better. And know that, I did all the tests, and don't have to have the what if's in the back of my head driving me bonkers.

 

Like whitepine said, if you know the diet works for you and makes you feel better, than stick with it. :)

 

However, I do have a question...can you eat what ever you want after? Or are there restrictions because of the biopsies. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,082
    • Most Online (within 30 mins)
      10,442
    Joe B
    Newest Member
    Joe B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...