Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Lower Back Heat Sensation

wilderdaniel

Recommended Posts

wilderdaniel Newbie
wilderdaniel
Posted

I was diagnosed with Celiac Disease exactly two weeks ago and have taken gluten completely out of my diet.  Well 6 days later I started to get a heat sensation in my lower back when I lay down flat on my back.  I wouldn´t say it hurts but it is like a burning sensation inside my lower back.  It´s not hot to the touch.  I can feel it a little bit when I am standing up but it is more intense when I am laying flat on my back.  Has anyone else experienced something like this related to Celiac Disease?  Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Diagnosed in March.  I broke a vertebrae just laying down four weeks ago (or maybe it was trying to get off the floor....we'll never know!  After the initial pain, I have a burning sensation and numbness.   Most pain occurred when I was trying to move in bed.   I'm scheduled for a bone density test in two weeks.  Meanwhile my back is healing.  Taking calcium and Vit. D per my doc.   Osteoporosis is common for those with celiac disease and who have not been diagnosed for a while.  Some experience pain and some do not with a fracture. 

 

I wish you the best.

  • 4 weeks later...
wilderdaniel Newbie
wilderdaniel
Posted
  • Author

I am now thinking that the lower back pain comes after I drink pop.  I have drank cola and orange pops and it seems to bother me the same.  Has anyone heard about lower back pain (heat sensation) being connected with carbonation or caffeine?

eers03 Explorer
eers03
Posted

I have had the heat sensation you are describing.  It was quite uncomfortable and rather disturbing to me.  It was early in my diagnosis.  It also went away.  When this happens, DO NOT stand around in the shower with really hot water running down your back and be sure to pat it dry but do not rub across it with your towel. Don't massage it, don't scratch it.  Do not lotion it.  Continue eating gluten free and while the carbonation is not causing it, drinking more water will help you much more in that it is not acidic and THAT will be more helpful to your nerves that are creating this sensation.

 

Also, I know a physician with celiac disease.  She had patches of skin that produced this strange heat/burning sensation too.

 

It will most likely get better.  It might get a little worse first.  Be patient.  Don't stress it.

wilderdaniel Newbie
wilderdaniel
Posted
  • Author

I have had the heat sensation you are describing.  It was quite uncomfortable and rather disturbing to me.  It was early in my diagnosis.  It also went away.  When this happens, DO NOT stand around in the shower with really hot water running down your back and be sure to pat it dry but do not rub across it with your towel. Don't massage it, don't scratch it.  Do not lotion it.  Continue eating gluten free and while the carbonation is not causing it, drinking more water will help you much more in that it is not acidic and THAT will be more helpful to your nerves that are creating this sensation.

 

Also, I know a physician with celiac disease.  She had patches of skin that produced this strange heat/burning sensation too.

 

It will most likely get better.  It might get a little worse first.  Be patient.  Don't stress it.

Thanks for the encouragement!  Sometimes I feel like I am better and then all of a sudden I feel like I fall back a step or two.  I have now gone almost six weeks without gluten and milk, beans, and eggs (my other allergies), nevertheless I am sure that something gets in every now and then.  It has been quite a struggle to keep it all out.  However, my back is feeling better today (no pop).  Thanks again.

  • 3 years later...
TGT Newbie
TGT
Posted

Hi!

I have exactly these symptoms - plus I have a tingling, pins and needles sensation on the bottom of my left foot, around the middle of my instep, that for some reason seems to be related.

Does anyone know how to "cure" them both?

Thanks very much

cyclinglady Grand Master
cyclinglady
Posted
45 minutes ago, TGT said:

Hi!

I have exactly these symptoms - plus I have a tingling, pins and needles sensation on the bottom of my left foot, around the middle of my instep, that for some reason seems to be related.

Does anyone know how to "cure" them both?

Thanks very much

Welcome!  Do you suspect that celiac disease is the root cause of your symptoms? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TGT Newbie
TGT
Posted
On 3/15/2017 at 3:55 PM, cyclinglady said:

Welcome!  Do you suspect that celiac disease is the root cause of your symptoms? 

Hi!

Having read the stories of the people on this website, mine is identical. Many years of battling through health issues, misdiagnosis from doctors, and basically struggling along on your own, trying to fathom out what's going on. I have never been diagnosed with Celiac disease, but gluten is definitely a major cause of all my digestive issues. I came across this site by chance, trying to see if anyone else had the heat sensation in the lower back that I am currently experiencing, that I am certain is somehow linked to all of this.

Thanks! - and any advice, similar experiences, explanations for it etc would be VERY gladly received!

 

cyclinglady Grand Master
cyclinglady
Posted

The original poster has not been around for a while and I personally do not have the back pain you described.  Celiac disease (celiac disease) can cause osteoporosis.  Have you been evaluated for fractures?  Neurological issues are also linked to celiac disease  and can take a long, long time to heal.  

How long have you been gluten free?  You might consider testing to confirm if you still have gluten in your diet or consider a gluten challenge and then get tested.  Here is more information:

Open Original Shared Link

Jmg Mentor
Jmg
Posted
11 hours ago, TGT said:

Thanks! - and any advice, similar experiences, explanations for it etc would be VERY gladly received!

 

Hi and welcome :)

You may be better starting a new topic as people may ignore an older thread resurfacing. 

I know how excited you will be to have potentially found some answers and you will be tempted to go gluten free, but to find out if you've got celiac you need to keep eating it.  The site has an faq here: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/

and you may find some of the links in this post useful as well:

 

Best of luck :) 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      9

      Celiac flare years after diagnosis

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      4

      Skin issues

      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during...
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
      1

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

      Dang. I had a moment of hope that I could change my BP med and get off the gluten-free diet. Nope. More seriously, I hadn't seen this articles about this phenomenon before. This is one of the possible answers for people who post here about having celiac symptoms (including biopsy) but normal IgA levels, especially if they are saying that diet isn't helping...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    5. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

      I love Middle Eastern food and eggplant, and here is another version we shared some time back:
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
    • Aretaeus Cappadocia
      Zaalouk moroccan eggplant salad

      By Aretaeus Cappadocia · Posted

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      Zaalouk moroccan eggplant salad

      By Scott Adams · Posted

      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      I was diagnosed with celiac 15 years ago.

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...