Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Would You Do?

answerseeker

Recommended Posts

answerseeker Enthusiast
answerseeker
Posted

Ok so 1 week prior to my blood work and 3 weeks prior to my biopsy I was on prednisone. A lot. I was hospitalized due to asthma so the prednisone was in my iv and I was on the oral pills. So my tests were negative. I now know for a fact prednisone interferes with testing because it was mentioned in the book "real life with celiac" written by 2 GI doctors.

Not only that but my biopsy result literally came back negative the next day. They told me at least 2 weeks so I was shocked it came back so soon. Wondering if it was even properly examined and if multiple samples were taken.

My GI dr acknowledges I could still possibly have celiac. I see him next week and may discuss possibly retesting.

If you were me would you do a gluten challenge and repeat testing to get a accurate diagnosis?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


moosemalibu Collaborator
moosemalibu
Posted

Any steroid suppresses the immune system so no doubt that if you were on prednisone it could have altered the normal function of the immune system. 

 

It is interesting that your biopsy came back the next day. I don't know how they do things specifically, but in the animal world (where I work), biopsies mean that the tissues are cut and then sent to a pathologist to interpret. The cutting and prepping and fixing of the tissue and then sending the slices on slides to the pathologist AND getting his/her interpretation takes time. Are you sure they performed a biopsy?

 

Not sure what i would do but I'd definitely ask more questions and push the docs for answers.

answerseeker Enthusiast
answerseeker
Posted
  • Author

He said they took biopsies and I plan on asking him next week when I see him. It seems odd that it came back so quickly.

frieze Community Regular
frieze
Posted

was it a "final" or initial report?

answerseeker Enthusiast
answerseeker
Posted
  • Author

I never saw the report so not sure

kareng Grand Master
kareng
Posted

I never saw the report so not sure

So you know what you need to do! Get the reports - you should have a pathology report for the biopsies.

answerseeker Enthusiast
answerseeker
Posted
  • Author

But if the dr said its negative its not going to tell me anything

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

But if the dr said its negative its not going to tell me anything

I must have misunderstood. I thought there was some thought it might not even have been the path report for the biopsies? Or there was some thought he might not have done biopsies? Or it wasn't the correct report? Or he only did one or two biopsies?

If you are sure you completely understand what the doctor is talking about, and its what you think he is saying, then I guess your good. If it were me, I would still want the reports

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,226
    • Most Online (within 30 mins)
      7,748
    MTW87
    Newest Member
    MTW87
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ryangf
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Ryangf · Posted

      I haven’t had any noticeable reactions to salt so I will continue using it. I think I just freaked out when I realized this but it doesn’t cause me any discomfort- so thanks!
    • plumbago
      Abscesses on legs

      By plumbago · Posted

      Ok, thanks. I'm so glad to hear you are in the hands of a dermatologist. I hope he/she has given you 1) a diagnosis; and 2) a plan of care with a couple of options so that you have buy-in and comfort with it. I have some ideas, but not having seen the abscesses or you in person, it doesn't really make sense for me to kind of ... speculate further. But your question was regarding gluten, and you've gotten a couple of other follow up questions and answers that are good, including the idea to keep a food diary. Let us know if we can help further or answer any other questions. I'm sorry you're going through this, it sounds very painful.
    • LookingForAnswers101
      Abscesses on legs

      By LookingForAnswers101 · Posted

      @plumbago They appear as boils. They are big, like the size of a nickel--quarter, and they hurt when I touch them. I have gone to the same derm for them over and over and she thinks my body is colonized by a bacteria, but even after using hibiclens all over my body they come back.
    • Scott Adams
      Abscesses on legs

      By Scott Adams · Posted

      Welcome to the gluten-free community! It’s great to have you here. While gluten sensitivity or celiac disease can indeed cause skin issues, such as dermatitis herpetiformis (a blistering rash), abscesses in areas like the lower buttocks or thighs are less commonly linked directly to gluten. However, chronic abscesses could be a sign of an underlying immune or inflammatory condition, which might be worth discussing with a healthcare professional. Some people with gluten-related disorders also experience secondary issues like bacterial overgrowth or immune dysregulation, which could potentially contribute to recurrent infections. It’s always a good idea to explore all possible causes, including gluten sensitivity, with your doctor. In the meantime, keeping a food and symptom diary might help identify any patterns. Wishing you the best on your health journey!
    • trents
      Abscesses on legs

      By trents · Posted

      You say you have gluten sensitivity? Have you been officially diagnosed with celiac disease or do you refer to NCGS?
×
×
  • Create New...