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Need Some Advice !

Rach7982

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Rach7982 Newbie
Rach7982
Posted

Hello,

 

I am in need of some advice , I am having a biopsy done in a few weeks.  I had stopped eating gluten because my doctor suspected Celiac (even after negative blood test). I was feeling a little better and then she told me I should get a biopsy to double check. She told my that I should start eating gluten if I could, so they could get a more accurate test.  I have been feeling awful, I had only stopped for about 2 weeks but now even eating a little gluten everyday makes me feel miserable . My husband (who is very supportive) has told me just to give it up and not do the biopsy. There is something obviously going on with my body, either Celiac or NCGI . The only reason I hesitate is because if I do have it and my kids start having any symptoms we have a place to start. So basically I am just trying to find out if there is a away to make this easier on my body for the next few weeks. I am so tired and achy ..not fun when I have a lot to do for the holidays.

 

Thanks !

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NoGlutenCooties Contributor
NoGlutenCooties
Posted

I'm no doctor... but if it were me I would go back to being gluten-free but still have the biopsy.  Here's why.  You haven't been gluten-free for that long, so chances are good that if you do have Celiac the biopsy will still show damage and inflammation.  If you have NCGI then it wouldn't show up on the biopsy either way.  Also, when they look around in there and do the biopsy they will check for other possible ailments - not just Celiac - which is why I would do the biopsy anyways.  Just to be sure.

 

You could also get the genetic test done for you and your kids - that will tell you if they are predisposed to getting Celiac.

 

Good luck!

nvsmom Community Regular
nvsmom
Posted

The gluten challenge for a biopsy (from what I have seen) is usually 2-4 weeks. If you need to cut back until a few weeks before the test, you can probably do so - check with the doctor first.

 

There are a few around here who were unwilling to be sick for months just to test themselves for celiac disease... You don't have to do it if you are hurting yourself.  :(

 

You mentioned that you wanted to know for your kids' sake, have you had them tested yet?  You might want to test them now even though they don't have symptoms - I didn't have a lot of symptoms when I was young except stomach aches. If they are negative, you could always make your household gluten-free anyways.  NCGI is a very real and serious condition; if you or your kids have it, you don't want to suffer through that.

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