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Gi Doctors Test For Celiac?

whtswrongwithme32

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whtswrongwithme32 Apprentice
whtswrongwithme32
Posted

Can/Will GI doctors test for Celiac?

                                     Thanks.

p.s. I had a good doctors appointment today with many tests either done via lab work or scheduled, but none for celiac. CNP want's to make sure I get the right specialist to do the right test in my rural area. thanks, 

                                                                     me

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cyclinglady Grand Master
cyclinglady
Posted

Yes, a GI can order a celiac blood panel, but any Medical doctor can do it. Our GP/PCP ordered tests for my daughter.

Go to this site (University of Chicago's celiac website) for the exact tests needed:

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whtswrongwithme32 Apprentice
whtswrongwithme32
Posted
  • Author

My CNP stated that she would really rather me get reffered to GI so that they could correlate my symptoms with the proper tests. She said that she has had patients she tested have negative results, then go to our GI doctors in our lil town here and then she received word back that they do indeed have celiac. I also asked her if the endoscope would have shown anything (I did not have a biopsy) and she said, it depended on what stage it was in. But they are considering this among other autoimmune issues right now(and also looking at my liver for some reason). She works with an Internist so he is helping us through all of this....I do have a funny story to share...I went into the doctor's office knowing I would not bring up celiac until the CNP came in to see me. They do have it on their records though...the assistant asked me a bunch of questions and said, "whoa, that sounds like my sister. Everything you described is what she goes through when she has glueten. She is glueten intolerant.". I sometimes wonder if I should stop with all this testing and see if going off of it would end my misery. I guess it's good they make sure it's nothing else though. 

Spazoid Newbie
Spazoid
Posted

My CNP stated that she would really rather me get reffered to GI so that they could correlate my symptoms with the proper tests. She said that she has had patients she tested have negative results, then go to our GI doctors in our lil town here and then she received word back that they do indeed have celiac. I also asked her if the endoscope would have shown anything (I did not have a biopsy) and she said, it depended on what stage it was in. But they are considering this among other autoimmune issues right now(and also looking at my liver for some reason). She works with an Internist so he is helping us through all of this....I do have a funny story to share...I went into the doctor's office knowing I would not bring up celiac until the CNP came in to see me. They do have it on their records though...the assistant asked me a bunch of questions and said, "whoa, that sounds like my sister. Everything you described is what she goes through when she has glueten. She is glueten intolerant.". I sometimes wonder if I should stop with all this testing and see if going off of it would end my misery. I guess it's good they make sure it's nothing else though. 

Don't go off it until you have your test results in hand!!!!  I went off it, felt amazing, and my blood work/biopsy came back negative...  So I have zero documentation and a psych history - ugh.  I just got sick from a date's lip balm (or what they ate)!  I am twitching and have the "steel-wool-like" pains-  with no one to turn to... :(  

 

Those positive test results are hard to nail down - and they will be invaluable for your treatment! (getting gluten-free meds, people taking your diet restrictions seriously, not accusing you of being a hypochondriac, etc...)

Tomislav Newbie
Tomislav
Posted

I didn't quite get any information about your symptoms so if u do have some free time i would rather read them. And about the GI doctors, I'm a second year Medical student, as well a Celiac since I have been 2 years old, a lot of GI experts couldn't diagnose me with Celiac (but that was in the past due Celiac disease wasn't extended), so basically even if he is GI it doesn't mean that he's going to diagnose you right..Diagnosing Celiac is by 2 test, the one is endoscopy and the second is a blood test, if the blood test is negative than you definitely don't have Celiac..but as I read above you said something about other autoimmune issues, Celiac is related with Rheumatoid arthritis, so if u do have the gene for Celiac there's a possibility that you might get Rheumatoid arthritis as well (if u stay in a colder places), but I dont think that's quite important at the moment.. What I do wanna ask you is, are you on a Gluten free diet atm or not, and if you are, do you have any symptoms...and in case if your not on a gluten free diet, do you as well have any symptoms..I'm looking forward into contacting you ASAP. :)

GottaSki Mentor
GottaSki
Posted

Neither of the tests listed were the

Total Serum IgA...this is run to make sure you have enough for the celiac antibody tests to be as accurate as possible.

I would ask for The Total Serum IgA along with Deamidated Gliadin Peptide tests:

DGP-IgA

DGP-IgG

Nutrient (vitamins and minerals) testing can also be helpful as celiac prevents proper absorption so low nutrient levels is a part of the diagnostic puzzle.

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