Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


Rate this topic

Recommended Posts

Hi everyone!

 

I have been struggling for over a year with stomach pains, gas, bloating, and the runs. We have narrowed it down to possible celiacs, or crohn's. Both run in the family. My grandmother had crohn's and my aunt has celiacs. 

 

This past few weeks I have been trying to be gluten free to see if it helps but have had a few gluten incidents which resulted in feeling awful for a few days. So I am pretty sure it is celiacs. If I just stay away from gluten I start to feel pretty much fine after about 4 days. 

 

I am rather confused though by my GI doctor. From what I have read there is a panel of lab tests that should be done. He did one test, tTG,IgA, which came back <2 (0-3 range is negative). Also, I saw it noted somewhere here that the tests should be done after several weeks of gluten free. This was done maybe after 24 hours of no gluten. On top of that he has me scheduled for a colonoscopy and egd on Monday. If he does take a sample will it even show anything with me not being totally gluten free? Am I going to have to do this egd again later? I'm not sure my insurance is going to pay for the first one. 

 

What should I do? 

 

 

Share this post


Link to post
Share on other sites

Join eNewsletter


Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Okay. That makes sense. I couldn't figure out why you would want to be gluten free for the testing anyway. So they will be able to get what they need from the egd on Monday. Will there be enough damage if I remain gluten free until Monday? The doctor said it was fine to try gluten free. I had a small amount of flour Wednesday night and had terrible cramps all day yesterday. I don't know how much more of that I can handle. I had three children with no drugs, no epidural and this is worse. Should I request the other lab tests?

Share this post


Link to post
Share on other sites

Join eNewsletter

Here is the complete list of celiac blood tests:

-tTG IgA and tTG IgG

-DGP IgA and DGP IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

I would ask the GI to have the full panel drawn especially since celiac disease runs in your family. My TTG test was negative. If my celiac disease savvy GI doc had not ordered the complete panel, my diagnosis might have been missed. As it was I had moderate to severe intestinal damage. Make sure lots of biopsies are taken. My visual on the scope looked normal. It was the biopsies that noted the celiac disease.

Please research more and share with your doctor.

(Source of tests: NVSMOM -- )

Welcome to the forum and let us know how it goes!


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Join eNewsletter

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

0


Join eNewsletter