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Hi Guys,

I thought I would post this up on the forum because I would like to see if anybody would be able to give advise on where I am at the moment.....I have intolerance to dairy, wheat, corn and barley.

  • I have constant issues with my stomach - I go to the loo regularly (some days can be 6/7 times a day) - when I feel really rough I go to the loo and feel better after. 
  • Chronic tiredness (at times going to sleep for 8 hours and waking up the next day wrecked - feeling like I could have another 8 hours sleep). 
  • When being out for a drink the next day I am extremely bad (I know people may say stop drinking - thats understandable and something I have started) but I do not drink alot.
  • Go to the loo and feel like I need to go more
  • Brain fog/Heavy head
  • But the biggest thing for me is Dizziness.

This has been going for approx. 8 years (Im 37). 

I have seen and paid alot of money to see ENT Specialists, my ears and hearing are fine - I havent got Menieres. I have scans  - no underlying illness or issues with the brain....then I read that being allergic to gluten or having an intollerance could make you dizzy or bring on vertigo. My doctor has prescribed me many tablets to try and rectify or help the dizziness but none work.

The more I read on Gluten the more I am convinced its the problem - but was wanting peoples opinion and advise....or instance why wasnt this picked up by my doctor?

I have decided to avoid gluten to see if it helps -  for the past 7 days I have only eaten fresh meat, veg and fruit and no alchohol, I want to see if it helps.

My normal diet would consist of bread, alot of pasta (3/4 times a week), chocolate for treats, red wine etc. Its just dawned on me I am eating all the things I shouldnt.

If this is the case and I have finally found the issue, how long until I should start feeling better? 

I would like to also add that the dizziness isnt permanent, it comes and goes and gets worse and then better but over the past  years its been a real problem for me.

Thanks for listening - Lee

 

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Celiac.com Sponsor (A8):

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Welcome to the forum, LeeroyC!

If you truly suspect gluten as the source of your problems, experts advise getting tested for celiac disease first before going gluten free.  Your doctor can order the necessary blood tests.  

FYI.  It took me two years to feel really well after being on a strict gluten-free diet and avoiding cross contamination at all costs.   Healing time does vary for everyone.  

There are over 300 symptoms attributed to celiac disease.  It can be hard for doctors to catch.  

I wish you well!


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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Thanks for the response cyclinglady. I hope to get tests an see if I am correct in thinking gluten is my problem. The fact that I am intolerant to some of its make-up makes me feel I am right...we shall see.

in the meantime all I can do is eat well, avoid anything that I feel may aggravate the problem an see if this helps me.

Many thanks.

Lee

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Lee:

By asking the questions that you are asking, you are on the right path!

Many people attempt to identify what they are sensitive to by eliminating one thing (or one group) of foods at a time. My own experience is that it is better to start with a week (possibly longer) of just one or two basic proteins and lots of green leafy veggies (oil, vinegar & fresh herbs okay, but no prepared dressings), followed by the addition of only one new ingredient at a time, every three-five days, to see how you respond to it. No processed foods are used, since they have way too many ingredients to track easily.

What worked well for me (since I knew I could tolerate these ingredients) was nothing but oatmeal, cinnamon, yogurt & peaches, plus two eggs for breakfast, followed by beef or bison and a mixed green salad for dinner.  Lots of lemon/water, too. Nothing else. I felt so, so much better after a week of this that I continued for a second week before slowly adding additional foods to my diet.

Adding back other foods, very, very slowly allowed me to learn that I was sensitive to gluten, corn starch, apples, grapes, cauliflower and a few other things.

It is so common to be sensitive to multiple foods, which is why eliminating one thing at a time works so poorly, and eliminating almost everything at first, before adding things back works much better.

Best, Jan

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Thanks for the advise guys. At the moment it just seems that my dizziness and general fluctuation with my ears are tied to what Im eating....however like I say Ive been eating well the past 7 days, just meat, veg and fruit and Im not feeling the rewards, its like groundhog day every day, I also notice that when Im working long hours and maybe run down a little it flares up.

I was told this may be because 'this' is my weakness, whenever I find out what 'this' is I will be delighted - its the not knowing and not being able to deal with it because you dont know what it is.

Frustrating, by the looks of it there are alot of people in similar situations on the forum. I find it strange though that sometimes Im fine/good and then I go through periods of days/weeks of being really bad - every day is a struggle - brain frog, back stomach, dizzy, fatigue...then it slowly clears.

Im working away at the moment so hope to see the doctor because Christmas and see if I can get referred.

 

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These are the celiac tests.  The catch is for the blood tests you have to be consuming gluten daily for 8 to 12 weeks.  That is pretty awful, but that is the way it is.  ?

 
-Tissue Transglutaminase (tTG) IgA and (tTG) IgG
-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG
-EMA IgA 
-total serum IgA and IgG (control test)
-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests
 
-endoscopic biopsy - make sure at least 6 samples are taken
 
VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.  
 
(Source: NVSMOM -- ?)

 

Let us know how it goes! 

 

Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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Especially when it comes to dizziness, don't overlook the effects of environmental allergens, like dust mites, molds, mildews and plants.  Meclizine, the active ingredient in common over-the-counter anti-nausea drugs, taken at bedtime, really helps me break through long stretches of dizzy spells.  Too, a good physical therapist can show you a position to take that helps with certain types of vertigo.

BTW, don't wait for an MD's confirmation of a dust mite allergy if you suspect your dizzy spells get worse when you are lying in bed.  Just go out and get a good hypoallergenic mattress cover and pillow cover (roughly a $45 investment that protects both you and your mattress for a long time).  You'll notice an improvement in both your sleep and your dizzy spells within days.  Another investment that was worth every penny when it comes to minimizing my own dizzy spells is a good HEPA filter in my bedroom.

Hope this helps!

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Need to start seriously reading up on information, it seems I get worst the day after I've eaten something that I shouldn't. 

I get heavy ears, fluctuating in the ears an dizzy, I go to the loo an sometimes makes me feel better an the symptoms reduce. 

 

Im wondering if toxins in my stomach are reacting and my body's reaction are my symptoms....not forgetting brain fog!

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