Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Candy

Any Help Financing Testing For Celiac?

Rate this topic

Recommended Posts

I think I might have a problem with Gluten.I love bread but noticed about three years ago that I have major trouble digesting it-trouble that lasts for days.So I started staying away from American food favorites like pretzels,pasta,pizza,oatmeal,most breads,anything bready,grainy. My age is early 30's.I'm currently uninsured,but I've heard of people WITH insurance say most doctors don't help them with this or they're denied insurance,so maybe being insured wouldn't help much anyway.But I'd like to know if there is any financial assistance offered anywhere to help pay for an Enterolab test?I do come from the regions where people tend to get this condition(i got dna tested a few years ago,which also costs $350-I put it on a credit card and it was eventually paid off) and my family does carry unknown intestinal troubles,but til my bread problem I'd never suspected Celiac.It could be some other type of medical condition-the only way to know would be to test,but that has to be paid for out of hand just to even see if you have it.Maybe there is some sort of assistance for it-like welfare for celiacs or Needy? Gluten Intolerant? CALL#. If not maybe something'll come up in the future that'll allow me to afford to get tested. The whole test is $350 and the gene test separetely is $150.It's not a lot of money,but I don't have it to spend either.I have enough necessities to pay for currently,with other needs waiting on the back burner-I didn't forsee having to get tested for Celiac, too.

Share this post


Link to post
Share on other sites
I think I might have a problem with Gluten.I love bread but noticed about three years ago that I have major trouble digesting it-trouble that lasts for days.So I started staying away from American food favorites like pretzels,pasta,pizza,oatmeal,most breads,anything bready,grainy. My age is early 30's.I'm currently uninsured,but I've heard of people WITH insurance say most doctors don't help them with this or they're denied insurance,so maybe being insured wouldn't help much anyway.But I'd like to know if there is any financial assistance offered anywhere to help pay for an Enterolab test?I do come from  the regions where people tend to get this condition(i got dna tested  a few years ago,which also costs $350-I put it on a credit card and it was eventually paid off) and my family does carry  unknown intestinal troubles,but  til my bread problem I'd never suspected Celiac.It could be some other type of medical condition-the only way to know would be to test,but that has to be paid for out of hand just to even see if you have it.Maybe there is some sort of assistance for it-like welfare for celiacs or Needy? Gluten Intolerant? CALL#. If not maybe something'll come up in the future that'll allow me to  afford to get tested. The whole test is $350 and the gene test separetely is $150.It's not a lot of money,but I don't have it to spend either.I have enough necessities to pay for currently,with other needs waiting on the back burner-I didn't forsee having to get tested for Celiac, too.

<{POST_SNAPBACK}>

I never did have the "official" tests - bloodwork and the like. My dr put me on the gluten-free diet - no wheat, barley, rye or oats. Two weeks later no diarrhea, said it was celiac and stay on the diet. Of course, I'd have liked more information, but since coming to this forum I've learned so much more and have really improved health-wise.

Anyhow, why don't you just do the gluten-free diet w/o dr's? The only thing my current pcp does for me is monitor my bloodlevels, especially iron. Go completely gluten-free for three weeks, then introduce gluten one day and see what happens for the next several days while going back to gluten-free. That would be the diet challenge and is a valid diagnostic too. The only thing all of the tests could show you is if you had celiac disease or were just gluten intolerant. But the treatment is exactly the same. The only test I'm curious about getting for myself is the gene test. But it's not necessary and I'm living just fine without any of the tests.

Annette

Share this post


Link to post
Share on other sites

Thanks Annette,you'e right about the diet adjustment,that it's the same with or without being tested.I guess the test just helps confirm if you have it ,because I feel sort of odd all over so I'm not sure what my condition is,like it could be something else,or a combination of celiac and other conditions.I'm can rule out things I was tested for.I'm not lactose intolerant,my mother said I was tested as a baby at the hospital where I was born.Everyone swore I had diabetes and I figured you don't know unless you know ,so I got an inexpensive glucose meter,and my blood sugar was not in the range of a diabetic-in fact it was a litle low,so I probably need a little candy every few days(to bring it up to normal).And even though Celiac testing costs a little, at leastI'd know for sure if that's what I have or not,where as now I'm not sure.There are many symptoms,and I experience some of them,as well as not being able to eat or excrete to much bread.I bought some 'RICE' spaghetti from the health food store in my area,because I do like pasta sometimes,and I'll probably visit WholeFoodsMarkets and get some of their Gluten-Free bread.So far obtaining gluten-free foods has been a hassle ,with the only item being gluten-free being 'Rice Flour in the Hispanic section of the regular white supermarket.I'll have to order some of the gluten-free products from on line stores.

Share this post


Link to post
Share on other sites
Thanks Annette,you'e right about the diet adjustment,that it's the same with or without being tested.I guess the test just helps confirm if you have it ,because I feel sort of odd all over so I'm not sure what my condition is,like it could be something else,or a combination of celiac and other conditions.I'm can rule out things I was tested for.I'm not lactose intolerant,my mother said I was tested as a baby at the hospital where I was born.Everyone swore I had diabetes and I figured you don't know unless you know ,so I got an inexpensive glucose meter,and my blood sugar was not in the range of a diabetic-in fact it was a litle low,so I probably need a little candy every few days(to bring it up to normal).And even though Celiac testing costs a little, at leastI'd know for sure if that's what I have or not,where as now I'm not sure.There are many symptoms,and I experience some of them,as well as not being able to eat or excrete to much bread.I bought some 'RICE' spaghetti from the health food store in my area,because I do like pasta sometimes,and I'll probably visit WholeFoodsMarkets and get some of their Gluten-Free bread.So far obtaining gluten-free foods has been a hassle ,with the only item being gluten-free being 'Rice Flour in the Hispanic section of the regular white supermarket.I'll have to order some of the gluten-free products from on line stores.

My story is almost the opposite: I paid for the blood tests (negative) and for expensive food allergy tests with Great Smokies - which also came up negative for any wheat/barley/oats sensitivity. And now I'm right where my dietician originally suggested.... not eating any gluten or dairy. I'm slowly reintroducing foods and keeping a food/symptom journal. I can see why having a piece of paper with the dx would give me some peace of mind - but bottom line is that I have to listen to my "gut reaction" - ha ha! ;) So don't worry about the paper, just eat what makes you feel good.

Share this post


Link to post
Share on other sites
My story is almost the opposite: I paid for the blood tests (negative) and for expensive food allergy tests with Great Smokies - which also came up negative for any wheat/barley/oats sensitivity. And now I'm right where my dietician originally suggested.... not eating any gluten or dairy. I'm slowly reintroducing foods and keeping a food/symptom journal. I can see why having a piece of paper with the dx would give me some peace of mind - but bottom line is that I have to listen to my "gut reaction" - ha ha! ;) So don't worry about the paper, just eat what makes you feel good.

I took the Great Smokies test also...I didnt have any sensitivities. This is not a good test for diagnosing gluten intolerance...just for figuring out other possible IgG sensitivities.

Enterolab is a better diagnostic test since it specifically looks for anti-gliadin antibodies. Gluten Intolerance isnt an allergy so it wouldnt show up in allergy tests anyways.

Like you said though...listen to your gut....thats really the best way to go. :)

Share this post


Link to post
Share on other sites
Thanks Annette,you'e right about the diet adjustment,that it's the same with or without being tested.I guess the test just helps confirm if you have it ,because I feel sort of odd all over so I'm not sure what my condition is,like it could be something else,or a combination of celiac and other conditions.I'm can rule out things I was tested for.I'm not lactose intolerant,my mother said I was tested as a baby at the hospital where I was born.Everyone swore I had diabetes and I figured you don't know unless you know ,so I got an inexpensive glucose meter,and my blood sugar was not in the range of a diabetic-in fact it was a litle low,so I probably need a little candy every few days(to bring it up to normal).And even though Celiac testing costs a little, at leastI'd know for sure if that's what I have or not,where as now I'm not sure.There are many symptoms,and I experience some of them,as well as not being able to eat or excrete to much bread.I bought some 'RICE' spaghetti from the health food store in my area,because I do like pasta sometimes,and I'll probably visit WholeFoodsMarkets and get some of their Gluten-Free bread.So far obtaining gluten-free foods has been a hassle ,with the only item being gluten-free being 'Rice Flour in the Hispanic section of the regular white supermarket.I'll have to order some of the gluten-free products from on line stores.

Your best bet, IMHO is to do the elimination and challange that was suggested. I spent 15 years spending an average of 17 thousand a year in co-pays for every test in the book. They took 12 to 14 tubes of blood on every visit to one of the best hospitals in NY and all they ever came up with was low B12 and UBOs (unidentified bright objects not suggestive of MS) on the MRI's. I never showed up positive on blood work. They were getting me ready for surgery for incontinence when it was suspected by a PT who nagged me to see an allergist. It was then found through the elimination diet. I put off surgery and within a relatively short time knew I wasn't going to need it. Once the ataxia and nerve damage healed with the aid of a gluten-free diet the incontinence went away, it was nerve induced and my nervous system was being attacked by gluten. Many others have similar stories. Your response to the diet is the truest test. Check out listings for products that are mainstream, degluten your kitchen and check your shampoos, cosmetics etc... Then challenge yourself 3 weeks to a month after being gluten-free. If you do need a gluten free diet don't be surprised if other health problems resolve too, not just tummy ones. Best Wishes

Share this post


Link to post
Share on other sites
I'm not lactose intolerant,my mother said I was tested as a baby at the hospital where I was born..

You might go lactose free also. I had to at the onset of my celiac disease. The part of the villi that's damaged by the celiac disease is the same area that produces lactase. W/o lactase you can't digest lactose. After your intestines heal the lactase producing ability returns and then you will be able to tolerate milk products. I still don't drink much milk or eat a lot of cheese, but at least when I do I'm not bothered by it.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...