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Thank you for taking the time to update your story.  

If on the gluten free diet, did your anemia resolve?  Mine did within three months (ferritin level specifically) and anemia was really my only symptom when my GI suggested the possibility of celiac disease.  

 

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Thank you, Jmg. I was lucky with the consultant who had a research interest in this area. He was persistent in exploring all avenues when he and his team were perplexed by the inconsistency of the results. It does seem that you can have all of the clinical pointers and still have negative biopsies (even well down into the jejunum).      

The diet has been almost a non-issue for me. I was able to make the substitutions easily. For me, I could see no sense in eating gluten year on year until an annual endoscopy identifies eventually damage.    

 

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