Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Reintroducing Gluten - Symptoms Questions


Adm08

Recommended Posts

Adm08 Newbie

Hi everyone!

I've been on this website for months now but this is my first post. I've had symptoms of celiac/gluten sensitivity for years now and decided this past December to completely cut out gluten to test it out. I had not been to the doctor (in hindsight I wish I went straight to the doctor for testing). Of course when I decided to cut out gluten, I had no clue I would need to later reintroduce it in order to be tested for celiac. My symptoms included fatigue, chronic migraines, being bloated, diarrhea/constipation (seemed to switch between one or the other), eye problems (like dizziness and disorientation), as well as stomach cramps and nausea. I had not attributed any of these symptoms to gluten until I tested it out for 50 days and saw incredible results. I kept a strict food journal writing down every thing I put in my mouth, and recorded any symptoms. After a little over a week being gluten-free, my symptoms were completely gone. I tested it out by eating gluten a couple times during the 50 days and each time, my symptoms came back within a matter of minutes and hit me like a truck! I started noticing that even when I would not intentionally eat gluten, I would still feel it if my food had been cross contaminated. I accidentally indirectly ate gluten a few times during the 50 days, and each time could tell by my symptoms returning quickly and relentlessly. 

It has been at least 2 months since I have not had any gluten (even indirectly), and I have not had any symptoms. 

Here's the weird part:

So since I want to get tested to rule out celiac, I started reintroducing gluten yesterday. For lunch I ate a big piece of a flour tortilla, and a chicken dish from a Mexican restaurant which does not offer anything gluten free. I had no symptoms until night time when I had a migraine (which could have been attributed to being out in the sun all day  - which is not usual for me). Again today I ate gluten for lunch - a sandwich with two slices of regular bread. Once again - no symptoms. 

It's so strange to me that the several times I accidentally ingested gluten during my 50 day test that I noticed immediately and felt horrible, but now I feel fine? I'm just wondering if anyone else has experienced this? I thought that usually when your body goes a while without gluten, it becomes more sensitive to it. 

Is it possible to have celiac disease in this case? Or does it seem more like a gluten sensitivity that "healed"?

Any info is greatly appreciated! Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SLLRunner Enthusiast

Welcome, @Adm08. :)

Celiac has over 300 symptoms, and you can have celiac without having any symptoms at all.  The problem with celiac is that it can damage your intestines without you even knowing it, or feeling it. The only way to tell if you have celiac is the get tested, the final test being an endoscope. 

You're smart to get tested. 

 

 

cyclinglady Grand Master

Just make sure you are consuming gluten daily for 8 to 12 weeks, prior to any celiac antibody testing.  

 

 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...